Ampyra Headaches (Page 3)
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I have been taking Ampyra for 4 days. I have noticed a decrease in fatigue but headaches daily. The question is will they eventually go away on their own, or do I skip a day and see if they stop or quit til I see the doc ?

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48

I have PPMS and am in a chair. Have been on Ampyra for 2 months and can tell a difference when i'm on it. Not as much walking but feel more confident when I do stand. I don't have as severe of tremors in my arms & hands. When I don't take it I can really tell, Very fatigued, tremors, wobbly when I stand. I hope my insurance will help me out again with the cost.

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47

Has anyone noticed that ampyra worked at the beginning and weeks later seems like it is no longerworking?

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46

This is my third month on Ampyra. I felt better immediately but like many of you in the third month I feel a bit worse. I did develop a UTI and it sems to have exacerbated my symptoms. But I LOVE AMYPRA and am afraid to stop feel that maybe I'll get back to how I felt the first two months. I was able to put IV's in patients again and could feel my fingertips and toes again. I had more energy and I frequently would forget my cane ony to look for a few moments later and laughed as I went to find it. But now...I wouldn't think about walking away from it, Again I hope with the resolution of the UTI I will feel better again.

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45

I also had HA,'s that lasted a few days. This is my second week.

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44

I have been on Ampyra for about 3 months now. The first few weeks it seemed to be working but now I am not so sure. I feel like I am back to how I was before. I am afraid to stop taking it in case I have gotten worse and this is at least keeping me where I was. Anybody else improve and then go back?

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43

HSS0514-I have been on Amprya for 1 month and have only seen a very very slight improvement. what tyoe of MS do you have? I hae SPMS.

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42

kms i'm so so happy for you, have u had any bad side effects? Some people on here seems they haven't had good ones, sorry guys maybe it just takes some time to get in your system!!!!

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41

I should be getting the pills soon, but i havent read about anyone being in a wheelchair yet , i'm in a wheelchair just wonder if its helped them, also my left hand doesn't work will i was wondering if it has help people with that. Thanks

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40

I started Ampyra on 7/6/10 and have noticed an improvement in leg strength (my left side is weaker than right) and my balance has improved - not 100% but better. I hope I get better the longer I am on it. I did not experience any side efffects either.

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39

What type of MS do you have? My neuro prescribed Ampyra for me on 6/25/10 (I was diagnosed with PPMS in 2008) -- my insurance company says I have to mail order this med so it will take a few more days till I get it, but I am anxious to try it.

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38

I took Ampyra last week. I was really dizzy the first day, but that got better. I ended up having severe back pain starting about day 4. Since I've had bulging discs, my dr did an MRI yesterday to rule out a herniated disc. My MRI was fine, so I wonder if it was the Ampyra. I quit taking it on Monday per my neurologist's advice and my back pain is better today. In the week I took Ampyra, I really thought it helped somewhat, so I'm going to try it again. Has anyone else experienced really bad back pain since starting Ampyra?

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37

Hi, ev eryone. I see lots of success with this drug, but not in my case. I've been on ampyra for two months, my nero yook me off two days ago due to a bladder infection. It never helped me walk anyway. It made my balance worse and made my spasticity worse. I'm really disappointed and happy for the rest of you..

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36

Ampyra seemed to stop working for a couple of days, but it seems to have kicked in again! Loving this drug! The only MS drug I actually look forward to taking!

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35

Day 14 low back pain pretty bad, Day 15 felt horrible and all symptoms returning Day 16 seizure at night ....... just stopped med and Im pretty disappointed. I guess my kidneys werent able to get rid of it fast enough. Wasnt an epiletic type seizure, but more of an full body strong spasm and tourqing for about a minute with no loss of conscience. Similar pattern to a migraine, where before it happened I felt absolutely horrible and nausea, then after it I slept for hours and felt much better.

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34

Been on Ampyra 16 days. 1st 14 days were awesome. Felt like I could walk for a mile. Last 2 days I'm back to being stiff again and not near as good as I was. Has anyone had a similar experience?

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33

Hey everyone, i am so glad to hear almost everyone is seeing improvements from Ampyra. This is so awesome. I have been doing well on it also. I'm into my almost 3rd month and i see a great improvement also. Some days better than others, but i am still so excited for everyone, Yeah!!! And i am sorry for the other post to that Tim Dude, but he is so wrong. There is nothing to worry about,Well, its his loss, we are all walking Better.
Peace

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32

I've been on Ampyra for almost 3 months and don't think it's doing anything for me. I'm not about to give up - has it taken this long to work for anyone else?

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31

Thanks for the info. I will wait a couple of more weeks for improvement. I am a large (over 320 lbs) maybe I have to wait until my body reaches the optimum level like all my other medication.

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30

On day 13 of Ampyra. My walking is continuing to improve. I'm feeling so confident about walking it's amazing! Everyone should talk to their doctor about trying this drug! (only contraindications are decreased kidney function and seizures)

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29

Mike, Potassium pills don't have anything to do with Ampyra. Ampyra is a potassium channel blocker (blocks the potassium channels that leak when the nerve is demylinated), Ampyra does not affect your electrolytes (potassium being one of them). Check with the hotline pharmacist for Amypra.

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