Harvoni Side Effects (Page 14) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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REPORT

I just walked out of the ER was in the floor for 2 hours in pain. Had a dream the fire dept had to knock down my door, uhh no I am not smoking anything.

Made it to the ER as all my docs r giving me the run around. My labs are high from where they were when I was on Harvoni those 2 wks. I am at 112 where I was before two wks of hell. The nerve damage its radiating from spine to lymph node, hip etc.

I agree this can cause nerve damage I only hope it reverses I had nerve damage prior to treatment. What a mess. Let's all just pray!

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I do have pai n in my lower back, I had this pre harvoni, will it possibly get worse???

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Mine sure did I can't hardly walk and I am on pain meds. I was doing so well last year now depressed and knees, hop, back is so bad I can't get up from bed. I have to roll over some kind of way.
It's heart breaking I live alone and don't have anyone. I worry constantly THIS WAS discussed with my doc before I went on it. I didn't want to because of fear this might happen. I wish I had a recording of the absolute guarantee that NO ONE absolutely I was the only one in a big city Hosp that reported anything. I counted over 200 on here alone.
It's an insidious med and a total roll of the dice I would never, ever take this.
They did chg the black box warning for all of us who were the only ones. Yep indeed the numbers are increasing.
It's all about the money, end of story. Not us the MONEY! The more you mention it the more they work to silence us.

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I am at the West Palm Beach VA and they WILL NOT give pain meds, besides I am on Suboxone so no pain med will work anyway. This seems alot scarier then they have led me to believe. Its time for a heart to heart talk with the doctor. Thanks

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I am 56, thanks for the information about the treatment your doctor suggested... I will look into this myself, not sure if it matters that I am a male, but I will as I said look into this. Thanks for sharing..

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I read your post; I did Harvoni for 24 weeks, I did well on treatment. Had frontal headaches and leg cramps which I still do but my viral load is undetectable. I did tx. from Jan of 2015 to June of 2015 but I'm having issues with abdominal problems. Been in hospital Twice with Pancreatitis. Also my Gallbladder was suspicious of not functioning well but it is ok. I also have p last month in May of 2016. I do have poly-cystic kidney disease but had that prior to Harvoni but having severe pain on right side under breast that radiates to my back. All my test came back good but have some concerns about upcoming side effects from the Harvoni as you are concerned about to. Want to look back on this site if I can find it to keep updated on everyone's after effects if any.

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Actually, the methylated B vitamins, mineral complex, modified ketogenic diet (higher fat lower carb), and beta glucans (medicinal mushrooms) were advised by a cardiologist who once practiced typical medicine but has now educated herself and practices integrative medicine as a cardiologist. A lot of what I'm doing right now is to prep my body for the possible neurologic and metabolic damage that seems to occur with Harvoni. HCV causes insulin resistance (metabolic syndrome) which can get worse during treatment and can affect response to treatment. A lot of people develop Type 2 diabetes mellitus while infected with HCV. Monitoring of patients' nitric oxide levels have shown deficiencies during treatment, resulting in extreme fatigue. Neurologic damage takes place at the mitochondrial level (drug induced mitochondrial myopathy). On Gilead's own report, there were cases of elevated creatinine kinase levels, which can result in myopathy. But they don't mention the latter part about myopathy of course. I don't drink alcohol anymore and my enzyme levels have gone down since quitting. My viral count is low, all other levels are back to normal since going on a strict supplement regimen, such as, platelets and WBC. After more research and advice from knowledgeable professionals, I'll decide on which ones to continue during treatment. If Gilead was more transparent about these affects on the body, their doctors could advise better on diet and supplementation. But, they are in too much of a hurry to make tons of money before the next, and better, generation of drugs come out. The are beholden to their shareholders first and foremost, not to us.

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NEWDAY: I am really sorry that you are going through such awful, horrible problems because of taking this "miracle" drug. NO ONE should have to go through that.

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I agree with NewDay. NewDay went against her instinct and is now suffering. I am in the same boat. Went against my better instinct and am now suffering long term. Take note potential Harvoni patients. If your gut says "no", listen to your gut!!!!!!!!

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This is not good news. I've never been sicker or more back and Edema in ankles knees - not.good. A female friend just texted me a message since we have both been through the Harvoni treatment. Hep c free. Sick the whole time and even worse now. My immune system is shot - I have a sinus infection that will not go away with all the typical antibiotic I normally take. I had back trouble before, L4 and L5 discs ruptured, much worse now. I guess it's time to go after them to leave something for my kids and grandchildren. Good luck my friend. I and others thought it was a miracle med too. {edited for privacy}. I guess we have to kick into high gear. I don't know how I wouldn't have seen this. Guinea pigs......

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Sovaldi seems to be the culprit of all our problems. The Solvaldi/Olyisio combo has bad sides as well. I know a woman whose mother died on it. Vibrant/active and then too S/O and died. Although we don't hear about that nor all the deaths from Harvoni. I have FDA reports to prove these reported deaths...dozens of them.

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Jim, I took it also and finished my course on 12/22/2015, the date they said i was cured.. for now. The only real side effects was i had a headache for 1 day (wasn't much of one) and was very very thirsty. Sucking on hard candy or blow pops help. The side effects u all have. I had them before treatment. Toes back insomnia all of it. I have major cirrhosis damage like a 90 year old is what they told me. Thought i was dead yrs ago and my Dr at the Va say it was a miracle that i have lived. Disc surgery (4x) Triple by pass. Throat had to be enlarged (3x) coma for 10 days. compression fractures of the spine It has been ruff but i and my mom said there are people that have it worst then you do. Be happy u r alive and living. Take pain meds that helps with those issues but u have to tell the Dr and don't hold back on how you feel. I also consume marijuana to help and it does and it has help with eating and mood improves. Finally they gave me med that has THC to help with eating but i still smoke for mood swings. I am alays happy no matter how my health is. Enjoy the people you have around you and if you don't get compassion from them then maybe u should join a help group. It always helps to talk about it. Good luck to all. TRy not to dwell on your problems. the more u think about how bad u feel. The worst the pain gets. Never be alone when u are in the dumps because of the illness. Call someone that understands and will listen to you. Vent to someone and get it off your chest.

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CHEPCFREE: Deaths? OMG, it just gets worse with these drugs. I think I will take my chances with the Hep C at this point. And, yep, now I have a hepatologist who is pushing for me to take these drugs. Yikes.

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Yes deaths. I have personally been contacted by 5 people who lost loved ones to Harvoni.

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I hope I don't end up regretting my decision, but I started on Harvoni last night. I also hope that all my research on how the drug and the hep c affects the body will pay off. I will update at 4 weeks with my status, the regimen I'm following, and any side effects thus far. I could have gone with the new Zepatier, but it's brand new and was slightly less effective for my genotype in the trials.

I have GT 1a, stage 2 fibrosis, viral count 440k, no other meds, no unrelated health conditions, 55 years old, white female. I am very physically active and eat what I consider to be a healthy diet.

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Four locks: thanks for sharing. So sorry for your misery. I really hope I won't regret my decision to treat. Hope it gets better for you in time.

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Please check on change.org and search under Harvoni for a petition to the FDA to disclose all these horrible side effects. They DO KNOW about them as do many of the medical profession. Help us to get them to do what is right. Why should we have to come here to find out the truth??

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Jim, How long is your treatment? Were you ever treated with interferon, etc?

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go to youtube and look at the vid "harvoni day 50 stage 4 cirrhosis reversal". It explains why so many suffer pains and mentions the remedy.

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There is a Petition on Change.org for so many of us whose Doctors were not transparent with side effects. Please sign it! Put Harvoni in the search. We need to get out there that the doctors AND the company inform people before they go on this med what they might face in the future. Many of us asked and were denied the truth. Please sign so the rules change. Don't deny patients their future health.

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