Extreme Joint And Muscle Pain, Neck Stiffness, Tightness Of Chest While On Eliquis (Page 2)

The neck stiffness started while on Xarelto. After switching to Eliquis is the pain spread throughout my body. Into my back, my hips, my legs, the back of my knees, just throughout my whole body. I cannot sleep at night nor can I hardly move during the day. I am desperately looking for an alternative to any of these blood thinners. it seems like no one can really give me the correct combinations off supplements. I am open for any suggestions. thank you so very much!

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Re: Anne (# 17)

I have been unable to sleep and have had terrible muscle pain since starting Eliquis. I have been miserable for two years now. Tried antidepressants for insomnia-they caused muscle spasms in my back. May have to take them again. So tired.

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Why are you on the thinners? You can take Tylenol and cream pain healers like Icy Hot

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Joan Yes, hair loss, neck and upper back pain on left.

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Yesterday was a bad day for me being off Xarelto for a week now, taking aspirin instead. I’m experiencing breathlessness since coming off Xarelto. I rang my doctor and the message I got from him was that these breathing difficulties will subside. Yesterday my emotional feelings were out of the roof. I was ready to go back to Xarelto. The mistake the dr made was to tell me to go off Xarelto since my CT scans were clear of clots on my lungs, cold turkey. I said. “No”, you can’t do that, so he said to take aspirin as well as the Xarelto for three days. Well, I did that and the side effects have been torturous, dizziness, feeling cold, anxiety and this breathing difficulty, and this damn throat clearing. I’m seeing my GP next Friday. I’m taking aspirin with my evening meal (100mg) and again found that taking aspirin with Avapro BP tablet is a no no. How true is that? I just got up to answer the phone and I felt awful. How long do these side effects last? I said to my husband I’m going to stay in bed until they disappear.

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Re: Lexie (# 12)

I had a blood clot in Dec 2017 in lower right leg. Put on Eliquis. Started experiencing side effects within weeks. Very dry mouth and felt the back of my throat closing in. After several months started feeling soreness in all muscles and joints. My lower right leg would swell every day. I stopped taking Eliquis four months later. Most of the side effects have gone with the exception of sore muscles in forearms and upper arms. Have extreme tiredness. Is anyone experiencing this even after stopping the drug Eliquis?

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Re: Linda lu (# 7)

Are you still taking Eliquis? I was put on it for Afib nearly two years ago. I also got a Pacemaker. I have been sick, though, since taking Eliquis. I have insomnia, muscle pain in my thighs, stiffness where I feel I cannot move easily. I also cannot reach in cabinet for a glass. Muscles are just tight. I am terribly fatigued. I was told to see a psychiatrist for insomnia. I cannot tolerate the side effects of their medications. I am currently seeing a naturopath. I do wonder if I will ever feel decent again. Thanks for any suggestions.

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I had no side effects with warfarin, but I can't take it anymore. I have a problem with blood clots after surgery, so I need a blood thinner like eliquis because it has a better clotting factor, or I would be back on Warfarin.

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Re: Lexie (# 14)

Hair loss, weight gain. Have more pain all over. Who knows what causes it. Get no answer from doctors. Skin burns and sometimes itches which is almost bad as pain. I don’t think anybody knows for sure. We just keep taking these drugs!! Are they helping or hurting us?

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There is no easy answer here. I am a Pharmacist with 50+ years of experience. This muscle tightness in the neck and shoulders has been with me for the entire time I have been on blood thinners.....since mid-2016. I have AFIB, and blood thinners are a must. So I have been on Xarelto, then warfarin, and then Eliquis, and then back on Xarelto, which I am currently on. Eliquis was the worst one for me, since I could barely walk from leg weakness, etc. And previous to all these blood thinners, I went on treadmill 3-4 times a week for 50+ minutes with no problems. After the blood thinners, all three of them mentioned above, my treadmill sessions are now very limited. It appears that for some folks the muscle attack problem is really a problem.....period. It is not in YOUR HEAD, folks. It is my opinion that you CANNOT BLOCK THE PRODUCTION OF FIBRIN, which is what both Xarelto and Eliquis do to thin the blood, WITHOUT PAYING A PRICE.....side effects. Worse for some folks than others. Some seem to do OK. The drug companies involved, in my opinion, seem to be very evasive on this muscle problem. They list so many side effects that it is difficult to find the more important ones.....like this muscle problem. I do not have the answer. I would encourage all of you to file MDR adverse reaction reports to FDA on the internet. Trust me, doctors as a whole DO NOT report these issues......period. So for every report the drug companies receive, you must multiply that by 30 to 50 times. This is a world wide problem.....doctors tend to deny side effects and do not report them when they hear from patients.....THIS IS REALITY. Their stock answer is typically "IT IS IN YOUR HEAD"!!! Do not buy this explanation. I have no more wisdom on this, and am looking at a NATURAL APPROACH to thinning my blood. But be careful here. Doctors will have none of this approach, and there are good reasons for this hesitation. They want to be sure you have thin blood, but you pay a price. THIS IS REALITY, folks. These newer blood thinners like Eliquis and Xarelto are not MAGICAL by any means. I will let you know when I have more information, but this is a very DIFFICULT situation. You cannot go off these on your own.....dangerous.

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I had similar problems with both Eliquis and Xarelto so badly that I couldn't take it any more. The EP(cardiologist) suggested that I try Edoxaban which he found was better tolerated so in January I switched and so far most of the side effects of the xarelto and eliquis have gone, and no new ones have appeared. Maybe worth a try for you.

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Re: Lexie (# 14)

Hair loss & weight gain also

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Re: Rena (# 15)

Look into “ Mastic Gum” also
Works miracles for Belly.

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Re: MAD MATT (# 29)

What about the natural remedies like Tumeric...Ginger & many others???...Aspirin also...

I am having lots of pain issues on Eliquis...Had same when on Crestor.

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I'm 36F and got diagnosed with AFib six months ago. They put me on Xarelto first: so severely lightheaded I couldn't stay upright, severe diarrhea, and body wide muscle and joint pain so bad it hurt to walk and breathe. I switched to Eliquis since I'd been on warfarin before and couldn't tolerate any vitamin k or stay in the inr take for a year (due to blood clots from birth control). Eliquis joint pain was less, but I wake up every morning with calf pain. I developed arthritis in my right shoulder without injury. I have constant heart burn, lightly dizzy, and the muscle and joint pain gets worse every single day. Now I have tendinitis in my wrists and left shoulder, pain in my thighs and low back, and severe pain in my neck, jaw, and ears. I've been to see many doctors to rule out other causes. They're super protective of the drugs. I'm pursuing the Atriclip to get off of blood thinners for life (I can't do the Watchman device because I have a nickel allergy). I'm praying I qualify. These drugs are arguably worse than the original problem. If I didn't worry about strike, I wouldn't take them.

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