Harvoni And Confusion, Depression, Acid Reflux Side Effects (Page 2) (Top voted first)

Curious, I've started my 5th week of treatment and am wondering if anyone has experienced similar side effects as me: Confusion, depression, crazy acid reflux, and mood swings...3 weeks left to go.

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Hi Joe. My experience with Harvoni was different than most. First of all, I was at stage 4 liver disease, and was dying, & had never had tx. I contracted HepC 48 yrs. ago. When Olysio/Solvaldi tx was approved, I went on it for 12 wks. Virus was gone for 3 mos., then returned. Within a week of the approval of Harvoni, I was put on it for 24 wks. Why? Because I failed the tx with Olysio/Sovaldi, and my liver was so far gone. I'll talk about the side effects shortly. The 24 wks. of tx, did the trick. I've been cleared of the virus for 2 1/2 yrs. A miracle for me, considering I'd already made peace with dying, and had begun putting my affairs in order. The side effects I experienced were: Headaches, about 4 of them. Confusion, I was already confused as I had hepatic encepholapathy (sp?), due the 4th stage range of issues. Chronic grumpiness, oh my God, I'm surprised my poor husband put up with my crappy behavior. I just wasn't able to control what came out of my mouth, when he asked "stupid questions." It was like, "are you freaking kidding?" I spent so much time saying, "I'm sorry, that was a mean thing to say," I can't believe it. I'm a really nice person, and just don't lose control of my temper like that, usually. Those were the sum total of my "side effects." My liver is slowly beginning to repair itself, no more hair loss, chronic "b****iness," is getting better, and the only time I get headaches is when I don't drink enough water. Low-sodium diet really sucks, fluid retention makes eating difficult if we go out. But, I'm alive and the sweetness of life is slowly returning. The strange thing is, after I'd made peace with dying, and had a plan in place to help my family with the details, I got depressed and angry. The only thing I can attribute it to, was I was looking forward to getting out of this body that had been sick for so long, and going home. My plan got changed. Lol! Wasn't much to do about that. Hope some of this helps, if not you, others. Peace.

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Hi Bill. Please think long and hard before deciding to stop Harvoni tx. I left a post on this thread earlier tonight about my experience with a 12 wk. Olysio/Sovaldi tx, that failed at 3 mos., and subsequent 24 wk. Harvoni tx, complete with my side effects, many due, not to Harvoni, but to my 4th stage liver failure. Confusion might be from advanced liver disease, and not Harvoni. You'll need to talk to a competent liver specialist. This is your life you're talking about. I had Hep C for about 48 yrs, tx 2 1/2 yrs ago, cleared of the virus, and liver is repairing itself. No cancer. Everyone is different. The best of luck to you, no matter what you decide. Peace

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Lana A,

Thanks for the push, I intend on hanging in there for the last 4-weeks. I'd have a hard-time forgiving myself if I quit after 8 weeks and the HCV returned. If I can't clear it this time, I'll take it to the grave with me. As for post treatment side-effects, I can only hope that it does no permanent damage. But if it does, I'd hope that the survivor's of the percentage that suffer them gather the required documentation in order to file a legal suit. This way at least our loved ones and survivor's can be compensated for the manufacturers lack of transparency regarding it's dangers. Currently they're only claiming 4 serious consequences; Previous HBV, taking specific medications during treatment and two others which I don't currently remember. Best Wishes for a hep-C free life...

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Re: Jeff (# 40)

Hi Jeff. I failed the Olysio/Sovaldi 12-wk tx. It came out just before Harvoni. They put me on Harvoni, right after FDA approval, but for 24 wks. I've been clear for coming up on 3 yrs. My liver was in 4th stage and my doc said that's probably why I failed the first tx. Don't give up hope. I'd suggest, try again, only for longer. Good luck.

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Re: John (# 20)

I took meds fasting at 7am along with my reflux meds. After 30 minutes I have coffee and about 20 minutes later I’m in the bathroom completely cleared out, lol. Lost about 8 lbs but now on my 8th week with 4 more to go. Some minor headaches and hair loss but feel good.

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Re: Jeff (# 40)

you may have the resistant strain,,,epclusa will probably be the next drug, I hope you did not have the severe side effects some of us have had

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Anyone taking Harvoni experienced high heart rate of 88 to 98? I am on day 2 with Harvoni and everything else so far other than being tired is okay. I'm just concerned with Heart palpitations and high heart rate. Have some anxiety also. Any suggestions on how to bring heart rate down? I have hyponatremia and on limited fluid intake also. Thank you!

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To your question about taking 'Adderal while taking *Harvoni *I would be thinking about your nerve system, especially having mood swings and problems sleeping ~Have your DR. Adjust.

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Everything is ok with my 'Post, hit wrong key which got Incorrect Text verification -Thanks for your concern *

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YES I Have and at 5 weeks. Got 6 weeks to go! Also breathing problems been in hospital twice! Almost admitted to ICU with trachea!! On oxygen and breathing meds.

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I'm(1)month and(8)days taking Harvoni Treatment, My side effects are waking up every morning @ 4:A.M. with a burning sensations in my stomach, I'll drink sum 've 8 juice then lie down to go back to sleep, but actually, I have to empty my bowls out before I start all over again at 12p.

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Side effects since being on,'Harvoni, (2)months out of 90 day treatment, has anyone experienced a burning sensations in their stomachs early in the morning hours, and had to drink something so you could go back to sleep?

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Shorty, I'm now going through 8WKS on Harvoni, my Side Effects has to do with highblood pressure, DR. put me on *Norvasc 5mgs once a-day to slow my heart rate, my last heart pressure was~'173/96- So I understand what your going through, I'm now Hepatitis free, have 5weeks to go, Was told even though I'm 'Hepatitis free, DR. Said that I have to finish the complete '90weeks to make sure I don't have a relapse. So far, my biggest problem is at night I wake-up around the same hour '5a.m. with slightly discomfort pain in my stomach, usually it goes away as the day goes on. I guess this is also a side effect taking *'Harvoni - just hang in there and finish your treatment, I'm sure you'll be satisfied with the results of this Medication ~ good luck with your treatment!

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Harvoni, It has been almost(2)months now, First month bloodwork showed that Hep-C virus was not detected, got (1)month to go,my sSide affects are burning in my stomach in the mornings until I relieve myself on the toilet!

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Harvoni Treatment, I'm now on my last 12week Harvoni Treatment, Having trouble with this last month of treatment with side effects of feeling burning sensations in my stomach, is this normal?

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Yes what you are going through is par for the course, I could keep no food down the last week, I truly think they are overdosing us on the 12 weeks,,when many were only given 8 weeks and are cured. I did not take my last few pills due to being so very ill. I spent most of the 12 weeks on treatment in bed, in severe pain w/ joints and muscles on fire, and nausea and vomiting, headaches from hell and I have still not fully recovered a year later.

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When so very many people with genotype 1a were cured on just 8 weeks, I feel like I was put through the last month for them to make money. Yes I was over-medicated with harvoni as I had no viral load at 4 weeks into treatment. It would be better to treat more people especially when I surely would have been cured with 8 versus 12 weeks and maybe my post symptoms would not be so horrible now a year later. I could not take my last 3 pills as I could not keep them down.

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I've stopped taking *Harvoni treatment on the 6th of May, Started Harvoni on 20TH of February, wasn't able to complete 12week treatment, though I was told after I ask DR.about my viral load, was told that it appears
That I was cured of the Hepatitis only
After 36 days but Dr. Said THAT I Should continue the rest of my 12week treatment but towards my final 2 weeks, I stopped because I felt
ILL IN CONTINUING TREATMENT FOR THE NEXT TWO WEEKS, BLOOD
WORK WILL BE DONE ON THE 19TH
of MAY 2017~I know that I'm cured of of the virus because I feel much better now, So about being over medicated after 8WKS of 12week treatment, I believe that this Medication should be monitored by
*Harvoni Physician so medication isn't wasted ~'Good Luck My *Harvoni Friends, Hopefully you'll be satisfied with Cirrhosis treatment, "I am!!!!

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You can still be a hep c carrier, better check that out!

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Hello John, can you offer an update on your treatment? I'm in week 7 and suffer from the same (burning in stomach) in the mornings. Unfortunately, I'm also experiencing explosive diarrea and abdominal-cramps. I have had several episodes where I took note of heart palpitations on several occasions since beginning treatment. I first noticed these symptoms within the first few-days, and still suffer from them, as well as extreme tiredness, muscle & overall weakness and lack of energy. On occasion I experience nausea without vomiting and most recently bad back pain in the morning as well. I take the pill at 7 PM, am 59 yrs-old. I also take HCTZ for HBP, and one-half MG of Suboxone daily. I always considered myself healthy and felt well on a daily basis before the treatment. I am currently on-the-fence regarding continued treatment and may quit any-day now due to these side-effects, but would prefer to complete the 12 weeks I've been approved for in order to clear this HCV one and for-all...

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