Fentanyl Withdrawal Symptoms (Page 31)
(Newest replies first)

I'm trying to wean myself off the Fentanyl patch. I went from 75 micro-gms to 50 now I'm on 25. Having a problem and not sure it is related to the decrease in the med. It's been 20 days on the 25 micro-gm and I'm going crazy. I need to keep rocking, moving in any way b/c my body is very restless. Is this a symptom of withdrawal and what do I do? I cannot take it any more.

REPLY

REPORT

I must admit I have been a lurker for quite some time now. I just wanted to say I have quite enjoyed the candidness expressed by most of those on this site that have been here for awhile. It has really helped me to know that I am not alone when it comes to pain and the experiences involved that come with the long term use of narcotic pain medications. I can certainly commiserate with almost everyone here.

I really hate it when someone leaves a message intended to tear someone down instead of building them up. I honestly believe when someone does something like that is because they have never honestly dealt with chronic long term pain. If they do have chronic debilitating pain they would not make those types of judge mental statements.

I wanted to say thank you all for sharing all of your stories.

REPLY

Was this helpful? 3

Crissy,
What kind of cancer surgery did you have?

Are you going for radiation.

I have been off the patch also. I went back because it works for me. Little by little I get rid of the meds the doctors have me on.

In 5 years I have stopped taking 11 other meds. Imagine!
I now only take 4 plus vitamins and high end nutrients.

Be well.

REPLY

Was this helpful? 1

Sorry.
I am going through some withdrawal from the patch.

Makes me irritable.

REPLY

Was this helpful? 0

Chrissy,
I studied Transendental Meditation with a Master for ten years. I rose through the politics. Taught classes myself. I meditate every day.

I have been a vegan for decades. I believe in consuming less calories than you need to extend life and limit disease.

I was a marathon runner, then walker. Now I swim. I have never put a cigarette to my lips. I drink rarely.
I do not live near pollution.

I took a " How Long Will you Live Test"?

It said I will live to 100.

I have an IQ of 162.
I hold yours in doubt.

I think and care for others.
YOU HAVE NOT ASCENDED!

BEGONE, SATAN.
I AM ANGEL

REPLY

Was this helpful? 1

How did everyone fair holloween? How are the ones that went through the storm? I hope and pray things will get better for you and that this storm did not cause much damage. Chrissy, I'm sorry for being such a butt a few minutes ago. But to wake up to someone slamming us that are in pain just gripped my soul. Esp. since I had been up most of the night withering in pain and not being able to get in a comfortable position so that I might get a couple hours sleep. Then I looked out and saw what a mess my yard is in after my grandkids got through with it. I won't have to buy toliet tissue for a year.....lol They are so much fun......love all ya'll and have a nice day.......

REPLY

Was this helpful? 0

Chrissy, you must have never been in any kind of pain. Have you had cancer? Have you had your disc in you back proferated? Have you any kind of diseases that can cause pain? Until you have and can relate than you need to find a site that you can relate to. This one is for the ones that have pain, pain from withdrawals and pain from diseases. If you have no sympathy, then you need to sincerily stay the f*#%@ off of our site. Find one that don't have a bunch of "winey babies" as you call us. Sorry friends for someone that is so hardhearted and cold and must have never been where we have been. I hate someone who judges, I think that is left up to God and God only........sincerily nuttynanny....(excuse me if I spelled something wrong, I've been up most of the night with an acheing back and hip)

REPLY

Was this helpful? 2

JYou guys are all certainly messed up.Sounds like a bunch of whiny babies who cannt take control of their own bodies.If you want off this stuff take control of your minds first. Meditate. Then execise......walk .Meditate....walk. That stuff in your bodies is juste creating another problem besides the painpain.

REPLY

Was this helpful? 0

Angel, i have decided that this is not a good ideal, don't do this. I don't want to lose anyone or this site. It helps to talk about what is going on in my life. My pain has been my pain for years so it's not going anywhere. Maybe one day there will be something that will help us all that won't hurt us when we have to come off it, or can't afford it. I have made up my mind that no matter what kind of pain I'm in, I will do something nice for someone every day. Try with a smile on my face too. Hope everyone had a happy and safe Holloween. Hugs and kisses to all.

REPLY

Was this helpful? 0

To Everyone,
Nanna and I talked on the phone. We both agreed my plan was impulsive and too dangerous. Right, Nanna?
I love you all so much but breaking the law, I will not do and Nanna will cope because she doesn't want to kill her Angel. Forget I said it. I was stupid.

It's so good to hear from you! Here we can be free to talk at what is truly happening with our bodies. People UNDERSTAND THE EFFECTS OF LONG TERM CHRONIC SEVERE PAIN. All we are trying to do is live as normal as possible.

I went back to my 75mcq/hr patch because my husband asked me why I was messing with something that worked.

I was momentarily speachless because he had a great point. It was the Pristiq that made me sluggish. And that was horrid to withdraw from, believe you me. It took over a month but I got the stuff out of my system. Sometimes it's not the Fentanyl.

Shannon, where are you??

Higs,
Your Angel

REPLY

Was this helpful? 0

Hey Babes, I'm still here. I'm sorry to see some of you are in serious pain still, I think about you guys alot. I only deal with pain resulting from two lower discs, lowest one is gone and the next one up is 60% gone, at least that is what the surgeons say, and the MRI does look bad. This is hell no doubt about it, and it is good to talk about it. I know it feels like there is a lot of complaining, but we all understand each other and talking about the pain can be a help, because many friends and family around us DON'T understand. Please be careful with the mailing I don't recommend this, it could result in this site getting shut down and other getting hurt. One more thing, the person who mentioned banning these patches, NOT A GOOD IDEA. Fentanyl gave me my life back, there is a very high potential for abuse, but that needs to be dealt with at a personal level. Withdrawal is very hard and painful to deal with, I know, but I still would not give it up. Without Fentanyl my life would be a disaster, and yes Fentanyl was my last option I tried tons of things before I went to these patches. I still deal with pain, but I can get through it now, before I couldn't even stand up. To everyone, keep working through your pain the best way you can, I still believe things happen for a reason, although this is a horrid thing to happen to us. We will survive this.

REPLY

Was this helpful? 0

Angel, this been done aad worked quite a few times. I have never but friends have and just address it to nutty. I get mail in that name all the time......But if you don't want to, then by all means don't....

REPLY

Was this helpful? 0

Lilred4,
Have not heard from you since storm started!!!

ASAP send us news you are okay.

Have been praying for God's mercy for my friends.

R u okay?

REPLY

Was this helpful? 0

Dear Chelle ,
Thanks for making me see the danger. I get so caught up in helping people in dire need that I barge ahead.

I still wonder if I had mailed that package by Fed Ex this morning and she got it tomorrow, if that would not be was a compassionate good person should have done. I will never know now. It weighs heavy on me and always will.
I guess we are all here to support each other. If anyone ever wants to call and talk my number is:
Four, one, four, seven, one, nine, seven, zero, eight five. My email is lshields (the at sign) w, small I , dot two r's dot c, o and m. In the SUBJECT space put your name from this blog.

Could we all exchange these facts? Then if someone gets lost, they shut down the blog or it's am emergency, we all have each other and could form a Google Group or something.

Sometimes I have a private message for a person and I don't want to blab it here.

I'm not trying to form a secret society; just a backup in case.

Shannon I owe you calls. I've got lots to tell. Is today a good day to call??

Gil where did you go?
Momma?
Cervical?
K bob ?
Dundee Lady?
Wheeler
Jim

Everyone stay on board. The more we hold tight the stronger we are together.

What would you all think if we had a conference call? I would set it up, check dates and times with you all. What you do is call in with a special code that allows you on the call. You can put your your phone on speaker if you want. I would cover the cost. Let me know your thoughts.

I have thought about starting a foundation for people JUST on the fentanyl patch. Would you be the charter members and help me recruit more?

Your Angel

REPLY

Was this helpful? 0

Oh thank God Angel. I have been worried sick. I don't want anything to happen to you.

Nanny I'm so sorry that you are in so much pain. I advise you to either go to the ER or get a new Doc.

What Angel was gonna do is just far to dangerous for both of you.

Hope everyone is ok after the storm. I know this cold wet weather is getting to all of us.

Love to all. Stay warm and dry.

Hugs,
'chelle

REPLY

Was this helpful? 0

I went from 50 fentenol to 75 and while taking this I had to go in for cancer surgery.I didnt have the patch for two days and then the withdrawal started. It was horrible.I decided right there that I was going to get off it.I stopped it cold turkey.Had many nights of pacing the floor but I am now clean amd will never put one on again.

REPLY

Was this helpful? 0

Dear NN,
Chelle is right. This is too dangerous!

Besides,NN, WHO would I address it to? I don't even know your last name??????

REPLY

Was this helpful? 0

chelle, I know that once is not going to hurt me as much as you think. I am at my wits end and hurting so bad that my side is in a catch from the strain that the pain has me in. The 25mcg I have doubled up on and this helped me so much but the 7th seems so far away that I have been out on the street looking which would be even worse on me if I resort to doing that.I don't want to lose my Angel so this would help till the 7th when the doc finally gets off his throne and does something to help me. Otherwise I will have to find another doc. Don't he know he can be replaced so easly?? My insurance, since I have cancer, is so good that I can go to a doctor a day and it would pay. I have the extra help. @Rev. David Syms, I am with you on that note. I told the doc I did not want back on these but this is the only thing that they would give and then lied and said they would write me oxycodone for the breakthrough. Now I have to have a epidural on the 6th with nothing to take. I don't think I can do this, I'm in so much pain now. I feel your pain so much and hope you get some kind of relief soon. It took me 7 months of terror but had some help with Suboxone, which helped me so much, but not with the pain. My pain doctor told me that when we are on pain meds for a long time that our nerve endings are numbed and when we stop the pain meds the nerve endings start coming back alive which causes more pain than we had before we started the pain meds. Does this make any sense?? It did to me cause I felt this firsthand. Taking long hot baths helped me and helped the endings to relax enough so I got some relief for a little while. I pray that you don't have to go through alot of pain with this. God be with you and hope you get better soon.

REPLY

Was this helpful? 0

Angel, I am so greatful for your help, for I know no other way. Now I will try this. Well, 203 is the beginning of a day that the Marshall will see the street of the life I'm in. Att and the alla is the greatest. Ala. is not a bad day to start with but the 35 and 95 is a 4 on my scale of pain. Can this be done discreetly enough?? My love would be with you forever for the day. Hugs and Kisses to all and this old lady will be better before you know it.

REPLY

Was this helpful? 1

I have been off Fentanyl 50 patches for three weeks now and am on df118 4 times a day and one prozamel 20 at night.I feel that I have been going through withdrawels for months and sadly the df118's do not deal with the pain.There is a good side to the hell one goes through trying to get off Fentanyl and that is despite the fact that three weeks feel like a lifetime you don't remember much about it.My doctor tells me that there is nothing wrong with me now but I still feel pretty bad but not as bad as I did and I really believe that I will come through this but the only way is to come off the patches on day one and take whatever your doctor decides is best for you.it is very hard to do and I am far from there yet but I can sleep and feel better slowly.More importantly I know I can beat this and so can we all and I would like to see the use of Fentynal banned for the treatment of pain it is a dirty drug which creates more problems than it solves.Had I been left on the Oxynorm 10's that my consultant prescribed I would be fine but other less qualified doctors thought otherwise and I am where I am.
Good luck to you all and may you God Bless you.
Dave

REPLY

Was this helpful? 0

Angel that is so not a good idea. I know you want to help, but it won't help her in the long run. She will be right back in the same situtation as soon as those run out. She needs a long term solution. She needs a new doctor, maybe go to the ER. Not jepordize you.

i'm very sorry nanny that you are in pain. We have all been. But please don't let Angel risk herself like this. There has to be another way.

Love you both and hate to see either of you have to leave group.

Hugs,
'chelle

REPLY

Was this helpful? 0

i have post surgical lower back pain. was in 50 mcg patch and had side effects and so decided to wean off. i finished wi...

311 REPLIES

I have been on the 100 mg patch and Percocet for my Crohns and Colitis for years. Last week I went cold turkey on my own...

36 REPLIES

Aloha from Hawaii- this is my 6th week off fentanyl patch 100mg and breakthrough oxy 40mg day for several years. Also wa...

27 REPLIES

My husband, age 77, developed severe acute pancreatitis and has been in the hospital for the past 8 months. He has been ...

18 REPLIES

Hi, About three years ago during treatment for rectal cancer, I was given Dilaudid and Fentanyl as part of a pain manage...

5 REPLIES

I was on 25mcg Fentanyl patches for about 2 months. I went down to 12mcgs to wean myself. After the 12s ran out, I was e...

9 REPLIES

Hi all. I have seen a lot of posts in the drugs forum about Fentanyl withdrawal. I too have been struggling with the wit...

17 REPLIES

i have post sirgical lower back pain. was in 50 mcg pat. ch and had side effects ans so decided to wean off. i finished ...

16 REPLIES

My question is that I have titrated down from 75mcg to 50 and had some times that were NOT fun, I must say, but I figure...

13 REPLIES

I have been on Fentanyl 100mcg/hr, In vivo delivery of 100mcg/hr for 72 hours and I change them every 2 days instead of ...

9 REPLIES