Ampyra Headaches (Page 2)
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I have been taking Ampyra for 4 days. I have noticed a decrease in fatigue but headaches daily. The question is will they eventually go away on their own, or do I skip a day and see if they stop or quit til I see the doc ?

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thank you all for the feedback, it is highly appreciated!

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I discovered the side effects of Avonex became increasingly worse with the number of years I was on it (12 almost 13 years) and age (I am now 53) made it even harder. I am having a setback right now but it could be a number of things. Like you have heard - the first few months seemed great but now I wonder. I have not seen anything great like walking alone or running but like was already mentioned everything works differently for everyone. My brother takes Copaxone and his son is now taking the new oral Rx. Yes, it runs rampant in our family.

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hello, I want to ask if u have up and downs with walking imrovement while on Ampyra. What other MS drug do u use?
Iam on Betaseron for more than 2 yrs and wants to try another one because I feel the progression since i restarted Betaseron. Might be coincidence, but.....
thank u for any inputs.

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I have been on Ampyra since the first of June. I have had a lot of improvement, walked a half marathon with my daughter last August, could not have done that before. I am on Fentynal, and Percocet for back pain and have not had any problems with those either. I think I am still improving, harder to tell in the winter but I will definitely stay on it. I was dx. in '96 and this is the only MS drug that I can tell works, the others, I don't know, but do comply. Good Luck, just remember all the drugs work differently for all of us.

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The headaches for me go away after a week. I went back on Ampyra because the sudden pain didn't subside. To the person who had trouble with cough syrup, I had a cold and took Nyquil for 2 days - my pain went away. Since then I have taken Lortab, hydrocodone, aspirin and Midol to relieve the pain also Doan's pills. Nothing works for more than a few days. I had an exacerbation when I stopped taking it that is why I am back on it. I need to call the doc but we are in a blizzard.

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Hi my doctor wants to prescribe this to me but I am curious since it is so new. How long have you been on for and do you notice any improvements? I read in other people's comments that after 3 months it seemed to stop working. It sounds great in the begginning but not so great after. Can someone please give me feedback? I would love to walk normal again as I have two young children.

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I have taken vicodin and tylenol while on ampyra, due to back pelvic bone pain. it seemed okay...my pain kind of resolved after day 4. it's the cough syrup i took later on that i had a problem with ampyra.

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I have been on Ampyra for a little more than a week. I also have upper back pain (more like stress near my shoulder blades). I would like to take Ibuprofen PM or Advil PM but do not know if I can take those two while on Ampyra.

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I have been on Ampyra for months. Had to take a break while I was in hospital having my colon removed - then 17 days of in-hospital rehab because of complications of surgery. Absolutely no pain in hospital (even after I quit the drugs). Now that I have been back on Ampyra for 4 months pain in absolutely every joint in my body is occurring. Anyone else see this? I don't know what to do! Because of my situation - surgery - rehab - in-home
rehab - I don't know if it helps or not! I have PPMS and not taking any other MS drug. Took Avonex for 13 years.

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I was an ampyra for 2-3 weeks and it worked super. I was walking great. Then it stopped working. I am not sure if I stop taking meds and begin again if it will have the same effect. What did you do?

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Yes, I stopped after the pain experience but picked up again a month later. No problems and its been 3 months. I am also seeing some greater strength in the legs.

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Joe,
How are you doing now with Ampyra? I just started and on day 7 today. Please give us an update. Thanks

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I have been on Ampyra for 7 days. I did have the back pelvic bone area pain for the first 4 days. It is almost untolerable to walk on top my weak legs and tingling legs. I took some pain med with some relief. I noticed some dent on stamina and walking speed. I still drag my legs on certain occasion, so I will keep monitoring. (RRMS - Dx '97).

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I have been on Ampyra for 7 days. I did have the back pelvic bone area pain for the first 4 days. It is almost untolerable to walk o top my weak legs and tingling legs. I took some pain med with some relief. I noticed some dent on stamina and walking speed. I still drag my legs on certain occasion, so I will keep monitoring. (RRMS - Dx '97).

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Has anyone tried stopping meds for a short time and restarting again to see if they have the same effect they had when you originally started taking meds?

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Zinolivia, are you taking ampyra now?

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Zinolivia are you talking ampyra now?

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4 days on Ampyra after 20 years MS (now SP).
walking bettr. fatigue better. hnd dexteriy MUCH better. and SWEATING for first time in many years

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I am SPMS - can use a walker for limited distance and a power scooter other times. Started first week on Ampyra with one pill at night then went to two pills (morning & night from week 2 - 4. I was feeling improvement in my legs and week 5 began some work with a balance beam and fence walking, but this weekk got hit with severe lower back pain! I do have some spinal stenosis (slight hump curvature). Stopped taking it and after 3 days began to be able to move again and pain diminishing. At its worse I could not even stretch my legs or rollover the bed - fell out twice. Have there been similar experiences?

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I have been off Ampyra for just over a week. I ran out waiting for my doctor to get back in town and authorize continuing on the drug. I realize it was doing something as I am getting stiffer everyday I am off of it.I think when you feel better you forget how bad you were before. I am hoping to be back on soon.

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