Accutane Long Term Side Effects (Page 33)

I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

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Maybe someone who took up some photoshop and some advertising come up with a good print ad to help us start something together? With the power of the internet I believe we can use this as a tool to stop this product. A good print ad can help get the message out to stop the pharma companies to make this poison. Maybe someone from the FDA will find the heart to make a substance like this Illegal and ban it from the world.

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@Nancy. Maybe facebook is a good medium? I am not sure how to privately message you.

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Nancy. Please do let me know if you do contact Ray Singer. Only trouble the Derms tell us here in UK there is no proof that it is the drug. Strange that my niece was given Roaccutane some 3 yrs ago and there has been some publicity they now use a different company and call it Isotretinoin. Everyone just tries to tell the kids that are suffering that they are fine and to get on with things as if there is nothing wrong ! The Dermatologists obviously do not have a conscience being paid to cause suffering and misery and ignore the fact that people suffer weeks, months or years after taking this crap..
Now nearly 10 month after stopping taking this poision my son still cannot sleep and has joint pain all over his body. He has no motivation and is tired 5 mins after waking up. Can no longer have cows milk or fruit juice with orange. Cannot eat bread and other acidic foods. Still has sensation of water dropping onto his head , this happens more so when he eats. Suffered a horrendous migraine 6 wks ago which was so bad they did a CT scan and Lumbar Puncture. .. Yet doctors say he is fit to work because they do not see or understand what the has happened to him ..God Bless all who have had their lives ruined from this Crap !

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Hi Mitch, I will be sure to let you know if I get in touch with that Dr. I have been looking into Other Toxiologists around the Boston area, doesn't seem to be that many. I will get HOLD of someone and hopefully they can do some TESTING to see is happening in my son's body from this POISON... I will PASS on ANYTHING & EVERYTHING that I find out. I want to HELP Your Son too and Others that took this Drug. Yeah I noticed they call it by a different name it;'s STILL the same POISON.. I also can't Tolerate when people say well ACCUTANE name Brand is pulled from the market,, I say what about the Generic Brands?? They are still OUT there and being PRESCIBED Daily. The GENERIC is the same, I don't get some people's thinking, know what I mean Mitch??? It just gets Frustrating.. Everytime I say to a New Doc, maybe this is from ACCUTANE they shake the heads and say NO WAY.... The other day took my son to another Doc and I mention the POISON, he shaked his head too, no way... I said do me a FAVOR, just for s***s & giggles and Google LONG Term Effects of this Drug and You will see so MANY people JUST LIKE MY SON... (It is this DRUG) I PRAY he googles it..... I will let you know any info I get , I want to HELP everyone involved in this NIGHTMARE!!!!!! My Prayers and Thoughts with You & Your Family Mitch. ONE day WE will WIN & get ANSWERS for Our Children... God Bless

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To Bro needs help... Hi, yes I am on FB, how can we do this without it being on the Board????? Hmmm any ideas anyone...

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@nancy btw, is your son under any medication now? my bro is taking olanzapine. we are unsure if it is helping him but for now it sort of helps him stay in tune with the real world. hard to explain really how things are.

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Wendy- Age has nothing to do with it! I was 31 when I took Accutane.

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Hi Bro needes Help, Yes my son is on Remeron , however they need to take him off it as it is causing VERY High Cholesterol Levels. He also takes a Blood pressure med, anxiety med and an prescription antihistime. I will tell you honestly I don't think the remeron was doing any good anyway, except it helped with sleep as he also suffers from insomnia... Seems NEVER ending... I am glad your brother gets some Help from that drug he takes, what a SHAME that all this comes from a Drug for acne. HEARTBREAKING~ Still would like to be able to talk privately Via FB, just not sure how we would go about it without having to put our Real names on this site... Maybe try with email address first??? Take care, Prayers for your BROTHER , YOU & your Family ...

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@ nancy (r)(a)(s)(t)(a)(m)(a)(n)(_)(3)(8)(@)(h)(o)(t)(m)(a)(i)(l)(.)(c)(o)(m)

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I took acutane three years ago. Not only did the drug work, but I have no occurring negative side effects as of now. I feel like people reading this are going to assume these symptoms are wide spread, but I think these are mostly individualized cases.

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I have almost the exact situation. I started accutane my sophmore year and continued early into my junior year. I have never really put it all together until now. I have had severe sleep problems ever since and have extremely dry skin. I find myself puting lotion on all the time but nothing seems to take away the dry feel all the time. I also went to a gastroenterologist last year and had an endoscopy because I was having such severe stomache problems. I never realized it could be from accutane 15 years later but it makes a great deal of sense. Over the last few years I have also had severe dry eyes (especially in my right) and I have constant pressure in my right eye. I thought it was my sinuses but I have had cat scans done to show no infection. It is nice to finally figure out why all of these effects...

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I agree. As far as the literature goes, majority of people on accutane have only minor side effects which go away after discontinuing use. But a few do have life-long major side effects.
Problem is it is like Russian Roulette and you don't know whether you will be in majority or minority...I have had acne since 17 and I am 32 now, and I am still scared to take accutane... But this acne is also killing me, don't know what to do...
BTW I have already tried other things, hasn't helped...

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daughter took accutane in the 90's and we had no idea there would be problems. she just had neck spine surgery and they said it was DISH or diffuse idiopathic skeletal hyperostosis and she was going to need surgery again down the road due to her ligaments calcifying. checked out DISH and found it is attributed to ACCUTANE!!!! i am mad and looking for a lawyer!! they need to help with her medical espenses and her future surgical expenses. plus, the poor kid has had bad diarrhea since the 90's and has missed a lot of work from it, so am wondering about irritable bowel, too.

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To Sharon;s Mom... Very SORRY to hear what your daughter has had to Endure since taking this poison!!!
I would be looking into a Lawyer for sure. I am not sure if there are any Lawsuits re: the Neck/Back information you provided however I do know there are Lawsuits that involve IBS and other Bowel Problems. Has she had a Colonoscopy? I am so Sad in reading about your daughter and what she has gone through. Prayers with Your Daughter and You. This ANGERS me knowing the Effects (Long Term) that this drug has. As Parents NONE of us would have allowed are Children to take a Drug that would have DESTROYED their Health in the way it has. I wish You the Best with everything. Please just Google Accutane and Bowel lawsuits. I am sure you find MANY a lawyer willing to take on your daughters case. As for the Neck/Back problem I am sure down the road there will be MANY more Lawsuits against accutane for OTHER Health Issues that people are now Suffering with, it's just a Matter of time before they CONNECT the Dots with the Other Long Term Side Effects from Accutane use. God Bless, Nancy

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Sharons mom- You would have to find out if DISH was listed back then on the Rx info as a possible side effect. I know that is listed for a while, I know bone problems were listed as a side effect in the 80's. My heart goes out to you and your daughter. The reason I say the above is a you can try a lawyer, but may not get much help. I have bone issues myself.
Hope everyone is hanging in there

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fda-reports.com/Accutane/outcome/Disability/page3.html
These are the FDA reports for people who have reported adverse side effects from accutane

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Hina- was this just for this year??? I know back when Bart Stupak was Congressman for MI he had pgs on pgs from 80-2004.

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Hi Hina,

Thank You for posting the link to the FDA's side effect reports on Accutane. I reported a case over two years ago and I can’t even get a reply back that they read it. Unfortunately the FDA is partially controlled by people that work for or did work for Big Pharma. What a joke. We all must continue to post our stories to make people aware of the possible side effects from not only Accutane but also Amnesteem which is still available in the United States and handed out like candy on Trick or Treat night without doctors giving their full knowledge of using a Chemo drug to give to the youth of America.
Thanks for the post ! It is helpful to this thread.
Scott

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Scott- I never heard from the FDA either, but I did hear back from the generic pharm that I also reported my effects too. You may try and do that even though it has been 2yrs. They sent me something in the mail. - Hope all is well

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Hi Jen,
I dio have letter from the Pharma Company that was sent to Ryan's dermatoloigist admitting the Amnesteem caused his colon to dry up which caused substantial blood in his stool on the 5th month of taking med. I was only able to get this by asking for all copies from his dermatoligist on Ryan's 6 month's of treatment. ( about 50 pages )Thanks for the info.
Hope all is going well with you !
Scott

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