Coming Off Invega Sustenna (Page 8) (Top voted first)

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Hi,

I was given Invega Sustenna at 100mg a month for 10 months since Dec 5th. My last shot was on August 29th 2013.

The medication gave me severe anhedonia and I have lost the motivation and willpower to do anything. I can no longer experience joy, happiness, or pleasure from anything I do and I have no interest in doing anything. I constantly feel restless and uneasy and I just can't shake this feeling away no matter what. All of these started about a week after my first IV.

I have been off this medication for almost 3 months now and I have yet to feel any improvements. I have read that it has a long half life of 25-49 days and that it can stay in your body for 300 days. So does that mean I will have to wait a year to start feeling better?

Any info on someone who has been off this med would be greatly appreiciated. I am interested to learn how many months it takes to feel better after invega sustenna.

Thank you

358 Replies (18 Pages)

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129

Re: 4xdrew (# 111) Expand Referenced Message

Andrew, they might as well of lobotomised us. In fact they did paralyse me with this drug. This drug is just EVIL and I'm hating it. I feel like a prisoner in my own body. All cause I got paranoid over my Facebook being hacked into and emails. They did this to me.... It's hell on earth. I can't see how this will leave my system as it seems to of caused permanent damage. I hate them for this. Someone tell me it gets better? The drugs have stuffed up every fibre of my being. It has to be the worst of the worst feelings.

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130

Re: Andrew (# 126) Expand Referenced Message

Are you able to loose weight yet? I am trying to get into ketosis. I am not sure if my body will go into it. My body is stuffed my hormones are stuffed. This has gotta be the worst of the worst.

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131

Re: Andrew (# 126) Expand Referenced Message

I've tried and tried, but I can't get drunk anymore. These meds have stuffed me up. I bet these injections have caused it. It's like they gave me a big injection of tolerance. These meds have killed me. Why!? Why did they give me this drug?! I never needed it and I sure as hell didn't need to be in a hospital. There was no need for it......not at all. It has made me gain weight, it has made me a mess and ruined my life. I never used to be this way. They have taken my soul. They have taken everything, my job, my weight and now I can't even get drunk from the wine. There's no turning back. I'm in a hole of no return...There's no need for this. I never deserved this. It's pretty bad.

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132

Re: Carly (# 130) Expand Referenced Message

Yeah this sucks. I have not been able to loose any weight yet. I think its because the injection is still in my system. I have 81 days left till its out.

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133

Re: Andrew (# 132) Expand Referenced Message

Do you think it will truley leave your system in 81 days? At this rate I believe it's caused permanent damage. I don't reckon it leAves the system as such. The hormones have been permanently damaged.

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134

Re: Carly (# 133) Expand Referenced Message

I think it will leave my system. But im not sure if I will loose the weight.

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135

Has anyone RECOVERED 100%from this horrible drug yet or feel any better

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136

hi i have a nineteen yr old daughter dealing with schizophrenia right now and I'm also trying to tamper her even though the psychiatrist only give me more medication as a option for her but I refuse to increase her medicine any more my opinion it's all about money with this one he doesn't listen to my concerns about my daughter and visit are less then 5 min anyway whatever you do don't go cold turkey tamper yourself slowly I just read it takes 25-49 days to wear off and 125-343 to completely leave yr body I'm not a Dr but I made that mistake a went cold turkey with her and this schizophrenia snuck up on me out of nowhere so hopefully this helps sighted a parent going through

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137

Re: a parent going through (# 136) Expand Referenced Message

Go cold turkey its a dangerous drug. Evil and nasty a chemical lobotomy. Take her off it before its too late. This drug has stolen my soul.

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138

Re: Johnny (# 135) Expand Referenced Message

I got 3 injections and didnt really have withdrawal symptoms. I had a few small headaches like 3 times but they went away and havent came back and its been 8 months since my last injection. I didnt really feel zombified other than not having as much energy and being in bed all day it also messed with not getting drunk as quickly. I think Im fully recovered. I have more energy and Im also not as hungry as I used to be

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139

Re: Andrew (# 138) Expand Referenced Message

How's your anhedonia (no joy or pleasure from anything you used to enjoy doing), and can you get a buzz from alcohol yet? I'm at 11 and a half months, slowly coming right I hope. What a horrible disgusting inhumane drug to give to anyone. I hope we all come right in the end.

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140

Re: Andrew (# 138) Expand Referenced Message

Did you say you have not been able to get as drunk as easy.

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141

Re: Edouard (# 14) Expand Referenced Message

Thank you for the information. You said 6 to 8 months to back to normal. Did it go down gradually or accelerate in its decline? I.e. What were months 4 and 5 like?

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142

Re: Johnny (# 139) Expand Referenced Message

My ahedonia used to be really bad while I was on Resperidone I think because of the psychosis and the Invega injections didnt give me ahedonia but then again i only received 3 injections... sometimes though I do feel more bored than the usual like when I havent really talked to my friend... im kind of a depressed person and sometimes i dont feel pleasure from music or ive just been listening to the same type of music for a while and dont enjoy it but i come back to it eventually but yea somedays are really lows but i think thats just my depression... this drug actually fixed my deluded thoughts and paranoia i just didnt like that I basically couldnt climax and the weight gain.

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143

Re: Carly (# 140) Expand Referenced Message

I can now. Like I used to before. I couldnt before. This barely came back. In the 8th month.

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144

I gained 45 pounds; pre-invega I was 115 lbs and now I'm 157 lbs. 0 improvement. Will this nightmare end? Memory problems, no emotions, brain dead. From reading john's posts it looks like even around a year off you're not completely recovered.

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145

Johnny

Now that your one year off this drug, is your memory 100%? When did it improve? Thanks.

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146

Re: sandh (# 144) Expand Referenced Message

Hi Sandy my memory is good came back about 7-8months libido about month 5 still got a bit of emotionally numbness but getting better now çan just get slightly drunk what about you how many shots of the horrible poison did you get still having a hard time with sleeping but getting a bit better

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147

Johnny,

Thanks for replying, I'm 7 months off. I had 4 shots and I'm sleeping fine. It's good to hear that your memory is good, gives me hope that at least I'll get my memory back sooner. My memory was wiped out completely but I can remember things when I think back. How long did it take for your memory to be 100% back? Hows your appetite? I don't get hungry or thirsty and have to force myself. Are you able to work? My mind is blank and don't think I can work even around 6 half life's.

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148

Re: sandh (# 147) Expand Referenced Message

Memory was good at 8 months still got bit of brain fog though appetite good maybe cos I take mirtazapine I'm not working at the moment I had 6 of the hellish shots on a community treatment order imagine that forced to take poison by your government I'm neihthe skits or bipolar

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