Coming Off Invega Sustenna
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Hi, I was given Invega Sustenna at 100mg a month for 10 months since Dec 5th. My last shot was on August 29th 2013. The medication gave me severe anhedonia and I have lost the motivation and willpower to do anything. I can no longer experience joy, happiness, or pleasure from anything I do and I have no interest in doing anything. I constantly feel restless and uneasy and I just can't shake this feeling away no matter what. All of these started about a week after my first IV. I have been off this medication for almost 3 months now and I have yet to feel any improvements. I have read that it has a long half life of 25-49 days and that it can stay in your body for 300 days. So does that mean I will have to wait a year to start feeling better? Any info on someone who has been off this med would be greatly appreiciated. I am interested to learn how many months it takes to feel better after invega sustenna. Thank you

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Re: Edouard (# 17)

Hello, I am looking for some hope. I had four injections of paliperdone (Invega Sustenna) - two in December 2022, one in January 2023, and one in February 2023 - and it has ruined my life. It will be 10 months since my last injection, and everything is in a state of despair. I’m going through hell from paliperdrone (aka Invega Sustenna). I had 4 injections of the poison, and I have lost everything. I’ve lost my concentration, I can’t think or feel. I have no emotions. I can’t concentrate on anything, e.g., read, write, watch TV/YouTube, paint, or listen to music.

I have lost all my motivation. I can’t do anything; I can’t even take care of myself, e.g., shower/brush my teeth, change my clothes. I just don’t care about anything or anyone anymore, just no feelings.

I have no hunger or thirst. Everything is dead. My body is not functioning anymore. My personality has gone; I’m dead inside.

I struggle to retain information and talk to people. It’s so hard to understand anything.

On top of it all, I can’t sleep. I haven’t slept since November 2022, which was before I had the first injection. I had two injections in December - the first one was 100mg, and the second was 50mg. One in January was 50mg, and one in February was 50mg. My life has been hell. It’s been 9 months since my last injection, and there has been no improvement.

I wish I had hope. I don’t think I will recover from this. It’s a nightmare. I just want to die.

I think your post was a very long time ago. I just wanted to reach out to see if you are still around and how you recovered. How did you do it?

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Re: Rayman7 (# 319)

Did you recover from invega?

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Re: Nina (# 352)

Did you recover? How long did it take?

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I'm off the invega injections. My period is coming back. I was off meds for 5 months and lost 20 lbs. My father hospitalized me because I changed. My so called friend screamed at me if I was taking pills in a restaurant. I was pissed off and picked on her. Now, the psychiatrist put me on injections of Abilify. I gained the weight back. I don't know what to do. God, please help me!!!

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For anyone who came upon this...
I stopped invega sustena and felt differences immediately. Jalf life refers to the time that half of the drug is still effective. So if it's half life is 26 days then at 26 days only 50% of the medication is working in your body. I've been off for 2 weeks and have lost 4 lbs. Had much less hunger cravings.

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Re: Nina (# 352)

So i was given about 5 injections of this poison about 10 years ago. It has ruined my life. The problems gradually got better, but never have i come close to properly recovering. It must be said my symptoms were worse than most people. I hear that most people recover, i just live through each day of misery with nothing to look forward to. I used to believe in god, think jesus could make miracles happen. I turn on the tv tonight asking god for an answer to this and all i get are stupid superhero movies whilst i sit waiting for god to provide an answer and a remedy to the poison he created. But enough about the god stuff. Invega caused me internal restlessness, vibrations, anhedonia, inability to cry, inability to concentrate, akathisia, bouts of hatred and anger, emotional instability where i now swear all the time when i never used to, the list of "side effects" goes on.

I used to be a gentle kind person and invega poisened my being, my life, my soul and everything i believed in. I'm now classified as disabled because i hear voices, the invega caused me to hear the voices. I no longer enjoy music or going out, i no longer see my family or friends, every night i have nightmares. And nothing stops them. I can't even sleep in my bed anymore. It gets better over time, but i never recovered. I never found any medicine which really helped me. A few things which are of benefit include b6, drinking lots of tea or coffee, valium helps to get to sleep, and largactil is an antipsychotic that might help. That helps me to sleep and quietens the voices i hear. Yep, the invega made me start hearing voices. invega is an absolute poison and i will hate and despise paul janssen the rest of my miserable life.

I can't believe they gave a nobel prize to that tyrant who created 3 different poisons. invega, haleperidol and fentenyl. Every day i die a bit more. Another happy memory gone. All because he wanted a f****** medal. I believe that it is only right that people who have been poisened by invega should be allowed to take any types of drugs available in an effort to self heal. Unfortunately the only things that really allowed me to avoid the misery was synthetic weed and when that became illegal i spent 12 months drinking everyday. Partying like there was no tomorrow, because there is no tomorrow. Tomorrow will be another misery and the first thing i hear will be another voice in my head caused by this "medicine". I just wish god would make a cure.

My family are all great believers in the healing power of jesus but i can't even get an explanation from jesus let alone a medicine to fix me. F*** Paul Janssen, and all the other layers of bureaucracy that were involved in making, testing, marketing, prescribing and allowing this poison to be used on people. All of them are guilty. 1 person poisoned by invega is 1 person too many. But Janssen don't care, 1 persons death is just collateral damage on the way to them making more money. I hope that other people manage to recover, because i read that it is possible, just not for me. Everyday i keep looking everywhere for an answer on how i can get my life back. Everyday i keep looking for information on what this medicine did to me so i can try to cure myself. But all i ever see is bruce willis and his bevy of superheros on tv. Be a real hero and help the people who were poisoned by janssen.

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I quitted the injections (6) 7 months ago and have no improvements. I am very worried also because I don't sleep at all. I have very severe anhedonia. I can do nothing. Please help

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Last year the psychiatrist gave me fewer injections. I started to feel bad and went to the hospital. They gave me the vaccine for covid and I became severely ill. I was catatonic and had a blood clot, pulmonary embolism. This year I am going to try and get off the drug again. The doctor is asking for blood work to see how much drug is in my blood. This is not standard practice. I am on a community treatment order, so I am at the mercy of the doctor. I am going to ask her to give the injection every 5 weeks instead of every 4 weeks. I don't want anymore of this drug, but I have to beg for fewer injections and hopefully get to the point where the injections will stop.

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Re: Joanne (# 323)

How are you now?

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Re: Narshe81 (# 4)

How are you doing? Did it get better?

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It’s been 10 months since my last injection. I had hypomania episode and almost lost my mind. I think it was a rush of dopamine and serotonin past a few weeks and I had sharp memory remembering many things and things went down so bad it’s like hit hard on my head.
I am wondering people who recovered from invega did they have better cognition and memory and physical strength back?

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It will get better, especially after 6 months. Vegan source DHA and DPA, phosphatidyl-serine and phosphatidyl-choline can improve your brain volume and performance.

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Re: Edouard (# 14)

Hello. What kind of sexual dysfunction did you have? I am having no natural libido. I wonder how long it takes to get back to normal?

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Re: invegazombie (# 10)

Has there been any improvement with your symptoms? I’m in the same boat as you

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Re: Edouard (# 17)

Hi brother, did you recover from the side effects of invega sustenna injection?

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Hi. I was injected twice with Paliperidone, although not sure which amount yet. I was sectioned in a psych hospital for two months in the U.K. The side effects have caused drastic changes in my body and brain but since it has been 3 months since my last injection, I wonder if the brain will EVER go back to its natural / original function. Does this poison cause permanent changes??? I face cognitive; memory; emotional; sexual and fitness issues now. I remember that I could feel the damage it was doing to my brain as I could not work out anything in my head. I don’t have an internal dialogue (i.e. my own voice) anymore. I’m planning on investing in a neuropsychologist to see what could be done about the damages. Also suing the hospital when I get the funds.

Kind regards

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Re: Sandh (# 339)

Hi sandh I think I remember you from some time ago on here. I am the parent that has the 21 year old daughter that has schizophrenia, bipolar, and she also was on the invega (but not any longer). She's now on clozapine being that she wasn't responding to any of the other psychotic meds out there. The clozapine has been wonderful but it is used as a last resort because it includes having to have blood work done weekly, then monthly. But anyway I'm here if you need to talk cause if no one else understands what you're going through I do, cause I've been through it, and trust me, I know it's a living hell to go through anyway anytime.

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Sandh (# 338) --

Would really like to hear an update now in 2019 Sandh!

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Re: Sandh (# 339)

Hi sandh, what symptoms are you dealing with? There's a website called healthline that talks about different bipolar disorders. There are several different disorders that are like schizophrenia but slightly different. Maybe you could be being diagnosed for the wrong thing? This website talks about psychomotor agitation disorder, cycle mania disorder, & hypomania disorder. And these have some symptoms of schizophrenia but slightly different and need to be treated differently.

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Hi, I was off invega sustenna for 17 months, no improvement and then I went to the hospital for delist. I’ve problems they put me back on invega sustenna, now I been on meds for 4 months. I don’t see how it’s helping me, no one doctors or my family doesn’t listen to me.. Just cause I look ok on the outside appearance wise doesn’t mean that there’s nothing wrong with me. It’s been 2 years, 2 years ago I was given 4 injections I never recovered. My life is living hell.. I don’t even feel alive anymore it seems I have no blood in my veins every time I go for blood test they have difficulty getting the blood also I don’t feel my heartbeat anymore, it’s like I’m dead and stuck in some after life situation .. is there anyone I can speak to?

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