Epclusa Side Effects (Page 3)

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Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

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41

If anyone has any connection with Kathleen as she is old aquai tance and IV lost her adress also concerned for her health

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42

I have different adress now ,lost all my data and contacts ,but very interested ,thanksa

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43

Re: Friendz4 (# 12) Expand Referenced Message

Hope you have i.proved I can't say I have still got epclusa damage puffy feet nausea ectand much more I won't bore you ,just hope you are ok.

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44

I dealt with hepatitis virus for decades finally got to the point to where my justice system was not working right I was swollen my liver was sore and they came out with eclipsa I was put on it 4 months after the FDA approval side effects the first year were horrendous but it was well worth it I dealt with side effects for almost 3 years now I feel like I'm 17 or 18 again I'm 57 years old it's very important to stop drinking alcohol to eat right and exercise you have a second chance at life and it's well worth it the main thing is you have to eat healthy care about what you put in your body and you will feel wonderful again eventually I still have ear ringing but that's manageable right now I'll feel the best I've ever felt once again the main thing is stop drinking or doing drugs eat healthy exercise and take a nap everyday you might not be able to do the things you did when you were a kid but you will feel like a kid again eventually I'm 3 years since I was cured of hepatitis and liver disease hang in there and care about what you put in your body from now on

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45

Re: Lou (# 3) Expand Referenced Message

I'm 57 years old suffered with liver disease and hepatitis c for years I was put on eclipse 4 months after it was approved by the FDA I had horrendous side effects to first year couldn't even get off the couch it was a real chore just to go to the bathroom I'm 3 years since I took the drug and I feel wonderful I quit drinking alcohol I don't do drugs of any kind and I'll watch what I eat and I take a nap everyday I'm 57 years old and I feel like I am 18 yes I had side effects for 3 years horrendous side effects the first year but the key is not to drink alcohol to eat healthy and to take a nap everyday it is worth it cuz I feel wonderful living proof completely cured of liver disease and hepatitis c completely cured my viral load was over a million parts per and today I am healthy as a horse other than the ear ringing

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46

Re: Sam (# 6) Expand Referenced Message

I was put on a closer 4 months after the approval of the FDA in 2017 first year was horrendous side effects the key is to drink lots of water every day I'm 3 years since treatment and I feel like I'm 17 again I have ringing in my ears I'm completely cured when I started treatment my viral load was over a million parts per the key is stop drinking alcohol don't do drugs eat healthy get a nap once a day and I promise you it will be worth it you have a second chance of life drink lots of water get plenty of rest

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47

Hi Kathleen ,how are you? Hope you are ok ,if any of your friends or family read this,I would really like to hear what is going on with your health and are you ok ,your Aussie mate please reply.

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48

Re: Friendz4 (# 8) Expand Referenced Message

Hi I read your Poste again this morning ,I would really like to do what you said regarding people with Poste Epclusa problems but as I can't put my address in I can't find out how to contact you or them but I would be interested in finding out more.thanks Friedz4(#8)

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49

Re: Sunshyne (# 17) Expand Referenced Message

Wow! I’m so sorry to hear this and I’ve been reading all these posts because I was approved to start treatment soon although Ive had Hep C since I was in my 20s I’m now 47 and I have not had any issues but was told I can cure it with this medication. But now I am really not sure about doing the treatment with the generic brand of Epclusa

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50

Hi, I am trying to find out what happened to Kathleen. If anyone has any idea please contact me, as Kathleen and I both suffered from post Epclusa ailments and we often shared info, then everything stopped. She was not well, so if anyone can help me in finding out if she is still with us. Thank you

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51

Re: Sunshine (# 49) Expand Referenced Message

I think it depends a lot on your age and how long you had hcv. it worked for me but I had it for a long time plus very hi viral load, a lot of people are cured. good luck 12 weeks goes fast.

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52

It's been 3 years since my epclusa treatment. Over 90.000 for three months.

Good news I no longer have hep c. Bad news I have cirrhosis stage 4. I've had so many problems since epclusa. Trouble sleeping. Inflammatory rheumatoid arthritis. My eyes are so sensitive to light that I have to gradually turn lights on.

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53

Re: Kathi (# 52) Expand Referenced Message

I have similar issues ,IV found drs are not much help as mine gets any info from local liver clinic that promotes doing epclusa,his answer to my problems is usually ," no the experts say Epclusa treatment doesn't cause side effects " mmm I know it's a lie ,becourse my life is hardly worth living thanks to Epclusa ,wish I'd never touched there wonder drug and still had HCV.

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54

Re: Lou (# 53) Expand Referenced Message

Hi. Haven't heard from you for awhile. Glad to know you are still hanging in there.

I'm so frustrated with big pharma. My body has suffered greatly during and after epclusa. Two new diagnosis since then. It has caused my arthritis and my eyes to be very painful. Can't stand light. When I awaken I have to gradually use lights.

I go see eye doctor on the 13th. Hope you are doing better. Still the new person in town?

Think I used my name Kathleen on this site before. Let me know what's happening with your health.

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55

Re: Kathleen (# 54) Expand Referenced Message

Hey is that Kathleen from Carmichael? If it is I've been trying to contact you forever it seems. Sorry to hear about your eyes. I ended up losing my phone and google somehow messed up my email. So glad if it is Kathleen. Great to hear from you. It's getting hot here in Australia. I have few new problems since Epclusa, lungs, heart, etc. I will tell you more details when I get over the shock.

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56

Re: Kathleen (# 54) Expand Referenced Message

Hi,you really made my day sorry about the health issues,I was worried about covid 19 ,I don't think our immune system s would cope,I had ASTRAZenica vaccine first shot was ok few extra pains tiredness ect ,but after 2 Nd shot felt terrible really rundown fully congested exhausted more than usual,dr suggested blood test found out vit D deficient (24) why it wasn't picked up that I had vitD problem been seeing this dr for 5 yrs sure he just doesn't care,I've been telling him about being exhausted body jolts just about every day nausea, all signs of vit D low on top of epclusa problems so now I'm supposed to take 4 supplement capsules a day ,I don't like taking ,have you checked your vit D ?

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57

Re: Lou (# 56) Expand Referenced Message

So good to hear from you again Lou.
I was diagnosed with immune system arthritis last year. Started steroids and another drug . Now my eyes are so sensitive to light that I finally see a doctor tomorrow. None of these things happened until epclusa.
I dont know how they get away with doing us like this?
I'm so glad you are hanging in there with me.
I have been asked to do a talk about Epclus at a center here.
I am considering doing so. Will let you know..
Take care lou

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58

Re: Lou (# 56) Expand Referenced Message

Been on vit d for many years now. Also calcium every Saturday.
Never felt this way until epclusa.
Yes it killed her c but was never informed ay what cost to my body.

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59

Re: Lou (# 1) Expand Referenced Message

It took my husband's life. He had no cancer in blood or CT.
Started Harvoni was clear week 5. They kept him on for 12 weeks. He died 8 weeks later to the day of start (5months). With liver, pancreas and adrenal cancer.
Harvoni killed a strong healthy 235# Pipe fitter
In 5 months. At 160#
Shame on the drug companies and the profit over people.
You'll see what will happen to those who dont get the jab.
Look at Australia.
It's all about profit, control and kill off the sick.

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60

Re: Kathleen (# 54) Expand Referenced Message

Praying for you. ??

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