Harvoni Side Effects (Page 17)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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REPORT

There is a legal case pending in California right at this moment. I think once the outcome of that case is determined that's when many will have their chance to take or not take legal action, for now this case is CA is what will set precedent from all I have read, too late for some unfortunately...

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ChepCFree: Sorry, I thought it was Harvoni that was the problem. This chat is called "Harvoni Side Effects", so I made an assumption.

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kkh - The assumption is correct. If one is healthy before Harvoni and dies while taking Harvoni, there indeed can be a correlation. However.....at this point few to no medical professionals will admit to that. And no death certificate will read Harvoni was the cause of death.

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Dane (and anyone else with bad side effects), Can you share your pretreatment details? Like, genotype, viral count, liver condition, other health conditions (if any) and medications?
Thanks.

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Forgot this in my previous post. Can you also share your age and gender?

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for everyone. All of you that hurt and i include myself. We DO have a major disease. We will have bad effects even without Harvoni . So make sure we put the facts out there and see for ourselves what is really true. is it from Hep C or from the other meds like Harvoni. Time will tell so lets keep putting it out there. Good luck to us all. SMILE!!! it better then feeling the opposite. :)

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Today is day 7 of my Harvoni regiment. I am still having minor to terrible headaches, some morning upset of my stomach, EXTREMELY tired and I am having pain in my kidney region. The worst side effect other than the continual frontal headache and being so friggin wiped out tired is the pains I am getting in my lower back and down my right leg. I had hoped that the headaches and the tiredness would have gone away and gotten better but the headaches have remained the same and I am more tired than ever before. Combined with the lower back and leg nerve pain, I just plain feel lousy, not that I cant do anything lousy, but honestly I am feeling worse than I was when I wasn't taking the Harvoni. For the record, I never got headaches, I was always slightly tired throughout the day, now I am MUCH more tired. The pain I am getting in my Kidney areas are all new pains, my back and nerve pain down my right leg was already a physical impairment but it is worse than it was before treatment. So today is day 7, with 11 more weeks to go. I am trying to walk, take some motrin and stretch as much as possible but it isnt helping. I am still trying to think positive and hope for a better life. One last note, the color of my urine is so dark yellow, symptoms of dehydrated but I am drinking tons of water and pomegranate juice because the last side effect which is not a pain is thirsty, I am ALWAYS thirsty, drinking as I said tons of both those liquids.. Yet my kidney areas hurt and my urine is dark, very dark yellow which while not painful, it is still a troubling side effect as well. So [so] far I am most certainly having more side effects then told about and more than what is listed as possible side effects as many others are having and experiencing as well... This will be my last update for the next few days, I will keep listing any and all of them for others to know about. As I said I contracted Hep C in 1978 while serving in the Navy, my viral count was in the 7 - 8 million range, Geno type 1A, I am a 56 year old male and I had No cirrhosis of my liver surprisingly enough, I drank hard from 1977 - 2001. I haven't had a drop of alcohol since 2001. Thanks to all of you who also contribute by sharing your side effects.. I will write again at the end of my 2 week treatment. God Bless and keeping my fingers crossed for a positive end result for all of us taking this medication.....

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Female 57 when diagnosed in Nov 2014. Had it for 40 years and never knew it until I had pain in the liver area that got really bad within months. 1b, 1mil500 viral load. Did 8 weeks Dec 2014 to Feb 2015. Left with horrible hands and foot pain with nerve involvement and cramping. Joint pain everywhere. Headaches. Was not on any medication except an occasional Tylenol. Took nothing, no vitamins, nothing. 17 months of pain which isn't any better. Didn't have the problem prior to treatment.

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I hope I don't end up regretting my decision, but I started on Harvoni last night. I also hope that all my research on how the drug and the hep c affects the body will pay off. I will update at 4 weeks with my status, the regimen I'm following, and any side effects thus far. I could have gone with the new Zepatier, but it's brand new and was slightly less effective for my genotype in the trials.

I have GT 1a, stage 2 fibrosis, viral count 440k, no other meds, no unrelated health conditions, 55 years old, white female. I am very physically active and eat what I consider to be a healthy diet.

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Four locks: thanks for sharing. So sorry for your misery. I really hope I won't regret my decision to treat. Hope it gets better for you in time.

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Stupid autocorrect. Suppose to be to fourlocos, not four locks.

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Hey friends,
We can smile but it's not easy when you are ill. I am noticing and it's rather scary in addition to all the labs that at off I now have unless it something else issues with confusion and focus big time. Was that what ppl referred to as the hep C brain fog? I never had it like this! I am forgetful short term memory didn't just happen overnight! It was apparent when I was on Harvoni though my 2 wks of hell. I find it so disturbing as ppl are mislead. Watching the ads on TV like its some walk though the park cake walk and we should be HAPPY it's available to US! Again if only I trusted my instincts and didn't allow my doc to intimidate me to going on it. I should have spoken uo more, not allowed the exploitation be maneuvered to looking like I should be grateful this wonderful gift. Yes right I knew then I never had a drug pushed on me so hard I even thought if I didn't go along My doc would leave, treat pts that wanted to be treated is how I recall. That's just awful to do to someone.
The weakness tinnitus and migraine with aura is almost daily. Now it's a wait game to see the new list of docs due to labs that were never not within range as I feel like I am spiraling down or somewhere. RA, lymph (!) that's why I had such pelvic pain and thyroid all very high out of range. My liver enzymes much more elevated. If u saw labs post treatment and now it's like another person. I feel like one as well.

No one is going to tell me it's not the Harvoni unless it's lead paint or something in my bldg that has been adding to the stress and illness as well. MOLD not a happy camper I pray for acceptance, I pray for healing and I pray for.......accountability. That someone, somewhere brings this to the attention of new docs and pts this drug needs a black box warning to say the least. I really think a lot of docs don't know the drug is to new. The ones who participated in trial... They know, no way by now they don't . They need to get honest and stop the cover-up.

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really that is funny. something to laugh about. for once

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Why is that necessary? I can say I was or still are 1A the other numbers othet then VL that moved around and I was told not to worry erer all within range. enzymes slightly elevated but nothing terrible.

Now I have auto immune disease and More nerve damage and God knows what else. That's TMI for the Internet as is
One more thing 4 liver biopsy I tried to really take care of my health.

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Sherri I wish you a speedy treatment with minimal problems. Many people have been okay so let's hope for the best for you. If I was facing treatment now I would probably have done it anyway knowing what I know. I was afraid of the pain my liver was throwing off and my family wanted me to treat! Keep me updated on how you are please. Break a leg!

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I had problems pre harvoni, triple bypass with none of the markers. No high cholesterol, no diabeties, not overwieght. Docs said it could have been from the hepc, right. Well post harvoni, i now have high cholesterol even thou i've been on a statin for 2.5 years, joint and muscle pain like crazy, brain fog, I can't think and the fatigue is awful. They told me all my problems would be solved by taking it. I am in such worse shape and feel like i've taken years off my life. going to a new doc but know convincing him the harvoni did it will be impossible.

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I agree you won't get any doctor to say it's from Harvoni. How can they deny so many people with all the same complaints after treatment. I am 17 months out now and it's not going to ever get better. That is obvious to me now. I had hope a year ago it would improve. I felt I aged ten years as well.

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It is a terrible thing that they have done. Yes the drug may be a miricle for those slowly dying from the hepc but for most of us, I don't think our virus was doing the damage they tried to say it was and I seriously doubt hepc would have been the d eath of me. I feel like I'm slowly dying now and not being able to do the things I want is hard.Especially with the grandkids, they don't understand grandma does't feel good half the time. I'm still working and live alone, it's really hard but I'm searching for help and hopeful my new doc might help. It's a a clinic where they do IV infusions of different sorts for various things. I know they are popular in Europe for many things and willing to try just about anything. Problem is insurance won't pay for them but oh well if they make me feel better I'll just have to work more to pay for them. Somewhere in there I know none of this makes sense.

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I am already having intense back leg and nerve pain previous harmonic. They say interferon side effects were even worse. I see pain management who is willing to help me work through painful side effects. If I didn't take neurontin now I wouldn't make it through the day. Say a prayer for my treatment as I will for all of you. I am nervous. Treatment starts in one week!!

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Please check on change.org and search under Harvoni for a petition to the FDA to disclose all these horrible side effects. They DO KNOW about them as do many of the medical profession. Help us to get them to do what is right. Why should we have to come here to find out the truth??

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