Harvoni Side Effects (Page 31)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

REPLY

REPORT

Hi Jim
Thanks for the response. I had a battery of tests today and I will post the outcome (for what it is worth). I read on another forum that people are starting to develop diseases that have been reawakened by Harvoni (they suspect by the impact of changes to the immune system) such as Lyme disease and I think in my case Glandular Fever.
It sure would have been nice to know this before signing up.

REPLY

Was this helpful? 2

9th week on HARVONI... Mild to more+ side effects like headaches, intestinal pain, bodyaches, swelling. Yet Hep C itself causes some of this and so to kill it the cells must release it into the blood so wherever its hurting you your sick. but until now none daily really. excepting now having back/lung pain. See Dr this Friday and will address.
BUT I am left with the impretions after being progressively sick for years and what I needed to learn is this.
Hep C is the enemy. What it progressively can do to some peoples body is horrific yet not all of us have the same reaction in our bodies from Hep C> Each of us have individual though some common attacks made on our bodies From Hep C. So what I believe is that in myself for instance it has drastically attacked my liver and I was stated Stage 4 Chirrosis..... and unbelievable as it seams in the natural just received my blood testing and it seems, an act of God for myself. I had worked hard to reduce my AST/ALT levels from 487/440+ to 102/130 ranges and it now shows NORMAL @ 35/43! Astonishingly my Creatinin/Platelets/Billirubin etc.... all these organs I have been watching out for and treating and now they all show normal. I mean all in normal range. Look, we all suffer....or ...die but not unless you want to and our gracious and ever giving God of the most high says stay in faith...and he will fight your battles for you. Amen

REPLY

Was this helpful? 2

602 Charlie. Glad to hear something positive. I promise to pray for your healing!

REPLY

Was this helpful? 2

Thanks for your prayers. Likewise I pray for all that battle this. We should remember our God will do his part. BUT.... are we doing our part? Are we being irrational, hypersensitive or hyper vigilant? PAIN after time plays tricks on us just as the enemy. If you have heard of someone with bad injuries that didnt even notice the more minimal ones until the main pain is removed? See if our body's are riddled with misc. issues and failures due to Hep C then remove one and you'll notice the others. Even others you may not know you had. The enemy is not Harvoni or big Pharma or conspiracy's. Though their may be some truth to that... the enemy is Hep C. I am no proponent of Pharma companies but to get medications like this approved is not only difficult but go through many hands. I know many have posted complications and wish they had not started. For me its saving my life. See Harvoni is killing the virus that wreaked havoc on my liver, kidneys, gallbladder, pancreas, and skin and joints. All these are and were from the enemy Hep C. In most cases Harvoni is the David and Hep C Virus Goliath. Since we all talk to ourselves daily I feel we should try to focus the conversation on healing and not be angry and in pain. Focused on that only brings more. I have read so many blogs and feel the focus is on the wrong thing. Because healing when your acutely ill comes partially by how we think, talk and act and is recommended by the scribes whom left the writings of many for centuries. So focus should be on how great the divine healer is and not just the man made pill. I rethink how I traveled to this moment and realize it was no accident.

My challenges started when a DR felt I had contracted Legionair while at a seminar and sent me in for further diagnostics and to the hospital who said I had pneumonia (cant spell that). I was being treated for both. Weak, muscle pain, irritable, sinus infections, backaches, lethargy, foggy, dizzy, temperamental, low oxygen, thick blood.... 7 doctors later and a few years and time and $ spent and I thought "well i have no certain diagnosis so I think I just need a vacation and a scotch". Some of these irritations went away as I was treating them with nutrients that my body needed for those organs etc to regain momentum and some came back. Harvoni was not the cause. My body was already compromised. An example is my liver that was nearly destroyed by the HEP C or nerve damage from a past car accident or sinus problems from 2 broken noses as a scrapper. Thinking in this way where maybe the body is starting to function properly after killing the infection and its learned to bypass some normal ways trying to heal us and now is having to change again and in so doing other ailments turn up? My skin was getting rashes and sores and not healing well and I felt very ugly. I worked on it and reduced the issues somewhat. Then taking Harvoni it came with a vengeance yet soon subsided. I believe its part of the process but will repost after I am done in a few weeks, have diagnostics and re-evaluate in 6 months. Yet I pray each one of you that you stay focused on whats possible and be faithful and bold in your requests. Amen.

REPLY

Was this helpful? 2

Have you had testing done for Fungul Infection? or Candida overload?

REPLY

Was this helpful? 0

Methocobalamin?? I think the spellings off. You can read up on it. You want a high % of this Vit B for neauropothy. Vit B depletion is rampid when you have infection. There are a few B vitamins. I took this for a few months and mine subsided.
I had ALL tests including hormones checked as none of us after having this infection are ok really.

REPLY

Was this helpful? 0

Yes..... According to my health professional lower back pain can be caused by many things. Lung infection, Muscle under large thigh muscle and not the back. Gallbladder, kidneys, intestinal blockages, previous injuries etc.

REPLY

Was this helpful? 1

Hello, I developed severity of chronic pain like all of you are talking about as a result of another medical procedure that punctured a nerve. Please look up this information and see a pain management doctor. It saved my life and I do have one today. Complex regional pain syndrome (CRPS) formerly reflex sympathetic dystrophy (RSD), "causalgia", or reflex neurovascular dystrophy (RND) is an amplified musculoskeletal pain syndrome (AMPS). It is a chronic systemic disease characterized by severe pain, swelling, and changes in the skin. CRPS often worsens over time.

REPLY

Was this helpful? 2

Dont do it if you are not sick. I took it for 12 weeks and cleared HepC but now have chronic auto immune diseases

REPLY

Was this helpful? 4

welcome to the club, I did 3 months last year and still have the pain you describe, for some this is permanent

REPLY

Was this helpful? 2

My cousin was on harvoni a year and half ago.He is cured 100 pecent.That is wonderful,but now he seems to exhibit strange behavior.Always feels tired.Lost a lot of energy .Had a few kidney infections (never had one before harvoni).Now he almost acts like he has dimentia .Sleeps horrible ,walks very slowly ,I just wondered if anyone else had these symptoms-He also has anxiety and worries constantly ......Was always a strong person

REPLY

Was this helpful? 4

I did the harvoni treatment for 8 weeks in 2015,in my third week started getting rash like on my legs and severe nerve pain that goes down my legs and I still have the pain . Dr did have me do B12 injections which I still do once a month,I feel exhausted a lot so I think that is a side effect.I am hep c free but there is side effects we have to deal with that are very unpleasant and I don't no if they will ever go away.

REPLY

Was this helpful? 1

Popeye and san12, I used to post a lot here but haven't in a couple months. Some people take Harvoni and just sail right thru treatment. Then there is a percentage of us that it just destroys our life. I finished 12 weeks in June of 2015 and this morning had a test still trying to find out what Harvoni did to me. I am a member on another support group that everyone is having all the same problems you guys mention. Most of us are 2 years past treatment. It doesn't go away.

REPLY

Was this helpful? 4

Doesn't go away?! This is a life changing drug! If my husband had known the side effects of harvoni.. he would have never taken it!! It has changed him! Brain fog, confusion, joint and muscle pains, feeling of being "out there".. he is depressed about these changes! He took 12 weeks a year ago. He is Hep C free but he said if he had known he would live with the Hep C! Please consider this before taking this medication! The doctor said nothing but headaches and tiredness.

REPLY

Was this helpful? 1

MrsM, I feel the same as your husband. If I had a clue what life after Harvoni was going to be, I would choose to stay infected. Like I said, many people sail right thru treatment and are fine afterwards. Some of us don't. I had HepC for about 35 years, I stopped drinking almost 30 years ago and led a clean life and I knew how my day, week, month - how my life was going to be. From January of 2017 until April I had at least one test or doctor appt each and every week. If I could get my old life back I would live with HepC.

REPLY

Was this helpful? 3

I took harvoni for precaution only. I'm now 1 year post harvoni treatment and I now have more problems with gas building up than I had before. What are some ways to alleviate this symptom?

REPLY

Was this helpful? 1

Get some food grade diatomaceous earth. Google it, saved me and still does, i do a tbsp a day in water at least for the gastro horrors of harvoni.

REPLY

Was this helpful? 0

Took harvoni and now my heart doctor says my cholesterol is off the charts. I know it has to be from taking harvoni because I have not changed one thing about my diet . Now I'm on 7 pills per day to try to bring it down. I'm scared - I've had a five way bypass plus 4 stents. I need help.

REPLY

Was this helpful? 3

Hi Jenna for me its has been a yr since i finished harvoni but i'm very sorry to say my legs constantly pain & my knees & back hv gotten worse. I hv an appointment with a rheumatologist in Oct. This is Canada thats how long we wait. I can't stand too long due to the pain. I am beyond exhausted even if i am awake doing things for 3 hrs. I tolerate it in the daytime but at night the pain is worse i think bc i'm not moving. I take morphine for pain. I still would hv taken the harvoni tho. I hope it prolongs my life for awhile until transplant time. I am stage 4 & hv cirrhosis. My family Dr says i may hv RA or Fibromyalgia. I am 58 & still would hv taken the harvoni besides everyone's body is different. There is still a good chance u may get better. Don't give up.

REPLY

Was this helpful? 1

looking for any kind of interaction or symptoms (side effects) when taking Suboxone with Harvoni (for the 3 month cure period of hep-c). Replies would be well appreciated.

REPLY

Was this helpful? 0

Hi my wife has just started harvoni - about 9 days or so now - and she is getting swelling in left leg and also feels li...

59 REPLIES

I stopped the first interferon based meds for hep c1 because of severe rotational dizziness on the slightest movement; t...

5 REPLIES

As I read the side effects I find myself getting more and more annoyed at big pharma. If you google Gilead and litigatio...

109 REPLIES

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased...

263 REPLIES

Curious, I've started my 5th week of treatment and am wondering if anyone has experienced similar side effects as me...

52 REPLIES

I'm 64 yrs old, geno 3 hvc, I have emphasemia, fibroscan 7.1 (not too bad), viral load high. I'm considering tx,...

1 REPLY

I need to know of any side effects that may occur while taking this medication. ## Are there any risks to taking this me...

487 REPLIES

side effects of cherrifer vitamins ## I chanced upon your site researching for side effects of Cherifer. You sent me an ...

281 REPLIES

I have been on suboxone now for just under a month. I think it is an amazing drug, i have had no cravings or interest in...

262 REPLIES

I am taking one capsule a day of this vitamin with my breakfast, but have very severe nausea after taking it. Is this co...

185 REPLIES