Fibromyalgia - New To It And Absolutely Lost And Feeling Alone (Page 2)
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I have just been told it's likely I have fibromyalgia ... I'm pretty terrified as in 6 months I have gone from being a fit and active woman to being in a wheelchair. I can no longer stand on my legs due to a combination of pain and exhaustion and general legs refuse to support me and I'm often puffed and my heat beats like I've done a mile run just from 5 mins exersion... my concern is going on drugs... I'm afraid that things will get worse if I start taking drugs.. I have little or no faith in the medical proffession as they keep saying oh we think it's fibromyalgia but we really arn't sure and... they are shocked at how quickly I am detoriating but offer me a reason why other than they are saying muslces detoriate from lack of use... but in a few months? I do push myself to keep moving... can anyone offer some solutions as to what options are available with minimum side affects.. i tend to react very strongly with drugs and fall pray to side affects if there are any. Feeling a bit lost and scared and I need some information before I trust what they are saying.

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Awww I'm sorry to hear that.... sounds like you are like me and don't react well to drugs... some of the natural stuff I've found that mildly helps is Maganisum Citrate pills and bathing in Epsom salts... Some days my skin is burning so much I feel like I'm on fire... the salts help then.

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Absolutely nothing... it's very upsetting, they have provided home help for 13 hours a week, given me a wheel chair to get around in public with, and made an appointment for a pain clinic but I've been waiting 6 months and still no sign of when? I have physio but he won't do much with me because he doesn't know what he's dealing with.... I mean I don't care what I have I just want to get back to a normal life.

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Have they tested you for other things? Like MA? Done an MRI of the brain, looked for lesions? Etc? Ruled out other neuro issues?

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they have had me on all 3 fibro drugs and my body wont tolerate any of them im in pain all the time i find myself falling a lot more now and my eyes are not good after the lyerca now my dr put me on amitriptyline hcl and it make me so tired and i cant think all you want to do is sleep then when you do get up it hurts more than before what can i take that wont add so much to the fibro fog

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I have Fibrmyalgia also and have never heard of anyone getting as bad as you in such a short time. Sounds like to me you have something else. A rheumatologist diagnosed me. I ache all time like someone coming down with the flu. There are sore spots which move from one area of my body to another at random though mostly in my shoulders, legs and butt. I stay so tired I can hardly get through the day at times. Also have "fibro fog" when it is hard to concentrate. There are two fibro medications that might help if you do have this. One is Lyrica and the other is Savella. I take the Savella along with a muscle relaxer and pain medication. If this is what you do have and can find a good, compassionate doctor, chances are good you can lead a fairly normal life. You must fight this every day and be determined to win. Good luck and may God bless.

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I'm currently waiting on a list to see the pain clinic at the hospital . Whether they do any good I am not sure.. but yes you clearly see my problem... Doctors that are incompetent at their jobs. Combined with me in so much discomfort that it is hard to demand my rights. In New Zealand the Hospitals are not a place you want to go when you are sick... many of us choose alternative therapy options rather than risk the declining of our conditions that can occur under the hospital care. There has been many life threatening errors made by our local Hospital. Thanks for the info I'll read up about MS and take that to the doctor... Sometimes I wonder what we pay them for when we have to do all the research into the illness ourselves.

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To be honest, from your symptoms, I was more suspicious of Multiple Sclerosis, which is why I asked about a neurologist.

It has been known to come on suddenly and cause symptoms just like you've described, but the treatments of course, are quite different.


https:/­/­rxchat.com/­wiki/­Multiple_sclerosis/­

Either way, I believe that getting in to see a neurologist will really probably be your best chance of getting any definitive answers and proper treatments.

Do you have a GP that can refer you?

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Thanks for listening and for the link, your question raises my greatest concerns.... No I have not been to a neurologist. All the hospital has done is run a huge quantity of blood test about 30 of which only my thyroid showed problems.... So they tell me... then they arranged for a physio who by his own admission isn't really sure what he can do but offers to be a listening ear for me... and of course I have home help and a wheel chair... Which are all nice and good but..... I would like at some point to return to a normal life... I realize fibromyalgia doesn't seem to have a cure but surely there must be ways to live normally, and preferably naturally?

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I can completely understand why you're scared and worried. I'd be totally freaked out and questioning everything, if I were in the same situation.

You can learn more about Fibromyalgia and the treatment options here:

https:/­/­rxchat.com/­wiki/­Fibromyalgia/­

But here's my question, have you seen a neurologist? And exactly what all tests have been run to pinpoint the cause of your problems?

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