lynn Says:
Daliresp Experience (Page 5) (Top voted first)
Updated
Darlene Says:
I have been on Daliresp for one month. I have noticed significant improvement in my lungs. By that I mean the mucus is gone, wheezing is gone. My lungs seem to be getting clear and do not feel as heavy as they did before I started taking it. I have had my bouts of depression, I am never hungry, which is a problem because I am underweight as it is. Just wondering if anyone else has had success with this drug. I was hoping to get off oxygen at some point. Don't know if I can achieve that or not.
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53
You might try taking Melatonin as another person said they were doing. I take 1 500mg capsule about 30 minutes before I go to bed.
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John Says:
I've being Daliresp for about 4 months with little side effects Then all of a sudden I began having anxiety attacks soon turning into depression. I wonder how long it will take if I stop Daliresp to see if its the source of the problem?
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Lynn Says:
Have you checked to see how much it is without Medicare? Often the pharmaceutical company can work with a patient if you truly cannot afford to buy the medication yourself. I would contact the company directly.
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Darlene Says:
I have heard that this drug is protected for 5 years so there will not be a generic version until that time is over. In 2010, I was hospitalized 7 times for COPD exacerbations and/or pnuemonia. I have been on Daliresp for two years and have not been sick since. My doctor gives me samples, but I have to pay for most. Cost > $200 per month. I would think the insurance would pay for the drug. Certainly alot cheaper as most of my hospital visits were > $100k. Go figure, not good thinking on their part
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Dee Says:
If you have medicare D coverage, most pharmaceutical companies are not allowed by law to assist a consumer! Makes no sense whatsoever, but I have been down that road before with other medicines. I wanted to try this drug too.. But I certainly cannot afford 200.00 or even 100.00 a month!
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Lynn Says:
You can order Daliresp from Canada Drugs if there is no other option. It is half the price of what it is here in most cases. It does require a prescription. I ordered from them before Daliresp was approved here and went under the name Daxas. The service was excellent.
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Darlene Says:
Lynn: Which pharmacy in Canada did you use? I looked into that and was a little scared to try..
Darlene
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Lynn Says:
CanadaDrugs I bought from them for a year before Daliresp was approved here. I had no problems whatsoever. The larger the quantity you buy, the cheaper the price.
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Darlene Says:
Thanks, Lynn, I will try them out. How do you provide them with a prescription? Fax??
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Lynn Says:
When you get to their site, click on Place a New order and it will give you all the instructions. It's simple & they are reliable.
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Jana Says:
Well its 4-2-2013, first day on Daliresp. I have read all of the post.. Sure hoping insurance does pay for it, using samples from my doctor. Thanks to all that have posted, mind over matter and I am going to pray it works.
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nancy Says:
hello... i have been on daliresp for about a yr now.... my weight loss is horrible.... i have lost 20 lbs and dont need to...now under weight.... has anyone tried getting off daliresp and done alright without it...? i do feel better on it but the weight loss is bothersome....i also get blood bruises if bumped on my arms and hands... this is an awful sight.. anyone else suffer from these?????
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Dee Says:
Frank, please tell me about your stem cell for emphysema that you had in FLA. What did it cost and how did they do it. I want to do this but don't know anyone that had it done I see your post please tell me bout it and I am sure everyone else wants to know. Thank You Dee
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Jana Says:
Yes I am going through the same problems.
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Darlene Says:
After reading a couple of the posts where people have applied for and were able to get their insurance to pay for this drug, I called Medicare and applied. They did all the work and in about a week I received saying that my insurance would cover it. I have Medicare D and United Healthcare through Secure Horizons. You do have to have Part D and a medigap insurance policy for the coverage, but that is the only restriction. I pay about 1/3 of what I paid before now.
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Sharon Says:
Darlene, My insurance kept denying to pay for it. It took me 2 months to get an approval. Your doctor must fill out papers saying Daliresp is medically needed by you. They'll denied you 2 or 3 times and then they should okay.
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Kim Says:
I took 3 daliresp on accident . thought it was. Another medicine of mine . what should I do. anyone ever take more than they should?
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Dee Says:
What is your age? How many liters of 02 are you using and how many hours a day? I have used almost every drug out there for cold etc.,but not this one. Is it inhaled r a pill?I haven't even researched it yet. But good luck too you.
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Lynn Says:
It's in pill form now. It can take getting used to, but I am pleased with what it's done for me.
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Dee Says:
I take 4 nebulizer meds, and I have my rescue inhaler. I also take sporonox for aspergillosis. I see O2mostly at night, but sometimes I have to use it in the day.When I have an exacerbation I have to go on the dreaded p word medicine! Prednisone! I hate it! He side effects are atrocious for me,and I get them all. I have a vest to use twice a day to keep the junk broke loose cause I can't barely cough it up.
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