Cellcept For Cidp

I have started taking Cellcept for the treatment of CIDP. I am interested in knowing if anyone else is taking cellcept for CIDP and what kind of results they have had.

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I started taking it 3 week ago for CIDP...My Neurologist told me that it could take up to 6 months to started working.

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I have cidp and am on prednisone right now, My neurologist is going to add cellcept next month and I am wondering how it is going for those already on it.

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I have been on cellcept for over 4years. I am now having a number of issues that are believed to be associated with it!

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CellCept contains the active ingredient Mycophenolate and is used primarily as an immunosuppressant for organ transplantation.

Some of the most common side effects associated with this medication include: increase susceptibility to infection, leukopenia, anemia and fatigue.

You can read more about the medication here:

https:/­/­rxchat.com/­wiki/­CellCept/­

Is there anything else I can help you with?

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I have CIDP and am on Cellcept, but my neuro said it takes 6 months to kick in.

I am on so many scripts I am not a happy camper

email me if you would like jasonscamera at yahoo

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I have been taking cellcept since June of last year for CIDP. It is one of nearly15 different medications I take for the condition (including IVIg and prednisone). The good news is I am getting better instead of worse, but I also worry about the long term side effects of all my medications.

I am always glad to meet/ttalk with others who have CIDP or are taking the same medications. Please feel free to email me at mwilliams1220 at gmail dot com.

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Just diagnosed w/CIDP. Am getting IVIg & on Cellcept. Just wondered how long for these to start working...Only had one IVIg & it's been about a mo. since we started treatment..

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My son was diagnosed with CIDP 4 months ago.IVIG is totally effective as a treatment but he relapses after 2-3 weeks. he has been prescribed cellcept but he is worried about taking it after reading side effect leaflet. Has anyone any experience on this to share with us please?

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I have just started cellcept. Was diagnosed over 10 yrs, ago with CIDP. I have been on IVIG, prednisone, methotrexate and now this. The IVIG stopped working and I had two incidences of menengitis. Prednisone no longer works, and couldn"t tolerate methotrexate after becoming very ill with infections wwhile on it. Keeping my fingers crossed(if I could) and trusting God.

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My husband did real well on Rituxan. He had to stop it after 3yrs because he has Kidney disease. He is now on cellcept. He is still able to walk about 150 feet then he has to sit. But Rituxan took him from bedridden to a cane in 3yrs.

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Hello,
I saw one of your posts and decided to take you up on your offer to discuss CIDP. My husband Sam (who is 47) developed CIDP a year ago and has already tried IVIG. We are now doing plasma exchange and he is taking CellCept. He did one round, or 5 treatments, of plasma exchange recently and though we see a slight improvement in his balance, he is still struggling with a lot of pain in his legs and feet, heavy legs, etc. CellCept is hard on his disgestive system, but he continues taking it as we understand it may take months to really reach its maximum effect.

Just last summer he was jogging and playing basketball, so this is obviously very frustrating for him.

Can I ask you how old you are and how yours began? Do you have some good advice for him re: other treatments he can explore or drugs that help to minimize the discomfort?

Did you try any homeopathic treatments..vitamins..herbs?

Thanks so much or your time. I hope you are doing well now.
Traci

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Is there any drug interaction with cellcept and immuplex and emphaplex supplements.

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Am on predisone. infusions of 2 years left me unable to have infusions anymore. Body building antibodies against treatment. About to start cellcept for my cidp. Also have Myasthinias gravis. Hoping it will help with this also. Feel free to email me {edited for privacy}

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Hi am 47 and been diagnosed with CIDP I also have diabetes, my Doctor put me on cellcelp I'm scared to take it from reading the side effects. I had a round of plasma treatment 5 cycle. Ivig didn't work for me I got meningitis from it. I'm terrified to take this cellcelp but I also want to live.

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