Coming Off Invega Sustenna (Page 11) (Top voted first)

Hi,

I was given Invega Sustenna at 100mg a month for 10 months since Dec 5th. My last shot was on August 29th 2013.

The medication gave me severe anhedonia and I have lost the motivation and willpower to do anything. I can no longer experience joy, happiness, or pleasure from anything I do and I have no interest in doing anything. I constantly feel restless and uneasy and I just can't shake this feeling away no matter what. All of these started about a week after my first IV.

I have been off this medication for almost 3 months now and I have yet to feel any improvements. I have read that it has a long half life of 25-49 days and that it can stay in your body for 300 days. So does that mean I will have to wait a year to start feeling better?

Any info on someone who has been off this med would be greatly appreiciated. I am interested to learn how many months it takes to feel better after invega sustenna.

Thank you

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Re: Ruth (# 192)

I'm glad it's working for her :)
I feel depressed cause of this poison
I'm definitely improving but my memory is still not back, and I don't experience joy the same way, and the improvements aren't big
I feel hopeless

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I feel a lot of anxiety, thinking how many months more until my brain recovers 100%

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Re: Sandh (# 189)

I looked Abraham Hoffer up he's wonderful with lots of good advice no doubt in my mind that the niacin does work and I will be getting the vitamin c and the daily vitamin for her she's doing better every day thanks god bless

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Re: Ruth (# 195)

That's amazing, for 3/4 days i only had vitamin c once a day and I felt a lot anxiety today I had 2 times a day, feeling better. Once I recover I'm going to take vitamin c and niacin for preventive measures I'll make sure I never have this experience ever again in my life

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Re: Sandh (# 193)

just remember sandh. all this is gonna take time Ive lost all trust in these phychiatrist and now its clear to me what there all about sometimes we have to do our own research on things to even find out the real truth its sad but its the truth just keep yourself mentally and physically while your going through it will all work out

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Re: Sandh (# 191)

how are you doing? feeling any better? and what are you doing for yourself just curoius anything new?

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It's going to take until summertime to get better if at all and I still don't know if I'll be 100%, or close. This is how bad these drugs affected me and it doesn't help to live with my parents.

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Re: Ruth (# 198)

I'm doing ok, thanks. I do intermittent fasting everyday, fasting is good for the brain. I fast for 20 hours everyday and eat my food in 4 hours window, pretty much I eat once a day. I can't pay attention to my diet like before but I try to eat clean. I drink 4 and half litres of water a day... I do water therapy where I drink 2 litres of water every morning after waking up and then I wait an hour and a half to have my food. I also supplement with probiotics, zinc, magnesium, copper, selenium, biofolate, vitamin e, & omega oil. I'm functioning fine now tho I stay awake at night, and sleep in until the evening. It's a struggle. Vitamin c is helping, I might start going to the gym so I can socialize.

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Some people are not improving even after a year off, that's depressing. I will be a year off in 4 months. Do people ever recover from this? Ruth, do you know any success stories of people recovering?

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Anyone ever recovered from this nightmare? I see no hope even at a year off. Who invented these drugs? No humanity. The people can be treated with vitamin b, simple, but no they are inj. people with this these shots putting people on antidepressants, antipsychotics. 8 months is a long time, and here I've been off for that long, yet no improvement. My memory is so bad I don't remember who I was as a person and what I stood for in life. Please, someone, tell me it's going to be alright. My parents aren't helpful, they don't realize what I'm going through and they tell me I'm fine. I stay awake the whole night and go to sleep in the morning just to avoid them to make this hell easier, otherwise it would be impossible for me to get through.

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Re: Sandh (# 201)

Sorry Sandy I can't say I do, when my daughter started on these meds she seemed OK but when she went off cold turkey after 8 month at first she was normal mood her thinking and all she enjoyed life then just one night out of the blue this schizophrenia came about so off to the emergency room she went and to all these other Dr's that placed her back on the pycotic medicine again but this time a higher dose every sense she has been going down hill that's why I want her off of this medication completely but of course these pychatrist think they know what's best when they don't have a clue about the individual well being and what's best for them all they know to do is keep us on these meds to suposeablly manage are symtoms rather then to cure it and send us home for our loves ones to deal with the pain and suffering deal with so my theory is get to know as much as you can and try cure yourself cause nobody knows more about you then you and what your experiencing so do we want to realy on some pycotic medicine the rest of our lives feeling hopeless or try cure are self I guess everyone has to choose for themselves all I know is my daughters been struggle sense the day she was born being born early and she didn't deserve what she's been through its time for life to get better for her she's a beautiful young lady that means the world to me and I'm not given up on her she's my best friend next to god himself whom gives me all my strength to endure everything I've been dealing with so just a word of thought from me to everyone out there struggling with medicine don't put your trust in these Drs.but yourself and god himself thanks god bless

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Re: Sandh (# 174)

I'm here if you just need someone who cares. I do understand the extra stress doesn't help. My life hasn't been easy either, I've been through a lot for being 45 years old. I'm so glad I came across this website. I don't even know how I did. It must have been meant to be. Take care. You're not alone.

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Re: Ruth (# 203)

No faith in drs, they ruined so many lives, they make people zombies. We are all better off sticking with niacin and vitamin c. I think the brain needs supplements to come out of this mess. I guess i should take one month at a time until summer time. I never consented for the meds or inj's... It was my parents who signed the papers and I was forced to. We know what to do with all the information by dr abram hoffer but the thing is how undo the damage that's done. I'm sorry to hear your daughter been thru so much, she's probably feeling just like me numbed emotions and all, you're a great mom keep going, read books on orthomolecular medicine and treat her yourself rather than taking her to docs. That's what I would do if it was my daughter, or my family member. And I would do the same thing for myslef but the damage was already done by the docs by the time I found out the truth about antipsychotics drugs.

I know how to treat myself with vitamins, I don't need any docs help. But the damage done I don't know how to deal with this.

It looks like 1 and half years to recovery, I only had 3 months of meds and 4 inj's. And these drugs messed me up. Read as many books as you can on vitamins and health.

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Re: Ruth (# 203)

You're an amazing mum, thanks for listening to me complain... I hope your daughter recovers. Read as many books as you can about orthomolecular medicine. Just keep her on vitamin c and niacin. Treat her yourself. Docs can only damage people.

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Re: Ruth (# 204)

Thank you Ruth, means a lot. I'm sorry to hear that you been through so much in your life, it's probably as tough on you as it's for your daughter and as a mother it's hard to see your kid suffer. I pray that your daughter recovers and never have to do deal with the illness again. If it's alot for you to handle, why don't you see an orthomolecular doctor, he'll just put her on right dosage of vitamins I'm 31 I wish I recover from these drugs so that I can get on with my life and move out of my parents place

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Re: Edouard (# 14)

hi Edouard did you take anything to help yourself along? any vitamins ?

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Re: Sandh (# 207)

Thanks means a lot never heard of a Orthomolecular Dr. before but i will look into it do you know of any in the area?

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Re: Ruth (# 209)

No, where are you located? I'm close to Toronto. How's your daughter doing?

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Re: Sandh (# 206)

thanks your not not complaining but we all need someone to hear our voice when it comes to this medication especially those that are out there going through and don"t have a clue what there getting there self into cause these psychiatrist are not gonna tell us what we need to know they make it sound like its just a few side effects when that's not the case its a lot more damaging then what there telling us they get paid to keep us unknowledgeable about the real effects of these medicine so that they can keep us on themand make us believe that were crazy, but for me especially after what i"ve been dealing with its my pleasure to tell all that i know cause i don't want anyone going through what Im going through so dont feel like your complaining this is your life and you have the right if something not going right with you so dont give up i may not be a dr but i do know what its doing to my daughter im around her 24/7 and shes not the same and i will not give up i will fight for her to the end

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Re: Sandh (# 205)

how old are you? if you don"t mind me asking there is something called parental guardianship someone could take over guardianship meaning they would have all say so on what happens with you you just have to get a attorney some people just have to much trust in these Drs. and psychiatrist

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