Accutane Long Term Side Effects (Page 61)
(Newest replies first)

Updated

I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

1933 Replies (97 Pages)

Page:First PagePrevious Page61Next PageLast Page
Earliest Newest Votes
733

I just also want to say thanks to those who replied to my first message. It's good to know there is a little army fighting against tihs horrible drug. I just read the NCC article again for the 2nd time (found it orignally last Sept) and i've got that deep feeling again.. basically telling me how bad things are going to continue to get (could it get any worse?), my health will keep going down and notig can be done. The deep despair I feel....

As mitch said, some/a lot of accutane sufferes feel worse after certain foods. Anything hot/spicy I can't eat. I took this caynenne ticnture over 6 months and it made me feel extremely weak and could hardly move around or do anything. I was so bad that luckily i forgot to take it one day and noticed a slight improvement, and only then made the connection. I orginally thought cayenne pepper would boost my circulation, but made it worse!! I can only assume Accutane badly effected my nervous system, which im guessing hot/spicy foods act on. i have rosacea from accutane too and i think this is down to do with problems with the nervous system and the immune system (which i have a low white blood count). Also theres the olive oil connection from another forum where a lot of accutane suffers all found they had in common. before i found about this i noticed i felt very bad after taking olive oil for up to a week (i was fine with olive oil a few years after tane then it hit). Then theres high vitamin A foods which I beleive watermelon is, again feel bad after... side effects of these bad foods are feeling jittery, weak, eyes feel even worse, more dehydrated etc.But it's all these food connections which all Accutane sufferes have discovered by telling each other these specific food problems live the olive oil/vitamin a, other specific foods that CONFIRM Accutane is the problem, to any doubters out there who seemingly worship this poison.

I think garrot made a line saying "take accutane, play sport, eat ok and you'll be fine" this is a really dangeroud and stupid thing to say. How do you know that takes you up on that advice will be fine? Just based on your experience, when you are still taking the drug? Unfortunately it was people like you that I listened to before I took Accuane over these horror storeies, bbecause according to people like you, these horror stories were extremely rare, accutane can't be proven to of caused all your problems.. just blame everything on Accutane. I took the drug.. and before I know it, so quickly, so easily, my life is over before I have a chance to do anything about it. Over with. And i guess that's a bad part of the internet, listening to people who think they know what they are talking about and overshadowing the truths. Again can we also not have people wishing that the FDA don't ban this drug. It's like a stab in the back hearing this. . Instead of coming here just live your life to the full, you'll never begin to understand what so easily could of happened to you....

Was this helpful? 0
732

Jazzy. My son has also suffered the same as you. Hopefully it will subside. Unfortunately some people especially some ethnicities suffer worse than others.
As this is a vitamin A overdose how many watch wat you eat to reduce the vit A intake? And do you feel it makes a difference? As i try to reduce my sons vit A intake and have noticed hes not getting the head pains and some of the other effects he was suffering. I hope and pray he gets better as well as all those suffering from taking this money making Poision ! Vit A can stay in the body so please watch what you eat it really could make a difference. Bless you All !

Was this helpful? 0
731

Kim - Well done for saying no to Accutane and deciding not to gamble on the future of your health. I don't know if you've seen this page, or if it's been posted before here, but take a look at this page:

articles.mercola.com/sites/articles/archive/2011/05/31/simple-secrets-to-eliminating-acne-for-good.aspx

You might have to etnter your email address to view the page, or you may be able to lose it down, but please read read it because it's worth it! It tells you natural ways to eliminate acne (like how bad wheat is, dairy etc) and what dermatologists don't want you to know.

Was this helpful? 0
730

I was reading your post I too have swelling on my head. I was only on accutane for 6 weeks. I work in the medical field and all the doctors I work with said it was fairly safe. I started having severe memory loss I would forget what I was saying mid sentence. I have had headaches in the past but accutane took it to a whole different level. I now have pain in my bones and since taking it my hips have not been the same.

Was this helpful? 0
729

thank u all for taking time out to reply to my post!!!!!!!!!!!!!!
u all being so very concerned about me taking the medicine........
I have decided not to take this medicine.
My Nurse prac. did tell me that i might suffer mild joint pain, drylips, dry scalp, dry skin for a short period of time.
But as i read the posts n did more research,, i found this is actually a drug used to treat cancer n by chance it was found to treat acne too.
I m surprised with so many severe side effects why do the doctors prescibe it n that too for teenagers..
Once again thank u all from saving my life ......

Was this helpful? 0
728

Garrot. I put had meaning in the first 8wks. My son stil has pain now having Stopped the drud 13 months ago

Was this helpful? 0
727

Garrot. My son only took this for 6 wks before he started with joint pains. He got worse over two more weeks so i made him Stop taking the meds. So after 8 weeks on the drug my son was in real bad pain in his joints etc,. I have previously put what problems he's had on earlier posts.

Was this helpful? 0
726

Garrot,
As far as I know, with my son at least, he quit taking Amnesteem the day he almost passed out at a HS Track Event and then taken to the ER with significant blood in his stool. Their is no process of cutting back , my understanding is you just quit.
Best Wishes,
Scott

Was this helpful? 0
725

Garret, thanks for responding to me. My son wakes up with knees stiff every morning after moving around for wahile it subsides. After the day they get sore. Are you off the meds now? My son is off now for about a year. Thanks, Larry

Was this helpful? 0
724

Hi Garrot.

I took this for 5 months.
I have terrible side effects 6 years on.
You can watch my videos about this drug at youtube.com/FireYourDoctor

Was this helpful? 0
723

Took accutane forever, worst was the dry lips, no matter how much you chap stick moisturize whatever it's like fighting a losing battle, it's like Sisyphus trying to keep them from getting nasty cause its drying from the inside out, might as well try and keep your hair from growing...

Was this helpful? 0
722

scott,
I hear ya... I feel like i can relate to your son in a way with the sports and how that must have effected him and his sports. I wont be taking anymore accutane.

anyone know the effect of stopping accutane then starting it back up? and or missing two weeks in the middle of the regiment then startign back up?

Was this helpful? 0
721

Garrot,
My advise to you, if you acne is gone, throw the rest of the pills down the toilet. My son made it 5 months with no major problems at that point. One the 6 month, he became to have significant blood in his stool and never been the same since. STOP NOW, no need take this med anymore, Please do not take any more chances.

Was this helpful? 0
720

larry,
I play year around junior olympic waterpolo which is demanding on the knees. from my experience i got cramps and tendon strains in the growing and general knee region and feet that stayed for a week or so then went away. My friend on the team also had the same problems, i think it is likely that there could be a conection, but after exercising the sore area everyday it fixxed itsself as i was still taking the medication.

Was this helpful? 0
719

KIM,
I tried everything possible before accutane. Including 3 years of anabiotics after proactive, washes, toners, special brushes. you name it, i had bad acne. then went straight into accutane for 4 months. I wish i would have taken accutane sooner. All i had was dry skin, and a burnt face for a while. I stopped as soon as i got a blood test with my liver 4 points over normal which isnt bad. If u play year around sports, eat okay, and are a hyprocondiac like me you will be fine

Was this helpful? 0
718

Im 18, and have been on accutane for 4 months. My liver test is 4 points over normal which isnt bad. I am considering to stop taking accutane all together. I am suppose to go 5 months but my skin is clear and may not come back as bad as it was.

I read all of htese posts and notice that they have been takign the medication for around a year. Has anyone taken it for only 5 months and had long term symmtoms or problems?

Was this helpful? 1
717

my son was also on accutane for 6 months. now 2 years later he is experiencing major tightne in his knee joints. he is also very athletic and never had these conditions before. i am looking for a doctor that can tell if accurtane has anything to do with this. any reccomendations?

Was this helpful? 0
716

Hi Kim, Nancy... I too wish i could turn back the clock for my son who will be 18 in 2 weeks. He definately will not be going out with his friends celebrating like most kids do. because since taking this Poision his life has been ruined. He's been off the drug 13 months now ,and was only on it 8 weeks (30 or 35 mg a day i think) He has been through so much and No one can say what is wrong with him. As of today he suffers joint pain throughout his body. He feels like there is something going on with his Veins right now as the pain is different.. He has suffered Chest pains, Head pain, Halloucinations, Palputations, strange sensations of running water on his head & hands etc,.He cannot eat citrus fruits any longer because he now has Reflux. The list goes on ...
Other members of my family have suffered that have taken this drug but we only put two & two together after the research i have done..
My sister has lost all her teeth through Bone Loss which she never realised is more than likely due to taking this Crap. She suffered for years with what they thought Fibromyalgia... Strangely enough it seems to have subsided. But she took this going back 20 years ago and has had it 2- 3 times since. The amount of people you speak to that have suffered but not realised because it doesn't always show up whilst your'e taking it but years later.

I Would Not advise anyone to take any form of Chemotherapy drug unless you have Cancer and you don't have much option...
To give this to kids whilst they are still growing is "Utter Madness".

Was this helpful? 0
715

Hi Kim,
First off I want to say I think it's GREAT that you came on here, did your research before going on this Drug & are taking the time to ask the People that took this Drug...Smart of you!!! I personally will tell you from my son's experience with this drug NO, Do Not take this drug.. I know that my son & others on this site & other sites have too MANY of the SAME Side Effects, it is not a Coincidence. They told my son once he stopped the Drug his side effects would go away. Well yrs. later not only have they NOT gone away but he has developed NEW Side Effects yrs. after being on this drug. Kim, I ask you this??? Do you know this drug is a Chemo drug. Please go to this site chemocare.com/bio/isotretinoin.asp
Has your Dr. told you about the DAMAGE it can cause you? I could go on & on but I just want to say I HOPE & PRAY You will NOT take this POISON.. Try a different diet, sometimes eliminating dairy can help with the acne.There are OTHER alternatives, Please stay away from this Drug... Don't become like SO MANY others that are SUFFERING from making the Choice to take Accutane. I just want to add that there are people out there that have NOT suffered from Bad side effects, they are the Lucky one's. But is it worth the RISK???
I Wish You the BEST...Keep Us posted :-)

Was this helpful? 0
714

hey,
i would be soon starting to take accutane.
My practioner nurse advised me n did tell me about some side effects. She told that they would remain for a temporary period of time.
But after reading all the reviews i m confused.
i do want to get rid of my acne too but not at the stake of my health

Was this helpful? 0
Page:First PagePrevious Page61Next PageLast Page

More Discussions:

Long term side effects of Harvoni

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased...

263 REPLIES
Long term side effects of oxycodone 30 mg

What are the long term effects of the brain and mood changes in people taking 30mg of oxycodone for years? Do they act w...

6 REPLIES
Long Term Side Effects of Nexito Plus 5mg

My wife has been using Nexito Plus for the past 4 years. She is doing good, but she feels sleepy in the morning time and...

3 REPLIES
long term side effects of tripoline

my boyfriends complaining after taking large dosages prescribed by doctors for sleep that he feels loss of sight, blurre...

3 REPLIES
Long term side effects of Tramadol

My doctor just prescribed me Tramadol for a chronic back pain issue. If I take this med every night, will there be any l...

2 REPLIES
Long term side effects of clopidogrel + atorvastatin + metoprolol + telmisartan

I have been taking clopidogrel 75mg + atorvastatin 10mg + metoprolol 10mg + telmisartan 40mg for the past 3 years since ...

1 REPLY
long term side effects of neurobion tablets.

I am 41 yrs male.For the past one month occasionally one or two of my fingers move sideways without my control and then ...

1 REPLY
Long term side effects of Ecosprin for 92 yr old male

My father has been prescribed ecosprin 75 along with Dytor plus 10mg, prolomat XL and cardace 2.5 by a cardiologist. He ...

1 REPLY
Long term side effects of Medroxyprogesterone

I was just prescribed this medication by my doctor, because of irregular periods. For the past 2 years I have had my per...

1 REPLY
Long term side effects from Multaq

Folks, like everyone else who has started MULTAQ, I am having second thoughts about it's effectiveness. When I first...

1 REPLY