Azmacort Substitute (Page 16)

Azmacort has been taken off the market because of environmental concerns (they say). There really is NO substitute. All other steroids do not work. My wife could die because of it. No one seems to care. Do you?

REPLY

REPORT

Thank you Jack.

REPLY

Was this helpful? 0

Hi All,
I thought I would check in and see if anyone was still around. I'm still using Alvesco so far it hasn't hurt me . But it doesn't seem to be doing any good either , or maybe a little..
I was sent this today.

AZMACORT, TRIAMCINALONE

Acton Pharmaceuticals,Inc. announces License agreement with Sanofi ( Drugs) Company's pipeline includes two NDA stage respiratory compounds that compete in the multi - billion dollor allergy and asthma steroid markets Marlborough ,Mass. Oct. 25, 2011- Acton Pharmaceuticals,Inc.

This is all it said. If you hear any more about this would you keep us informed.

How is everyone else doing with their medications?

REPLY

Was this helpful? 0

Margie - I will be anxious to learn more about this new development. I am still taking Dulera, which I have noticed has recently been getting some ads on TV and in magazines. It seems to work "okay", but I still get occasional infections from taking it, which NEVER happened to me while taking the Azmacort. Fall is one of my worst times for asthma-related issues and have been having a little bit of trouble lately. Haven't had to resort to Prednisone tablets yet, but may soon. Hope this finds you doing okay, too.

REPLY

Was this helpful? 0

Dear Susan and Margie:

Here's what I found out from the president of Acton Pharmaceuticals, Inc.

Dear Mr. Ragan,

Thank you for your inquiry. Acton Pharmaceuticals is completing the development of Aerospan (flunisolide hfa 80 mcg). AEROSPAN is formulated with a non-CFC, HFA propellant and will be available with a built-in spacer device. We expect that the product will be available in the second half of 2012. Please check our website for additional information on Acton (actonpharmaceuticals.com) and Aerospan. Acton does not have any rights to Azmacort. Therefore we are unable to provide any information on its status.

I hope you find this information helpful.

Jack

REPLY

Was this helpful? 0

I still take large doses of steroid and then get off and ok for about a week and then I'm right back to where I was . I can't breathe. The new med ALVESCO seems to help a little but not enough to keep me stable. I think it is on the order of the new drug mentioned by the Acton company. It uses a spacer and you don't have to shake it , so it is probably a powder. I take 5 mg of steroid one day and 10 mg the next day , everyday. Then when I have a bad flare up I go to 20 or 40 mg and do a taper.
Please keep praying for our health and also for a drug that works if a cure isn't in the future.
Blessings to all,

REPLY

Was this helpful? 0

Jack - I am now WAY more curious than I was before! Why would the president of this pharmaceutical company react so strongly to you sharing his email? I certainly didn't assume that it was anything of a "confidential" nature! I think I need to do some investigating on my own regarding this company! Very interesting development, in my humble opinion.

REPLY

Was this helpful? 0

Susan:

He is not reacting strongly at all. He is a very kind and understanding person and assures us that his company will continue to develop products that may be greatly beneficial to those who suffer as many of you folks are. He just wants to be identified as we all are; - anonymous as to his position in the company and as to personal information.

It was my goof,not his. Please understand that.

He gave me this link for more information on his company for public distribution.

actonpharmaceuticals.com

Jack

REPLY

Was this helpful? 0

I found this thread yesterday and read the whole thing. Like many of you, I took Azmacort for about 20-years, and was shocked when I took my prescription to the pharmacy and was told it was no longer available. My doctor has given me several "substitutes" - none of which work.

I've been very sick this week, going to work and coming home to collapse in bed. After reading the suggestion to use a spacer, and to use an old Azmacort dispenser with one of the new meds, I searched my place for an old dispenser. I found one - pulled out the old medicine and noticed that it was not empty. I took two puffs of Azmacort and within 15-minutes, I could breathe again.

This banning of effective medicine is outrageous - it's time to do something about it. I've been a journalist in the past, and I plan to write some articles about our problems. If you are willing to share your stories with me, email me at productions-at-johnesimmons.com, replacing the "at" with @. My linked in profile is here: http://www.linkedin.com/pub/john-simmons/7/b0/32

REPLY

Was this helpful? 0

John:

Um - - - what sort of stories are you interested in?

I think if you concentrate of the tragedy, and because all of these entries have been printed and therefore assumed to be public property, you could scan through and pick out any you desire without fear of trampling on injured souls or incurring legal action against you.

If you wish to concentrate on a brighter outlook, you might be interested in reviewing entry number 307 wherein you will find at the bottom a link to Acton Pharmaceuticals. If you go there you will find an entry in the upper right-hand corner under "Recent News" another link that will take you to an announcement signed by the CEO.

It could be that you would get more from him that would be more productive than from any of us. We are just the sword-carriers in this Russian opera. The CEO has been engaging in the past when I wrote to him. He expects that everything will be done next year and we all may find the relief for which we have been looking

I am not personally afflicted with asthma but whatever you wish from me just ask and it is yours.

Another source of information could be the Administrator of this web-site. He is very astute and accommodating.

And,- -- -John - - -thank you for your interest.

Jack

REPLY

Was this helpful? 0

I would like to know why NONE of the companies will make a new drug using Triamcinalone since that seems like what everyone needs here. All the other drugs in the market use the same old ingredients just a different name and maybe different way they are put together but still the same OLD drug. I have started to have some chest pain whenever I move on my left lung the same way it did with the QVAR 80 except it is a little different. I wonder what these drugs are doing to my lungs? There have probably never been any test done in this area if so they never tell. I sure hope this is something else because this drug is helping a little.I would sure hate to stop taking it and go back to 60 or 80 mg of steroid a day. Is anyone else used ALVESCO yet?

REPLY

Was this helpful? 0

Margie:

I wish you were not suffering so.

The product that Acton is developing is Triamcinalone Acetonide. Here is the title of the document I was alluding to in post number 309:

"ACTON PHARMACEUTICALS, INC. ANNOUNCES LICENSE AGREEMENT WITH SANOFI U.S. FOR NASACORT HFA™ (triamcinolone acetonide) NASAL AEROSOL "

I would give you more but it is a 3-page, PDF document. If you cannot get PDF documents on your computer, let me know and I will try to excerpt some information to you.

Jack

REPLY

Was this helpful? 0

Jack this is for a nasal spray for nose allergy. The one for the lungs is flunasone or something like that I don't remember the spelling.But it is listed in the write up. Check and see if Iam right I hope Iam not.

REPLY

Was this helpful? 0

The spelling for the drug I was talking about is Flunisolide, not Triamcinalone.

REPLY

Was this helpful? 0

It looks like Aerobid M has flunesolide . I wonder why they are trying to market a new one.

REPLY

Was this helpful? 0

whops! flunisolide not flunesolide

REPLY

Was this helpful? 0

John I went to your address and it was a little over whelming. I really didn't want to log in to another site I just want to leave you a message. So I guess I'l say it here. I WISH you or someone would HELP us. We all need it so much. I have written to the President, EPA, Jewish Hospital, CDC, FDA, Doctors, I even got the doctors to write letters, Abbott Pharmacueticals, the Lung Foundation, and other pharmacuetical companies to let them know what the problem was that we were having, asking them to invent something that works. I can't think of all I have written at this time Iam a little upset because once again I have to get really sick from taking ANOTHER one of the drugs out there. I was having such chest pain that I could barely stand up and walk, it didn't hurt a lot when I would breathe but if I moved it hurt really bad,so once again I had to stop taking the newest drug I have been taking ALVESCOXNACTY and Iam so sad and upset that all I can do is cry and pray. I have just gotten over the shingles probably from all the worrying I have been doing about no medicine to keep the inflammation down. So if you can write a story or if you can exert some kind of pressure on these people that are just out for the money or saving everyone's air except why do we need clean air if we can't breathe? Please do something if you can I would really , really, really, apppreciate it with all my heart and BREATH.
Blessing to you,

REPLY

Was this helpful? 1

I wish I still had an old spacer and a little bit of the Azmacort left to use, but unfortunately have neither. John, I have tried several different medications since Azmacort was discontinued, all with some side effects. I am currently taking Dulera, but while I am tolerating it, it still works nowhere as well as Azmacort did. I would give just about anything to get it back. Due to heavy winds in my area on Friday and Saturday, I have lost my voice, am coughing, and have tightness in my chest. I had to start on a prednisone regimen once again today. By the way, I was recently informed by my eye doctor that I am prematurely developing a cataract in one eye. He told me that corticosteroids are to blame. My insurance won't cover Dulera because it isn't on their formulary, so I have to pay out of pocket for it every weeks. Bring back Azmacort!!!

REPLY

Was this helpful? 0

The message I wrote #316 should also be directed to Susan too, or anyone else out there that could help us. If I lean on the counter so I can breathe it hurts really bad when I try to stand up straight. I guess I'll start on large doses of steroid but I don't know how much to take since the doctor kind of leaves it up to me. What the heck do I pay them for, oh yes that would be for their signature on the prescription. Since I didn't go to school to learn to sign my name on prescriptions. Yes Iam a little pissed.

REPLY

Was this helpful? 0

Margie - the only time in my life I've had an issue like the one you are describing (where it hurts to breathe and stand up) was when a bout of pneumonia had left me with a partially collapsed lung! It took 6 months of constant antibiotics to get it to reinflate. If it hadn't by the end of the 6 months time, I was going to have surgery to have it reinflated. Make sure your dr knows what your current symptoms are!

REPLY

Was this helpful? 0

Well today I was able to walk across the room with a lot less pain than before. This is a slow process. But Iam getting there. I really don't want to take the drug again just to prove to everyone that it is the inhaler, but I guess I will have to just to prove it.But Let me tell you I will wait a while first because this has been NO FUN. And I would love to know what damage it has done to my already damaged lung. All I have left to breathe with is 10%. PLEASE!!!!! keep me in your prayers.

REPLY

Was this helpful? 1

Are any of the meds with same formula as Drixoral available anywhere? (Desihist SA, Dexaphen SA, Dexophed, Disobrom, Dis...

136 REPLIES

My Dad is taking Tramadol in place of Darvocet. He took Darvocet for 20 years no side effects, now he is taking Tramadol...

46 REPLIES

Hello: So I just got something from my insurance company telling me they no longer will pay for oxy 20 or the generic..w...

16 REPLIES

My neurologist prescribed Oxycontin 20mg 3xday. I can only get brand. I have been taking it for months and doesn't h...

15 REPLIES

IS THERE A SUBSTITUTE FOR MICARDIS HTC THAT IS CHEAPER AND STILL WORKS AS GOOD. ## Micardis HCT was only approved for us...

11 REPLIES

What is a substitute of Qudict? ## There is a tablet name ADDNOK-N of rusan pharma of same combination to qudict. Or u c...

10 REPLIES

I think that I have developed an intolerance to nitro; is there a subsitute for angina? ## Does anyone know of a substit...

8 REPLIES

I am suffering from various muscular cramps along with bowel cramps, so my doctor has advised me to try spasmo proxyvon ...

7 REPLIES

Are there any other drugs that can be substituted for neurontin for neuropathy? ## Have been taking Lyrica for 3 years f...

5 REPLIES

Please suggest an alternative medicine for Zincovit tablets as they are unavailable where I live in Jammu city (Jammu &a...

5 REPLIES