Harvoni Side Effects (Page 21) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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I am 1 year post treatment and still have tingling and numbness (also feeling cold) in my hands and feet which also goes into the arms and legs. I have been diagnosed with severe small fiber neuropathy, basically Harvoni has caused nerve damage. There are other who are suffering from joint and muscles pain. Look up anti-virals and mitochondria toxicity to see what Harvoni can cause. I would give you my email to communicate but they block it out every time I try.

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I finished 6 months of Harvoni in September. My 12-week post treatment blood work showed I cleared the virus. The first four months were difficult (worse than interferon, etc) but the symptoms eased up by the 5th and 6th month. I began having intestinal problems about one month after stopping Harvoni. The diarrhea stopped but I still have stomach pain, cramping. About two months after stopping Harvoni, I developed severe joint pain in my wrists and fingers. It seems to be getting worse. Ibuprofen helps but I'm worried about all of this. Of course I haven't talked to the Hematologists; they were dismissive and ignored any problems I had during treatment. Although I'm grateful that the hepatitis C is gone, I'm concerned now that I've suffered permanent damage from Harvoni. I felt better much better before starting Harvoni but am aware of the dangers of developing liver cancer and other problems caused by Hep C. It's even more worrisome now after reading that others have the same side effects after completing the drug but it's very helpful to know what's going on with others. I am a person who always wants to know what's going on and have had a long career as a Patient Advocate. I wish everyone the best and encourage them to keep writing about their issues because it's the only way people really know the truth about this drug. Interferon and ribaviron were difficult but at least the doctors addressed the issues and acknowledged that they caused problems. This was not the case with Harvoni. I drank tons of water, watched my diet, etc., but I nearly quit taking the drug before the designated end of treatment. I have a wonderful primary physician, and, if it weren't for her support, I would have probably stopped my treatment.

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Please not only write about your experience but report your side effects directly to the FDA, not to Gilead. I just read an article that Gilead is a huge offender of properly reporting adverse events to the FDA. Google - "Most drug makers report incomplete side effects to the FDA" So sorry if you are suffering after Harvoni. Believe me, you are not alone.

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Is there a web site to post side affect comments to the FDA?

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Nelly...... I haven't yet started my harvoni treatment yet, but thru tests I've gone thru due to cancer releted issues, it was discovered that my biale trac was getting clogged and had a endoscopy procedure to clear it. I can pretty much assure you that Harvoni didnt clog your biale trac, It was your long time HEP-C LIVER that did it !

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To post to adverse affects to the FDA:

fda.gov/Safety/MedWatch/HowToReport/ucm053074.htm

It is a simple procedure. Everyone should be reporting their side effects to the FDA.

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I can't help but I just took pill #40 and I am also experiencing the same symptoms.

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I will also ad that I am having joint stiffness and pain in my fingers also. Tingling down my arms just started a couple of days ago, I'm on day 40 now. The first couple of days I had a lot of wrist pain that that has subsided. I've had 3 back surgeries so I always have nerve pain in my feet and legs but it has gotten worse on the Harvoni. With any luck I only have 16 more days to go so I'm praying things don't get worse.

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KKH-don't give up. I don't know your insurance situation but there is assistance available, for now anyway. The online pharmacy that my Dr used for my script put in for financial assistance and my copay was totally covered for 3 months. It only took them 30min to get it approved. My friend had the same experience last year.

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To Jane (post # 72) - To answer your question about sharing private emails, you are correct that we do not allow that information to appear on our discussion threads, and it is against our privacy policy. As you can imagine, protecting the privacy of our visitors is a top priority, and because we do not verify the identity of individuals who participate in these threads, we have no way of knowing whether someone who has shared a private email address is actually the individual in question, or somebody else misusing their information. We hope this makes sense. If you have any more questions about this please feel free to send us a message via our contact form. Wishing you and everyone on here good health!

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I am also loosing my hair. My hands are numb but hurt. My end of treatment results are in and HCV is not detectable. Although I am grateful to not have HCV anymore, I learned to be careful what you wish for. When I asked the GI DR about all the symptoms mentioned by us he said he could not find that info in med books. As if there are only 2 minor side effects.Well DUH!
The interferon & Ribavirin I took also dropped my white blood cells at 1 week and then had shots 3 days a week of Neupogen and at week 2 my red blood cells were wiped out & I took 1 shot of Procrit weekly. Now add a shot of Pegasus weekly I had shots 6 days a week.

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Take my Harvoni. I'd love to give it away but it's illegal. You have to be in jail on medicare or medicaid or have been in the armed services to get this medication. It's so greedy to charge fourteen hundred dollars a pill. I contracted hep-c in the Army by air gun injection.

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Is it Really possible to have contracted Hep C by an airgun injection? Maybe the Army is where I got mine too.

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I am 2 wks into this and the emotional roller coaster is awful. I go from rage to deep depression. I feel like I lost me. I called the NP and they are making me see the doc for labs first. It's the medicine and there is NO way I am willing to go through this for 3 months.

I also feel like this was pushed on me very aggressively I have to work and can't work and take this med it's one or the other. Everyone says stay on, I wish I was a person who tolerated it well but I do not, it's to new and they really do not know long term affects. I felt better before this I hope I snap back to me now I feel like a depressed zombie. Best wishes to all of you

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Gilead has made 20 Billion in profits in less then a year. There is no doubt they are receiving kickbacks when I received my letter of approval I was cut off at the pass from picking it up at my pharmacy. Banned! I wasn't steered I was hijacked as a Pham I didn't know delivered all of it to my clinic I was rightfully so livid. I knew then and there money was being made.

What I find even more annoying is they blame the patient like we were like this prior to the med? It has to be something else they minimize the sides that infuriates me even more by the lack of validation. I think if you are in liver failure or cirrhosis this is good news. If you liver is stable there is no doubt it's about the bottom line. It's just to new.

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I would have to agree that there must be some financial incentive for Drs to prescribe Harvoni. The GI Dr that prescribed mine was sure pushing it even though he told me there was no urgent need physically. He kept saying do it while insurance will cover it.

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That was the exact line of B:;l S::t that I got. It might have been do it now before the real reported side effects come in because I am invested in the stock and right now it's volatile

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Thank you! You are the first person that supported my decision. I hope in 2 wks no damage was done. The emotional blackmail that once you start you can't stop is even more alarming. I don't want to feel like a failure but this is not a life and a year is hardly temporary. The drug is just to new and they don't know enough about it.

I hope you are doing well, I read the drug comp was a bit disturbed that there are not enough hep C patients. The audacity! God bless!

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Have you gotten any tats? Ised a razor that maybe someone else used? It had to be blood I guess it doesn't really matter at this point. Happy healing!

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I just read your post, i am so sorry. Please keep us updated, as you will read i just began this and should have done my homework. I hope you are well.

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