Epclusa Treatment
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Is there anyone out there who has taken Epclusa? I'm fixing to start treatment and would like some feedback.

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Re: Junebug (# 29)

Maybe talk it over with someone ,I did treatment over 5 yrs ago my VL in mills I no longer have virus VL o ,med ill effects I have now maybe would have happened anyway ,I would have liked to been able to.talk to someone get bit of support from gilliard ,I'm not happy with info if any from Liver people seems to effect everyone different ,I just don't know why you ve decided to stop iv heard a lot of good reports also some really bad ,it's just a thing you have to decide on ,good luck

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Re: MP (# 25)

Good luck ,it seems to effect people I different ways ,I no longer have the virus my VL was in millions it is now o I was told VL didn't effect treatment but I can't understand that I always thought VL was to show damage done while having virus ,I don't know if the med problems that I have now would have happened to me even if I didn't do treatment anyway hope everything works out for you.

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What would happen if I just stop taking my Epclusa medication?

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Re: Verwon (# 1)

I did it 5 or so yrs ago ,got rid of virus ,but I feel like it has caused more problems don't believe everything your told look into everything someone is making money out treatment .wish I never touched it.

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Hi. I am 70 years old with COPD. I've recently been put on a new med called Trimbow 100/6/10. Has anybody else had this med? Nothing seems to work for me. I had no breathing problems before I did Epclusa treatment 5 years ago. Any info is appreciated.

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Re: Kathleen (# 19)

Kathleen are you ok ? David from Australia

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So just throwing this out because I doubt many people in my position even find these boards. I am sure I had hep C for a long time, but went acute end of 2020. Thought I was long-haul C19 at first, but then got tested and woot, hep C. My viral loads were in the high hundreds, so I know that puts me way on the low end of spectrum. After a bunch of back and forth (had to get insurance, had to get a biopsy, etc), started 12/22/22 (today is 1/22/23). First 1 - 2 days bad stomach. After that about a week of major fog in the brain for 1 - 2 hours after I took meds. Now, seem to have settled into A. Stomach sucks but not terrible (and it sucked before from the hep so...ehh), foggy brain for 1 -2 hrs after pills, but completely functional. I have some significant swelling in legs/ankles, but had that before I started and it hasn't gotten better/worse (I gained 90 pounds during c-19 so pretty sure that's where that is coming from; dropped 30 off so far). Other side effects: Less appetite, some nights just don't sleep (once every 7 -10 days), that's it. All in all nothing that interferes with my life; I still work, exercise, do my thing. Probably worst part is I really enjoy a cocktail every night and I went cold turkey on that 3 days before I started, so I kinda hate everyone right now but fairly certain that's from my lack of Maker's mark, not the meds.

Just my personal experience. Done on 3/1, hope things don't get bad but no indication they will. Oh, one other thing. First intera-meds blood test 3 days ago; viral at 0. So really hope that sticks.

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Re: Kathleen (# 19)

Hope you are ok, please contact me as worried for you.

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Re: Louis (# 3)

Hi I finished treatment 2 yrs ago,for Geno 3 I'm in 60s,if I had my way I would not touch it,I feel worse Poste treatment,Edema abdominal swelling numb feet really painfully joints leg muscels insomnia continual infections ,what makes it worse is the liver clinic point blank refuse to admit treatment could have caused any problems so called experts I doubt it, it's all $$$ don't be fooled they don't give a darm about you, oh yeah they make sure they mention don't believe anything you read on internet ,IV leannt more on line from people all over world,it's impossible to find out how many people now have major problems from Epclusa ,Harvoni,or how many have died.unfortunatley my dr rings them if I have a problem and gets told same thing oh treatment would not do that.lol ,there's no come back once you have started there DAAs ,it may cure the virus on a lot of people but also damages ,they don't tell the truth.good luck to everyone .

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Re: Kathleen (# 19)

Kathleen,I don't know what to do I try to send message ,but it says the heading we communicate on is page 9 of 9.?? Does that mean we can't communicate on this heading ?

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Re: Louis (# 3)

Same as myself ,I felt better pre treatment ,now it's like my immune system has crashed,also none of the so called experts take any responsibility ,no support at all and just blame symptoms on my life choices not there wonder med $$$ don't believe everything ..

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Hi,all I can say is don't believe everything professionals say,anti vitals do seem to get rid of virus in a lot of people ,I feel as if my body has now been damaged immune system stuffed! Near lost hearing neuropathy ECT ,2 yrs Poste treatment,no support from anyone especially liver experts lol.

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I took Epclusa for 12 weeks.
It was the worse experience of my life.
I had undetected hep c for almost 40 years.
I was diagnosed with routine office visit.
Over the years I would get very sick for about 4 or 5 weeks. A few times a year.
But I never experienced any hell like I did takubf Epclusa.
I took it everyday as ordered. Same time everyday.
Within 2 hours I felt like I was poisoned.
The feeling lasted about 12 hours.
I had absolutely no energy.
I was confined to my bed and needed help daily to shower,change clothes or eat.
Epclusa gave me a zero viral load but has ruined my life/health.
I am two years out and have so many side effects.
I contacted Gilead many times but never recieved replys.
Please read and reread everything about this drug.
I did not. Also it had only been on market for a few
months when I started taking it.
I wish you good health.

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Re: Lou (# 17)

Please go in for MRI on Luver. Pancreas and kidneys. Please??

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Re: Sunshyne (# 15)

Hi,really sorry for your losses,I can relate to some of your husband's symptoms,I finished Epclusa about 14 mths ago,so far no virus ,pre treatment I had very high VL,I probley had virus since 70s,pre treatment I was skinny now I have Edema swollen abdomen no energy at all puffy numb feet often nauseas skin blotches muscle aches in legs ,also get body jerks near every day dropped so many cups,I'm in Australia IV mentioned it to liver clinic that assured me treatment would be so easy for me even with high VL ,they just don't care no support at all,I just don't feel like my liver is good since treatment or immune system ,it's like every week new problem ,wish I never touched there wonder med.also constipation sleepless nights ,I can't see things improving.take care as I said can relate.i also feel like may have to get drained of fluid ,don't know if it's urine ,but don't like feeling also my urine has strong odour ,don't know if it's my body trying to get rid of there wonder meds but don't feel right ,my GP knows very little nor does he care.

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Re: Sunshyne (# 15)

Hi,really sorry for your losses,I can relate to some of your husband's symptoms,I finished Epclusa about 14 mths ago,so far no virus ,pre treatment I had very high VL,I probley had virus since 70s,pre treatment I was skinny now I have Edema swollen abdomen no energy at all puffy numb feet often nauseas skin blotches muscle aches in legs ,also get body jerks near every day dropped so many cups,I'm in Australia IV mentioned it to liver clinic that assured me treatment would be so easy for me even with high VL ,they just don't care no support at all,I just don't feel like my liver is good since treatment or immune system ,it's like every week new problem ,wish I never touched there wonder med.also constipation sleepless nights ,I can't see things improving.take care as I said can relate.

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Re: Davoe (# 11)

My husbands belly swelled it was fluid his liver not working right, affected kidneys. He had to get belly drained every 8 days Peritonitis and then needed protein drip. Then blood transfusions. Was put on transplant list long story short. Gone and dr. (Knowing he was in liver failure) tried to get another 12 week round when his blood was clear wk5

I pray for all us victims of these drug companies.

I've lost so many family members to these greedy, soulless companies. :-(

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Re: Lou (# 9)

Don't take it!!!! Don't trust it. And if you have ANY CIRRHOSIS of liver, it will kill you!! Poison. Stop taking it. Dr. will say you'll get sicker b4 u get better. It killed my husband in exactly 5 months from start. No cancer in blood or CT; 4 months later riddled with cancer!!! Poison.

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Re: Verwon (# 1)

Hi Verwon. I'm a year post-treatment with still no support. My symptoms are worse, I'm totally exhausted and scared of what's next... Verwon, are you involved in treatment?

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I finished tx 1yr ago,no virus ATM,but feel like my immune system is stuffed felt better pre tx, I had nil support plus every sideeffect ,now I am totally exhausted leg pain nausea numb feet toes possible heart problems, good luck ,let me know if need advice.

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