Beware Of Starting On Fentanyl.

Five years ago I was prescribed the Fentanyl patch for a rare autoimmune disease that literally destroys your shoulder and hip and thigh muscles. The highest I've ever gone is 100mcg. For the first two years I was in heaven. No pain. But something else started happening. Yes, it numbed the pain but it also numbed every other emotion. No libido. No desire to be with friends or family. No desire to do anything but lay in bed and watch television. I would dose off in the middle of a conversation. I was also on very serious DMARDS which caused me to throw up, lose hair, etc. And like most of you, there were several times I lost a patch, or put one on too soon, etc. and ended up in withdrawals until I could get the new script from my PM doc. The worst withdrawals EVER. Three months ago I went into remission and immediately made the decision to come off the patch. I weaned down from 50, to 25, to 12.5, to Norco 5 in about six weeks total. I am now at the three week mark and down to 1/2 Norco 5 twice a day. I still feel terrible. The worst has passed, the creepy crawlies, can.t be still, the sweats and chills, the urge to jump, stretch, jerk, the sneezing, yawning, watery eyes, and the smell of it coming through my pores are for the most part over. But the pain in my legs and back are killing me, Nothing helps and I have tried everything recommended on this site. I still have no energy and I'm soooo depressed. My legs feel like they're encased in cement. The one thing that helped the restless creepy crawlies was Lyrica. I had to take a very high dose and it literally turned me into a drunken zombie for three days but at least I could sleep. Clonidine for the sweats. Trazadone to help with sleep, too. But some nights nothing worked, I was still wide awake, twitching and jerking but exhausted and just zoinked out of my head while doing it. If you can get a muscle relaxer and something like Klonopin, those help too. But the sad truth is, you just have to get through the worst of it. And it is hell. I've started walking and lifting very light weights. My doctor said it might take three to six months before all of the withdrawals go away. If you have any other option, do not start the Fentanyl patch. It is a hellish roller coaster ride I NEVER want to get on again. I also think it is very, very important to mention that if you wear a Fenanyl patch and have surgery, your pain will NOT be controlled post surgery by them adding a Norco 5 or even Oxycontin. To steal from another poster, those things are like Tic Tacs compared to Fentanyl. Unless you are end stage, please try every other option. I realize sometimes Fentanyl is all that works. It was the only thing that worked for me. It was a life saver actually. But then it turned into a killer of life. No one deserves to suffer needlessly. Just be very, very careful.

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I'm sorryto hear about your problems, my wife deceased husband had problems these patches and so did her sister, what autoimmune disease do you have?

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