Extreme Joint Pain Throughout (Page 2) (Top voted first)

I have severe joint pain throughout my body. It has been extremely severe these past few months. Unable to drive on bad days. Barely able to walk. Milder attacks allow me to drive and walk w/ a cane due to herniated and broken lower disks. My PM doc has put me on 200mg Nucynta ER 2x daily and 100 mg Nucynta for break through pain. Most recently they put me on 30mg Morphine ER which did not seem any better than Nucynta. Does anyone have any idea why every joint in my body would become so painful as to immobilize me? On bad attacks the Nucynta 200mg ER, 100mg for break through pain and 150mg Lyrica barely make a dent in the pain. Besides weight gain, I now have diabetes as I have been taking Nucynta, Lyrica for over 6 years but the 200mg ER was recently added and I was removed from the Nucynta 4x or as needed- some days I would need just one Nucynta 100mg/other days 2 or 3...rarely did I ever take 4 in a day. The Lyrica 150mg helped at times but now with these extreme joint flare ups it seems no drug can stop the pain. I hate Oxy's as besides the terrible constipation they made me feel really 'drugged'. Nucynta does NOT affect me like that nor do I feel any 'drug high'-same with the Lyrica 150mg...sober as a judge. These past 6 months the pain has been so severe I have considered bringing this to a final conclusion. If anyone has experienced extreme joint pain throughout your entire body for days on end and with no relief from med's I would be grateful for any suggestions you may offer. I am going to see a highly rated rhuematalogist (sp) but he is booked up until late July. Thank you for anything you may think I should know.

REPLY

REPORT

Mary- sounds like a double edged sword...is the pain it relieves worth the process of trying to keep the pain away/dumbed down. The drugs I take now do the same thing-not so much eat more but prevent weight loss/cause water retention, etc. I have to go see a dietician and hopefully the extra special rheumatologist that is booked out to 7/27. If he fails then I think it may be my time to leave. I am a Vietnam Vet, older, lived a full life and if I cannot even pick up a fork until about 45 minutes after the med's kick and take me from a 10 down to 6/7 so I have limited mobility...a day filled w/limited mobility. My LTC policy I bought through MetLife years ago-like 20 years ago has declined my claim as they feel I can do most of Activities of Daily Living even though there are days I can barely get out of bed; my hands are semi-closed and NOT free up until I take my med's which take 30-45 minutes to kick in. When a flare up begins-even w/the med's, every joint in my body flares up...it is so debilitating that every move is extremely painful. TYVM for your response!

REPLY

Was this helpful? 0

I am very sorry to read of your pain...and I truly empathizes w/ your myalgia. My former pain doc gave me amphetamine salts (adderall) and they were so helpful in getting me going in the AM; but then I moved and though I stayed within the same medical group- the pain doc up here refused to give me adderall-that was a tough slog waking in the morning (can not drink coffee) and no adderall to wake me up quick, give me focus. I must confess that one less pill to take was good. But then I got blindsided w/this wicked myalgia that lights up every joint in my body-pain so severe I am unable to get up at times; when I try to rise, the pain in my lower back and hip joints puts me right back down. I have lived through all sorts of various types of pain before (former Marine-Vietnam Vet) and I can say that this interior joint inflammation is off the charts and my empathies to those who wake each AM and find it an arduous chore to just get out of bed ( and when you go to sleep-if you say/think that you would not be ungrateful if you did not wake up as you are so tired, worn out from this chronic pain...I empathize w/you...as rarely a night goes by when that thought does drift through).I am scheduled to see some renown rheumatologist but he booked up till 7/27-so hurry up and wait at times. My best wishes to you- you are very fortunate to have a doc willing to give you an Rx for adderal as it truly does wake you up, gets you to focus and you get stuff done!

REPLY

Was this helpful? 0

TYVM for sharing Don. That is NOT an avenue anyone has tested me for and I will make sure I am. It would be nice to know if I did a monthly blood donation that it would help reduce the pain in the myalgia...when I say pain...in reference toward others who suffer this through this level of pain...something is really off in my system/blood to cause such joint pain...that's when the meds have little to no effect you sort of just want it to stop...period.

REPLY

Was this helpful? 0

Have you been diagnosed with fibromyalga,
I have been diagnosed with it for years. I was just like you. The only thing that helped me was the oxycontin. The oxyneo, just about killed me. Even the fentanal patch almost killed me to. I had to phone the company who made that product, because I was having no pain but day 2 and day 3.I couldn't lift my head up. I asked had any person experienced this in their studies, because my doctor wouldn't remove it, he sayed I was just wanting more. I am so never wanted more I really wanted him to find out what was causing my pain. After talking to the company they did have exactly what I was going through. .children who had cancer pain but like all patches you need fat cells to store it and released for 36 hours. So my self and I had lost so much weight 75lbs. I was floating on cloud 9 because I was getting the whole dose on day 1.and was withdrawals. CRASH. I was so happy to prove something was wrong. They faxed him the study. Next day I had an appointment with the pain specialist.
Never give up. I have celiac and can't digest that's why I couldn't take the oxyneo. I am on Statex 2nd every 4 hours and 20 MG oxycodone 6 a day as needed. This is a liquid so no need to digest same as the 20 MG oxycodone instant relief. It also melts in your mouth with water, my pain is doing better again. I could write you a book about what's happened to me since I stopped taking oxycontin, which I was on for over 10 years. And no break through pills. I honestly could write a book. But since my last surgery for spinal stenosis, at C4 C5 plus it caused spinal cord injury. Had lost all my hands arms and couldn't walk had to use walker at home and cane to help me get in and out with my husband help.
3 months being home I fell and fractured my right hip and the exray showed a compression fracture. I have to stop texting my arms and hands are so painful.

REPLY

Was this helpful? 0

Try vitamin D3, CBD (drops under tongue), & turmeric. Discs don't break, they bulge, herniate & rupture. Why not have the bad disc removed? If you are overweight, that's a huge contributor to back pain. Good luck.

REPLY

Was this helpful? 0

Sorry to read of the tough turns you have had. Barrett's is nothing you want to toy with; hopefully you have the minor stage which is often treated w/ OTC, Nexium, Dexilant, etc., I stopped taking any med's for the Barrett's unless the attack is so severe-that even cold water will not appease the attack...then I always have tums, or a nexium on me. My gastro doc wants me to have a endoscope each year. I have not had a cup of coffee since the discovery of the Barrett's back in 2007 or so. The myalgia is brutal...w/ all these dopers OD'ing; getting caught selling, abusing and partying w/ med's we use to dumb pain down and try and exist from day to day-their illegal actions bring the magnifying glass down on us and our doctors. Decent doctors are leery of writing pain med scripts because the state can audit them or potentially catch one of their patients selling the stuff on the street. I do not hesitate whenever they want a U/A and I only use one place to fill my scripts; and I do not see multiple doc's trying to get scripts from each - once the state inspectors or a pharmacy reports you for filling multiple scripts - you wind up on that list of offenders for years! My med's do not work that well I am trying to do what someone wrote to me "stop taking Lyrica" and see if my pain calms down- thus far, not so good. Best wishes to you and I would sincerely recommend you get off the oxy's- they are bad news, IMHO.

REPLY

Was this helpful? 0

Suzi, I was NOT over weight until I began taking these lousy med's! Both contribute to weight gain. When each leg feels like it is in a cement shoe- it is not very motivational. How do I lose weight when the drugs are causing the weight gain? Stop eating? Eat teeny tiny portions a few times a day? Can't eat fruit as my A1C is breaking into new territory. I do not eat candy. No sugar in tea, no honey. NOTHING w/added sugar. In the mean time I am dealing w/pain that is crippling. Sure wish I could walk again, run again...have my weight under control and stop having a need for blood sugar med's....but until you have suffered w/this level of joint/myalgia pain- you have no clue as to what it is like. Thx for the update on disks not breaking and only herniating, being crushed; and I'll rush right out and have some cutter just remove the 2 herniated and crushed disks and stick in some nifty plastic or metal ones- everyone who has had L-4 or deeper/lower removed has had MORE pain in 2-3 years and warned me off the surgery until I can no longer get out of bed....silly snit.

REPLY

Was this helpful? 0

are you taking med's that cause weight gain and water retention? If so, how are you getting the weight off? If it is walking for any length of time- I am restricted as to walking and no running, Please share; if it is the rice diet- I can not have rice or any carb's. TYVM!

REPLY

Was this helpful? 0

Having trouble swallowing is NOT a good sign and you should schedule an endoscopy ASAP. Not sure why the massive weight loss-have you had your thyroid checked? Best wishes and get that endoscopy done ASAP

REPLY

Was this helpful? 0

Apologies as I forgot to address your question on Nucynta. They had me on the oxy's early. They are short acting. Nucynta ER lasts for 12 hours and you take it twice a day. The Lyrica helps but one of the critical side effects of these drugs is water retention and weight gain!

REPLY

Was this helpful? 0

Hi Dave,
I appreciate your care and advice. I have had tests fo ar my swallowing problems, also, an endocopy which showed a hiatical hernia , He said there was nothing he could do for my swallowing problems. I have had so many tests with so little treatment. You hang in there, you are a great guy.
Sam

REPLY

Was this helpful? 0

Hi Dave

Your whole body and joint pains sounds to me like rheumatoid arthritis. I used to suffer with same to a point of immobility. I was on meds from hospital which was now affecting my kidneys. I then consulted an Iridologist and herbologist who assisted me a lot. I had to change my diet as follows:

No read meat, fizzy drinks, acidic foods, caffeien. If I eat meat [white] and veggies then no rice and the other way round. Only fish and chicken was allowed, rooibos tea. Then herbs were prescribed for me:

Stinging Nettle
Shephards purse
Indian Corn beard
Horsetail
Yarrow tea
Comfrey
Celery seeds

These helped me a whole lot, I am now able to drive and do every other thing.

Thanks
Khuna

REPLY

Was this helpful? 0

Re: Mary Helen (# 3)

I am trying to get to Nucynta through insurance and have been on opioids for 3 years now. Sick and tired of the whole way it makes me feel " not whole",,not even wanting to be athletic anymore for fear of breakthrough. My wrist is permanently fractured due to a cyst the dr. missed by not reading or looking at the MRI. I have Degen Disc Disease in C456 and now all of a sudden it has changed into not being able to raise my arms and lots of pain in my head , neck , numbness in my fingers and all over shoulders , low back pain .Debilitating pain again after years of being sort of okay. Wondering if Nucynta is enogh and have heard wonderful things??

REPLY

Was this helpful? 0

Thank You, Bill --for the info...as every one I have talked to spoke negatively of the spinal fusion as a couple years later their back pain had grown worse (?). The worst problem I am suffering through right now is chronic severe joint flare -ups. The VA has been no help and attempting to go there and accomplish anything positively productive is a waste of a day.Private care has at least helped to the point of getting me off the oxy's and onto a similar drug w/out the dopey feelings. The joint flare ups are near totally incapacitating. I am going to a very 'experienced and skilled' rheumatologist -problem is he is booked out to 9/27. Appreciate the comments!

REPLY

Was this helpful? 0

Have you tried Motrin. Its nonnarcotic and worked wonders for me. Cant take it now because of a liver condition.

REPLY

Was this helpful? 0

yes, CK-going through that now...haven't had sandwich in over a month...so tired of soup and salads....ugh...any decent diet ideas? Much appreciated. Can only eat so much tuna (mercury); can't eat anything out of the Gulf of Mexico as they dispersed all that oil that was on the surface from the WORST oil spill ever on the planet w/ a chemical that got the oil down to tiny beads the size of pin head....so steer clear of any fish, shellfish, oysters-lobster-shrimp, etc, as they are infiltrated w/those tiny beads; many of which drifted to the bottom and flounder is a fish that eats of the bottom as do shrimp and lobster-what a shame....
ats off the bot

REPLY

Was this helpful? 0

What kind of tests have been done? Have you had an MRI, or consulted any specialists? There has to be some reason for you to be in so much pain, according to NIH reports, it could be due to some types of arthritis, MS, or various other conditions. Thus, it is really hard to say, but given its severity, you may be better served by consulting a neurologist.

The FDA warns that opiates carry the risk of being habit forming and may cause side effects, such as nausea, dizziness, headache, dry mouth, and constipation.

I know you said it's been severe the past few months, but how long, overall, have you been experiencing this? Is there any family history of MS, or arthritic conditions?

REPLY

Was this helpful? 0

The neck stiffness started while on Xarelto. After switching to Eliquis is the pain spread throughout my body. Into my b...

34 REPLIES

I was having extreme fatigue, joint pain, muscle weakness after starting Eliquis and started to having black stool with ...

109 REPLIES

while getting 6 years on hydroc/ 7 month arthi-d I am know experiencing allergic reactions to all forms of herbals, loti...

1 REPLY

Any suggestions for something stronger than vicodin? It really doesn't work anymore. I take two 7.5mg doses every 4 ...

3 REPLIES

After only two weeks of taking oxybutynin 10 mg once a day, I am suffering from severe knee pain. Has this happened to a...

3 REPLIES

Hello great tool and great forum! My name is Toby, I am 36 year old male whom was prescribed Xarelto due to Thrombosys S...

2 REPLIES

In Canada I was taking an extra strength robaxacet for extreme lower back pain due to an old work injury. I am currently...

4 REPLIES

I started nuvigil 1/4 of 150mg tablet or 37mg in the morning. The first two weeks were great , it was like my mind was a...

3 REPLIES

How well does this work for extreme back pain and bulging discs? ## Magnesium Salicylate is an analgesic and nonsteroida...

1 REPLY

I HAVE taken hydrocodone 10 mg before, but was given oxycocone 10mg. because of a bad fall i took after hip replacement....

5 REPLIES