Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 3)

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.

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REPORT

...AMEN TO THAT
YOUR PHYSICIAN does want to help....
Political views...stay out of it!

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Re: Barbara (# 40)

There is nothing wrong with fighting. But, this fight is not new. It has been going on for many years. And look where it is now.

The only ones that could make a difference have been and continue to be silent.

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NO MATTER WHAT YOU DO YOU ARE NOT GOING TO STOP PEOPLE FROM GETTING OR ABUSING DRUGS!!! THE ONLY THING YOU ARE DOING IS HURTING PEOPLE THAT DO NEED THE MEDICINE!!!! NOW THOSE PEOPLE CAN NOT GET ANYTHING THAT THEY TRULY NEED!!! THIS IS JUST UNREAL, I WENT FROM WALKING BACK INTO A WHEEL CHAIR, SLEEPING IN A RECLINER, AND ALSO SITTING THERE ALL DAY! I CAN NOT EVEN CLEAN MY HOUSE NOW AND CAN NOT AFFORD ANY HELP WITH ANYTHING!!! AS I SAID YOU ARE "NOT" GOING TO "MAKE" PEOPLE GET CLEAN!!! I HAVE NEVER ABUSED ANY THING IN MY LIFE, NOW I CAN NOT GET THAT ANY LONGER, SO THANK'S A LOT TO OUR GOVERMENT AND TO TRUMP!!! HE NEED'S TO BE IMPEACHED!!! TRULY PAIN PAITENTS NEED THEIR MEDICINE AND CAN NOT GET IT!!!

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Re: PAM (# 43)

I couldn't have said it any better. It's people like that, that are hurting people like me. Getting and abusing drugs has been around for so so many years. They have to want to stop getting them and abusing them.
Until they do this will continue for a long long time.
Best wishes.

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Re: PAM (# 33)

I live in Akron Ohio and I have a great pain doctor. I've never had any issues so far. So I'm glad I have a doctor that has a set of balls.

Thank you Doc.... ????

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I agree 100%!!! I know there is a problem with people abusing pain medicine, but the government is not going to stop it, no matter what they try to do!!! An abuser is an abuser!!! They are going to abuse it no matter what the government does, or try's to do, they will just go to the street's and get it! In the meantime, the people that really need their pain medicine cannot get what they "Really" need just to live a 1/2 way normal life, even then most still can't, but it does help "a lot" but the ones that really need it cannot get what they need! That is not fair to have to live this way every single day!!! If someone in government would need it, I guarantee they would get what they need while the rest of us have to "suffer" day in and day out and that is not only not fair, it is about as low as someone can get!!! I do not and never have abused any of my pain meds, but they took me from 80 mg down to 20, and from 30 mg of another down to 7.25 mg. Now all I can do is sit and sleep in a recliner!!! This is as low as low can get! When I had what I "needed" I could at least have somewhat of a normal life, now I am totally housebound!!! Do you call that "fair"? Well, it's not!!! Why cant the government stay out of what doctors "can" prescribe?!!! It is really none of your business!!! Medical situations should stay between a patient and their doctor and the doctors should be able to prescribe what their patients "really need"!!! Take care of all the school shootings and government business and stay the ____ out of a doctor and patient relationship, as it should be!

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I believe also that we need a stronger voice at the Nations Capital for lobbying. Please keep me posted as to what needs to be done.

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Re: Ed (# 20)

I hurt 24/7, 365. What has happened to our health care systems?? Why, why, why, why?

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Re: Ed (# 20)

I hurt 24/7, 365. What has happened to our health care systems?? Why, why, why, why? What Statesman/woman is going to stand up and help us stand up for our basic rightvto decent health care? Lord, my cats live more pain free than I do! Comr on now my fellow Americans. Right is right. Shame on you doctors that don't stand up for us. You took an oath just like I did when i joined the service. . I can't go back on mine, but you can?

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Re: Bobby C (# 49)

Ed

Colleen - I hurt all the time 24/7; 365 days a year.

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Re: Grangerl (# 47)

The citizens that get heard at their State Capitol and beyond begin by finding an existing group or start their own. Starting with family and friends a letter and telephone campaign is productive as you decide on a strategy. Recruiting in places where you would likely meet chronic pain affected people can lead you to group visits at your State Capitol and appointments with your Representatives with media invited. Creating social media groups and pages gives more voice to our situation. Some of us are limited in our activity level, however we can all contribute in some way to control motivated war on chronic pain patients.

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Where in the West Hartford, CT area are there doctors who are willing to take on new patients for pain management? Hartford Hospital and their satellite office at Blue Back Square are not taking new patients.

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Re: Hop63 (# 50)

I understand. I hurt 24/7 and even with my pain Meds it can over ride and hurt so bad. Take my Meds away and I have nothing to live for other than more pain. I have tried coming off of them but the pain kills me and I go back on. I take 10/325 hydro and 30 Hysingla. The Hysingla was to take the place of OxyContin which was not working for me. Now the Hysingla isn’t working that well. Now i don’t know but will discuss it with my pain specilist next week. I’ll let the group know the outcome.

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I agree with you whole-heartedly. We have to get into action, immediately. We need to relentlessly contact our legislators, the news media, and form committees which include lawyers, doctors and other health care professionals to fight fire with fire. But we have to stop complaining and actually do something. Everyone of us has a horror story. Let's put them to use by getting them to the correct people.

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I had to change doctors, due to insurance, but when I did go to him, I could live a fairly good life! there is NOTHING going to stop the people that abuse med's!!! ALL IT IS DOING IS PREVENTING THE ONES THAT REALLY DO NEED THE PAIN FOR THE PAIN RELIEF CAN NOT GET ANYTHING!!! THIS IS NOTHING BUT BULL!!! WE, THE PEOPLE THAT HAVE REAL PAIN CAN BE CONTROLLED, IF IT WAS ALLOWED, BUT IT IS NOT ALLOWED ANY LONGER!!! I HAVE 'NEVER' ABUSED ANY OF MY MEDICATION, EVER, BUT THANKS TO THE GOVERNMENT STICKING THEIR NOSE WHERE IT DOES NOT BELONG, IN OUR MEDICAL CONDITIONS, IS NOT RIGHT! IT IS JUST PLAIN WRONG, NOW WE HAVE MILLIONS OF PEOPLE THAT DO NOTHING BUT SUFFER AND THE GOVERNMENT JUST DOES NOT GIVE A DAMN ABOUT US AT ALL! THIS HAS COME TO A POINT WHERE I WAS OUT OF MY WHEEL CHAIR AND WALKING, NOW I'M BACK IN IT, CAN NOT SLEEP AND STAY IN PAIN 24/7 WHAT RIGHT DO ANY OF YOU HAVE TO TELL A DOCTOR WHAT HE CAN MAY OR MAY NOT GIVE TO SOME ONE IN DESPERATE PAIN? NONE!!! ONE DAY YOU MAY ALL GET SICK BUT I GUARANTEE YOU THAT YOU WILL GET WHAT YOU NEED!!! HOW UNFAIR IS THAT!!! IT IS NOT RIGHT OR FAIR TO US THAT HAVE PAIN NOW!!!

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Re: Barbara (# 40)

WHERE AT IN HAMILTON, OHIO? THERE WAS ONLY 1 DOCTOR AND HE IS NO LONGER IN PRACTICE!!! WE NEED HELP IN HAMILTON, OHIO TO BE ABLE TO GET WHAT WE "NEED", NOT WHAT WE "WANT, BUT WHAT WE NEED"

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I totally agree with you. We are being treated like a drug addict. I hate to say it but I can’t wait for someone in the government get denied when they are in pain.

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The only thing this drug war is hurting are the people that truly need pain meds and can not get them!!! I 100% guarantee that if anyone in government was in pain, they would get what they needed, no question's asked! Not even 1 person that uses drugs just for the hell of it is going to stop, they will find a way to get what they want!!! In the meantime, the people that do not abuse drugs, such as myself, with legit pain and all the diagnostics to back that up, has to suffer due to this, but we can not get what we need just to live a 1/2 way normal life, we are forgotten about, not cared about and told even at these so-called pain management doctors, they can not prescribe what we truly need, that they are not allowed to prescribe what is truly needed!!! Just go home and suffer!!!! I am only 57 year's old, this is not fair to us that do not abuse anything we need!!! I would like to see someone in government that truly need's pain relief be told "No" , which would never happen, they would get what they truly need, but to ____ with the rest of us! This is unreal, uncalled for, and normal people are just as good as anyone in the government and are entitled to the same treatment that they get! All you are doing is making us suffer until the day we die! One day someone is going to be in our place, and as I said, they "Will" get what they "Need" but we can't, this is so wrong it is not even funny! Drug addicts will find their drug's, that will never be stopped!!! They will always find it somewhere, while we can not get what is truly needed due to those people!!! This is wrong, unfair, and downright cruel to us, the ones that truly need help and can not get it!!! Why don't the government just stay out of doctor, patient relationship's and let us get what we truly need?!! It is not right that we should have to suffer while there is nothing that can be done with the people that abuse it, until "They want the help".

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SIGN ME UP. IM SUFFERING HORRIBLY. Was taken off MS Contin which I had been on for ten years. Now have nothing. I have multiple sclerosis, neuropathy, failed back surgery, brachial nerve damage and pain, fibromyalgia....and I’m just saying a few. I’m in such terrible pain, I’m desperate.

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Re: BL (# 39)

Hi. I just came across this post and realize this thread has been inactive for awhile. I was hoping by adding a comment we could reopen this discussion as the situation continues to get worse by the day. Patients with chronic pain are being denied the meds that kept them functioning for several years. Doctors are under scrutiny for the amount of prescriptions they write, pharmacies are limited to the number of controlled substances they can order and distribute. Pain management doctors are suddenly turning against their patients because they fear investigation. No suitable substitutes are offered. Soon there will be an epidemic of chronic pain patients going into withdrawal and possibly suffering heart attacks and strokes. Obviously we need to advocate for ourselves because the government sees us as part of the problem in the war against drugs. We are treated the same as those that use controlled substances recreationally. We just want to maintain some quality of life. Anyone else want to get this thread active again?

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