Coming Off Invega Sustenna (Page 12) (Top voted first)

Hi,

I was given Invega Sustenna at 100mg a month for 10 months since Dec 5th. My last shot was on August 29th 2013.

The medication gave me severe anhedonia and I have lost the motivation and willpower to do anything. I can no longer experience joy, happiness, or pleasure from anything I do and I have no interest in doing anything. I constantly feel restless and uneasy and I just can't shake this feeling away no matter what. All of these started about a week after my first IV.

I have been off this medication for almost 3 months now and I have yet to feel any improvements. I have read that it has a long half life of 25-49 days and that it can stay in your body for 300 days. So does that mean I will have to wait a year to start feeling better?

Any info on someone who has been off this med would be greatly appreiciated. I am interested to learn how many months it takes to feel better after invega sustenna.

Thank you

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Re: Ruth (# 195)

Look up kareem herbalist hes really good too he also talks about herbs,vitamins, black seed oil and much more and what they do he also gives good advice

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She probably feels like me, memory loss, no emotions, no appetite, no imagination no thought process. That's why she doesn't seem same. I'm 31 they forced a community treatment order on me where I was forced on injections, my parents doctors made all the decision. But thankfully I convinced my parents to get me off the injections after 3 months and also cancel the CTO
Wut a horrible health care system, they didn't ask for my consent I'm 31, my opinion didn't matter to the doctors

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Re: Sandh (# 193)

Are you still getting injections? of Invega sustenna

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Ruth (# 214) --

No, I had 4 inj's... My last shot was on March 30, 2017. Now I only take vitamins. I never heard voices, I wanted to move out of my parent's house and my parents called the cops, that's how I ended up in this mess.

I'm just waiting for my brain to recover from the shots and lithium, trazodone and seroquel... Once my brain recovers I will be fine, but I will keep taking vitamin c and niacin to be safe.

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Sandh (# 213) --

my daughters memory is shot she remember bits and pieces of different parts of her life,she talks to voices all day the only thing that calm her down is the niacin it puts her in a calm mood her emotion are all over the place sometimes she screams at the voices,sometimes she smiles at them like there being nice to her.sometimes she speaks about very disturbing things and cusses which is something my daughter has never done,and sometimes shes happy and sometimes she cries, shes constantly doesn't recongizes stuff or thinks its against her so she will begin throwing her belongings and mind in the trash i have to give her her a malatonin at night to help her sleep she wakes up early and does it all over again some days are better then others so i try to maintain the best i can and keeping her mind calm and focused she enjoys watching musical cartoons writing in her note pad and lisening to her music and cleaning so i allow her to stay occupied much as possible its definately a daily challenge but thats my daughter and i love her to death

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Niacin is going to fix the problems that she's having

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I spoke to my pharmacist friend, invega sustenna takes 8 - 10 months to eliminate from the body
It has a half life of 50 days, the drug cuts in half every 50 days, and it take about 6 half lives to eliminate that's 300 days

Wut meds is she on ?? When was her last injection
I don't have a schizophrenia, I dunno for wut they injected me with the poison
I don't have much of my memory I only remember some bits

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Re: Sandh (# 216)

Hi sandh. the niacin curves the schizophrenia while the vitamin c will boost her immune system along with the B-100, vitamins vitamin D-3 is takes place of the energy we dont get from the sun daily the omega 3,6,9 are you fatty acids our body needs, And the activated charcoal is a detox from harmful chemical in are body. Ginko biloba is good for memory i take 3 a day depending on the mg.

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Invega can't help people, instead of helping the patient, the drug makes it worse a living hell
we are living a nightmare every single day and it has no end, since she's hearing voices
Find an orthomolecular doctor get her on the right dosage of niacin and vitamins
You need little bit of help in this situation from a naturopath
I just hope she gets enough niacin in supplements

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That's some good research on vitamins :) I will start taking niacin I have to find 100mg capsules and yes right about vitamin d
I use to take supplements regularly before, now I forget and can't look after myslef the same way
But I'm setting up alarm on my phone to remind me to take supplements

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Sandh (# 217) --

her last injection was apx.10/26 she went from 156 mg to 117 mg just because i kept complaining to the Dr but he was still trying to convince that she had to be on this medicine and not to wing her off he wasn't willing to work with me no matter what i said but told me that that's what he does is distribute the meds. like i didn't already know this but did he take in consideration the well being of my daughter obviously not 5 min and the session was over until the next time thank god shes only been back on for about 4 months this time but no more i refuse.

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I pass my 6th half life on Jan 18 where invega will almost be eliminated from my body and there will only be around 5 mg left

When was your daughters last injection ?

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Sandh (# 220) --

Thats awesome Im proud of you like i said dont give up were in it to survive even if we have to fight are way through and for me i choose to survive and never give up

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Ruth (# 221) --

Please don't get Injections ever again, antipsychotics especially injections higher doses cause brain damage. Since her last injection was 10/26. Her body will eliminate invega completely by summer around August.

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:) so just like me, the same process for your daughter she's going to eliminate invega completely 10 months from her last injection which will be in august.
And once it's eliminated you slowly start going back to your oldslef. You have no more drug in your body to affect you, that's wht I been told by other sufferers

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Thanks Ruth - if I could I would give you a hug :), we'll survive this nightmare

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do you have conversations with your daughter does she express how she feels how the drug has affected her memory. Is she aware of wut the drug has done like I am

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Anyways sleep well Ruth, thanks for all the info you provide me with about supplementing

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Re: Sandh (# 227)

I don't think she really knows she always says" oh i know now "now this is making sense shes always trying to figure things out so i sit down with her with pictures to see who she remembers,um i drew her a chart out on how people are actually related to each other she actually uses that she will go to do something and totally forget what she was doing or i will ask her to do something and she will head to do something else not that she does'nt hear me but she does'nt remember plus she repeats herself alot when shes talking out loud

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This is how doctors mess up people's lives, she will be ok

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