Harvoni Side Effects (Page 14)
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I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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REPORT

What's really going on with this Harvoni? We know we were Guinea pigs sold a bill of NO good but why doesn't the FDA yank this drug or list the side effects? It's because it's been such a cash cow for so long. It's all about the stock, big pharma and how greedy or dumb our doctors are. I chose to say greedy. I will never see that doctor again. I suggest you write a letter to the company CEO tell them (not that they care) but put a live voice to this poison, we have only one life, why not! They gauged the price from day #1, soon we will not be talking about it anymore. When is this company going to be held accountable? This is the corrupt power of big pharma. I am so hurt because I really was trafficked by my doctor. I really feel like they knew the whole experience was one dark nightmare and it's not over yet. Keep posting for others to see and I wish you all healing. I would love to find a lab and find out what's really in this med. I swear it had something bad in it.

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I am 15 post treatment and am still virus free, so at least it killed the virus. However I didn't have this many problems before Harvoni. On some days I wish I never heard of it. My wife wanted me to wait before taking Harvoni. She felt I was pretty much stable, Harvoni just came out, was rushed thru the FDA approval process, so just wait a while - I had been filled before. But when I heard 98% cure rate and "low" side effects, I jumped in with both feet. My only advice for you is first, report your side effects to FDA web site, and have your doctor treat side effects one by one. If you try to tell your doctor they all come from one source, Harvoni, they will eventually call you nuts and recommend a shrink. Hold strong and make sure you have people to talk to!

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Thanks for the reply Keith.
I have every one of the symptoms you listed except lung function.
I have also got strange pins and needles all over my body. It feels like a circulation issue but I cant be sure.
In week 9 I could not hold it down so also missed 4 doses and am aware of the risks of virus mutation when you miss doses but my body just would not accept it. So now i have uncertainty as well.
Dont know if it is even worth taking the final 2 weeks.
I am sorry you are also impacted but I know thst these side effects are real and its a relief to have it validated.
How are you now ?

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Vanessa, your doctor is lying to you! This is one of the more common side effects! Nueragia, tinnitus, headaches, lung infections, memory confusion are just a few of the more common side effects! A different group I am in has started a petition from to get Gilead Sciences to be more forthcoming in just listing the side effects - no money, just tell us the truth!

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I am on week 10 of Harvoni treatment.
Was not symptomatic. 0 fibrosis and felt great.
Day 5 of Harvoni my left foot went numb.Developed drop foot as a result and had a severe fall. I am not elderly.
Have cycled through severe vomiting and diahorrea. Near fainting dizxy spells and a rash that comes and goes. Blinding headache the entire time.
Doctors say I am the ONLY person that has ever reporred neuropathy.
I am afraid of taking it any more.
What the hell is going on ?

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Scared mom: Yes, suicidal ideation is a less common side effect from Harvoni. {edited for policy reasons}

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Oh I just replied to you on another thread here. So he was on Harvoni then? How old is he? I haven't heard of that type of deep depression on it but I am not saying it isn't there at all. Many reported anxiety. What is your doctor doing for him? As a mother of two adult sons I would be worried sick!! I hope someone is there to help you.

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My Son started Harvoni. From the very first day, he woke up crying. It has gone down hill, since after 6 weeks he had to get off to save his life. He was having depression and suicidal thoughts, and they're not getting any better. I don't know what to do. Any help?

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I posted earlier about debilitating achiness post Harvoni. I am now 2 months post treatment and my body is definitely transitioning post treatment. Achiness is slowly diminishing. I cannot explain this except by acknowledging the power of my body adjusting to no viral load.

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I am 8 weeks post harvoni tx of 12 weeks. My lower back pain has increased from manageable to horrid. The joints in my wrist, fingers, feet, and hips all are very painful. I feel like the harvoni has done damage to my nervous system! The pain is driving me crazy! Anyone out there have any remedy for post treatment harvoni issues?
Luna

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Just a reminder to all of us who have damage after Harvoni to report this to the FDA. I think we all know they don't really care but if we don't bombard them with our information, they can always come back and say they didn't know about it. Just google FDA Reporting Adverse Events and the option to report will come up.

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Me to 12 weeks of Harvoni treatment now bad spinal pain, leg pain, feels like needles in the bottom of my feet, migraines,insomnia .Just a sick nausea feeling all the time and definitely no energy left. I now have a walker,shower chair ,back brace and cane. My nervous system is wrecked anxiety and depression worse but still breathing. I guess that's good news.

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Me to 12 weeks of Harvoni treatment now spinal pain, leg pain, feels like needles in the bottom of my feet, migraines .Just a sick nausea feeling all the time and definitely no energy left. I now have a walker,shower chair ,back brace and cane but still breathing.I guess that's good

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Me to 12 weeks of treatment now spinal pain, leg pain, feels like needles in the bottom of my feet, migraines .Just a sick nausea feeling all the time and definitely no energy left. I now have a walker,shower chair ,back brace and cane but still breathing.I guess that's good

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Hey! I just finished taking Harvoni too and I am having problems with my pancreas. I have never had problems before until I started taking Harvoni. I and up in the hospital for pancreatitis after one month of treatment! Now I am having more problems again with my pancreas. They think I may have a bile duct blocked by a stone. Blurred vision, constant pain in my back that comes around to my liver and my UT. I feel worse and I'm in constant pain everyday.

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I feel :-! Already having problems with my pancreas and did the first month I took it which landed me in the hospital! So now thru with treatment and once again MRI and MRCP test I have to do Friday because its messed up my pancreas. We all need to stay in touch with each other cause who knows what we are going to face down the road!

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I just finished taking Harvoni but during the first month I was put in the hospital because it was affecting my pancreas. Now my vision is worse, constant pain in my back and once again have to get a MRI of pancreas. While Harvoni has cured the Hep C it has also damanaged my pancreas. Think we all need to keep in touch with each other because of possible other side effects Harvoni has done! Hope this helps and thanks for sharing! Lisa Moore

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Jim who posted #436.... I read your post and it could be me writing that post - just about everything you said happened to me except one thing. I did take interferon twice and interferon with ribavirin twice but could not finish the ribavirin made my blood count drop to a serious level. The interferon treatment made me sick as hell, but I wanted to be cured. When i stopped the interferon the side effects immediately went away. So when Harvoni came out with the claim of virtually no side effects and a 98% cute rate, I stupidly jumped on it even tho my wife warned me to wait. So here we all are, much sicker than we were before we took the cure. I am 15 months post treatment and I still feel worse now than before treatment. Some people in another group I belong to have had some very minor improvements from holistic treatments, but nothing big or lasting. I can only wish that you be well.

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CATHYD: I am on a page that helps people get generics of Harvoni/Sovaldi, and they are mostly getting these generics from India. I would say 90% of the people on there who have been treated had either no side effects, or nothing significant. Very few complain of any side effects, and very few have had anything lasting.

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I am wondering if the reason some people make thru treatment unscathed and other have horrible long term effects is where Gilead gets the ingredients for Harvoni. The ingredients are made in China folks and can be bought very cheap. Since I doubt there are controls, I wonder which drug I took and where it was made.

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