Accutane And Infertility (Page 13) (Top voted first)

I took accutane almost 14 years ago as a teenager. I am now a 32 year old woman who has just been diagnosed with infertility that they believe is linked to autoimmune issues. I truly believe that accutane is the cause of this; from the research that I have done it seems that accutane has been linked to other thyroid-related diseases, but that they have not yet been able to prove a link between accutane and infertility. There are, however, actually more people like me out there than I originally thought. Being diagnosed with ovarian dysfunction has been a horrific, horrific blow. And while there was plenty of information about accutane and birth defects, no one ever mentioned a possibility of future infertility. I was a teenager! This is a tragedy and I believe something should be done about it. If you too have been affected diagnosed with infertility and have taken accutane, please email me. There are plenty of suits against accutance. If there are enough of us, we can come together to do the medical research and get the help we now need.

REPLY

REPORT

Chelsea...my sister, not a doc, came up with the IBS diagnosis. As I posted, before accutane, I was never sick. After, constant stomach problems. Very sensitive to lots of foods. Thought I might be lactose intolerant. Have nausea & vomiting more frequently than a normal person. Diareah too. I've been seen a doctor about my gall bladder. Been hospitalized for ulcer. When I saw commercials about law suits concerning accutane/IBS/Khrons, I thought about a connection, since I've had symptoms of both. There be no connection, but I can tell you, my body/health have not been the same since finishing my accutane treatment. Ever heard of any connections between early menopause & accutane? Thanks for your post.

REPLY

Was this helpful? 0

Hi Sara,
I took accutane when i was 16 years old, i was taking 80mg per day for 8 mos and then experience ICS (inter-cranial Swelling or "Brain Swelling") which was one of the severe side effects of taking accutane. 5 years later at the age of 21 i was diagnosed with PCOS, before taking accutane i never had any menstrative problems. I know have all the side effects of severe PCOS, i have excessive hair loss, excessive facial hair, worse cystic acne then before, gallstones resulting my gallbladder to be removed, along with constant UTI (urinary track infections) and almost constant neck and back pain. I am now 23 and am faced with the fact that my options of being able to concieve are about 2% out of 200, and its devestating to me and my family. Ive been researching for the past two years to find more people like myself in the same situation. I would absolutely love to place a class action suit against Accutane for this tragedy that was bestoyed upon me! Please email me with any helpful information. I would appreciate anything you or anyone else on this posting site has to say. Thank You
Breanna Zimmer

REPLY

Was this helpful? 0

I took Accutane as a teenager. I am now 28 and have had 2 unexplained miscarriages and am still childless. I have not been diagnosed as infertile but I am very scared that I will be. I have not had any problems getting pregnant and am currently 6 weeks pregnant. I have been terrified the entire time; pretty much just waiting to miscarry. It is a horrible feeling and I know it can't be healthy to stress this much. I have always wondered if it could be the Accutane. I would have never taken it if I knew that infertility could be a side effect. If anyone decides to start a class action suite against Accutane for infertility or miscarriage PLEASE let me know. I would like to be a part of it.
Thanks

REPLY

Was this helpful? 0

Has anyone heard of a link between accutane and joint issues? In addition to fertility problems, of which i have posted about in the past, i have chronic joint pain. I've had back surgery twice, i'm only 36, and i now need 2 epidorals. I have 2 herniated discs in my neck and 3 in my lower back. All, I am being told are degenerative.

REPLY

Was this helpful? 0

Agreed!

REPLY

Was this helpful? 0

Im 30 years of age and been ttying to conceive for 18 months ive taken clomid fertility drugfor 6 months and still no baby. I spoke with a natropath and she pointed out Roaccutane has been a major problem in alot of her patients with fertility problems and i myself did use that drug for a year at the age of 15.
Is there any hope out there with anyone that has ussed Roaccutane that has succesfully fallen pregnant ...........
Please contact me

REPLY

Was this helpful? 0

your message sounds EXACTLY like what my daughter is going through..... Let me know if you find that there IS a link between accutane use as a teenager and infertility years later..... thanks!

REPLY

Was this helpful? 0

Maggi.. Accutane can cause severe joint pain ad does my son whom used this 13 months ago. It also causes bones to fuse together.Please check out this site for long term effects and a posting by Scott who's son is suffering sice having taken this Poision ! Hope things get better for everyone that has taken this so called miracle drug. The only miracle is for the drug companies as they make you ill from one drug in order to give you others to supress youe pain or what ever illness you get from this. There are 152 side effects apparently caused by Accutane, Amnesteen, Isotretionoin or what ever generic name they give it . As there are about a dozen different names for it.

REPLY

Was this helpful? 0

I have also been diagnosed with Infertility issues. I took Accutane for 5 months about 6 years ago (right before I got married) and we started trying right away for kids but still not succeeded. We've been thru all the treatments including Invitro- they have come to the conclusion that my eggs are just not healthy and they have no idea why. Everything else looks great as I'm pretty healthy and work out regulary. But Accutane drys you out from the inside out- everywhere. I believe this has something to do with our Infertility. I contacted a lawyer and he said as of right now, there's no link between Accutane and Infertility but to keep looking into it. I truely pray something IS proven somehow or enough people speak up for them to HAVE to do something about it.

REPLY

Was this helpful? 0

Everything started in Oct 2011, I was finally diagnosed with pyoderma faciale Dec 23 2011 after several months of bacterim, steriod 6 pack, shots to the face 4 times etc.

Its now Jan 22 2012 (3-4 months after initial breakout). My face finally looks 'normal' but still have some acne.

All the docs can tell me is to go on Accutane/birth control/steriod for 5-6 months. I have never been on anything before not even birth control.

Im VERY hesitant but what if all of this causes scarring on my face or comes back?

SHOULD I TAKE ACCUTANE?

REPLY

Was this helpful? 0

I was put on 3 separate rounds of Accutane around the age of 15. I have dealt with various fertility issues since the age of 27. I am now 36. My diagnoses are many including diminished ovarian reserve, short luteal phase, endometriosis, and small ovaries. We have been trying to conceive for nine years. After Clomid, IUI and various injectibles proved unsuccessful, our RE suggested donor eggs....stating that I had very few, poor quality eggs remaining. We were not able to attempt IVF. He suggested I was born with very small ovaries. My Mother has often suggested the link between Accutane and infertility, but we never had any proof. I was able to successfully conceive through embryo adoption and plan to try for a second child through embryo adoption this Spring. I would love to hear of any lawsuit related to the link between Accutane and infertility.

REPLY

Was this helpful? 0

I signed it too.

REPLY

Was this helpful? 0

It looks like there is no class action regarding accutane and infertility. It looks like the thing to do is to contact law firms that are prosecuting for Crohn's disease and ask if they would consider adding infertility to the existing lawsuit, or start a separate class action for infertility sufferers. WE NEED NUMBERS! The more of us that speak out, the better. I'm going to search and I hope that many of you will as well. Please, if anyone finds a law firm, post it on here.

REPLY

Was this helpful? 0

You sound like a carbon copy of me. I am currently awaiting the news of our first attempt at a pregnancy via donor egg, since my eggs are not useful, have been diagnosed with endometriosis, had four failed inseminations and four failed IVF's. One cycle of IVF was with my sister's eggs, who is 24, but also took Accutane as a teenager. Although I am trying to be hopeful that this round works for us, I am still sick that I cannot have a baby from my own eggs and the reason may be Accutane.

REPLY

Was this helpful? 0

I'm sorry to hear of your devastating news, Michelle. I finally was able to become pregnant last year through IVF via egg donation. I do not have a sister or anyone I felt comfortable asking, so we decided to go with an anonymous donor. I now how 2 healthy and happy 6 month old babies! The funny thing is, that they look more like me than they do my husband. Good luck with everything. Although, I have a happy outcome, I am still furious about my diagnosis(diminished ovarian reserve) and all the stress, depression and money we had to go through to get our little miracle babies here.

REPLY

Was this helpful? 0

Thanks, Kristen. This round is with anonymous donor egg too. My sister's eggs didn't work for us and RE thinks she may have similar issues as me. She also took Accutane as a teen. I completely sympathize with your frustrations due to egg reserve issues. Best of luck to you.

REPLY

Was this helpful? 0

I took accutane in my early 20's and at 34 was finally diagnosed with premature ovarian failure after 5 years of treatments...including 13 iui medicated cycles and 4 ivf attempts. I also had surgery for endometriosis. I just adopted a healthy beautiful baby and couldn't be happier. I think accutane dried up my ovaries.

REPLY

Was this helpful? 0

Another negative result...even with donor egg, it's not working. Sick that Accutane may have ruined my life as a mother. :(

REPLY

Was this helpful? 0

Michelle, did you have any embryos to freeze for later use? Don't give up! There are women going through all different stages of the process. Some, on their 2nd or 3rd attempt. It was really helpful to me to be able to communicate with others going through the same thing.

REPLY

Was this helpful? 0

Hi Kristin,

I have one frozen embryo. Not too hopeful though. Thank you for the support group information.

REPLY

Was this helpful? 0

I took accutane as an early teenager and sense then my period cramps got progressively worse I am 20 years old now and I...

1 REPLY

i had an ectopic pragnancy,left tubal, salphingectomy, 4 years ago, since than m having pcos, late period only after tak...

1 REPLY

I have heard that after a lady takes a regestrone tablet once she will not be able to get pregnant for 6 months. Is this...

3 REPLIES

i have just started these tablets 5-6 days ago as i diagnosed with swelling in uterus. Just need to know about the uses ...

1 REPLY

I took roaccutane in 1996 and again in 1997. Each time was for around 6 months. I had a 6 minute tonic clonic seizure in...

31 REPLIES

I am wondering if there are any women who have completed their suggested doses of Accutane and had children later. Have ...

10 REPLIES

I took accutane in 2004 at 63 years of age. I immediatetly started having problems with triglycerides, eyes, diziness, b...

2 REPLIES

Has anybody found any resolve for fatigue induced by accutane? It's been years since I've been off, and I'm ...

2 REPLIES

Son now 35 yrs. took accutane as a teenager. When he was in his late 20's he developed gout. His purine levels were ...

2 REPLIES

I was on Accutane for 27 days. I had to stop because of muscle weakness and erectile dysfunction. It has been a month no...

1 REPLY