Anyone Else Trying Savella For Fibromyalgia? (Page 25) (Top voted first)

This is a new medication that just came out for fibromyalgia. I have several other conditions involving spinal degeneration , herniated discs, arthritus, etc.
I've been taking this medication for a little over 2 weeks now and have worked up to the full dose. My biggest symptom seems to be upset stomach but I don't know if it's from the Savella or from de-toxing from 7 other medications that I've been on for over 10+ yrs.
Is there anyone else out there that has started this medication that can give me any information that they may have on it?

REPLY

REPORT

If you look on Google just put in Supple drink or the website is buysupple.com, you should find it easily. It is peach-mango flavored and they ship in 48 day supplies. I am on the auto ship program now and it makes it a little cheaper. It costs me as much as my co-pay for Savella, about $60. per month but you drink only one a day and no nasty side effects. I am very cynical about just about everything but I know my body and Supple takes my elbow pain away, which is what the Savella did for me. I actually put down 85 bags of mulch last weekend, something unthinkable just two years ago. Hope it helps someone else and if so spread the word, natural is the way to go when you know that you will always be on other prescriptions forever. Good luck!

REPLY

Was this helpful? 0

Thank You very much for the information.I ordered it this afternoon. TakeCare

REPLY

Was this helpful? 0

Hope it works for you. Please let me know

REPLY

Was this helpful? 0

I just started taking Savella a few weeks ago and I have trouble getting in both of my doses because i have extreme nausea when I take it in the morning. any ideas on how to take it where I won't get sick?

REPLY

Was this helpful? 0

It is one of the side effects. Be sure to eat before you take it,,,,it is not to be taken on an empty stomach. It can still cause nausea,,,but not as bad if you have eaten.

REPLY

Was this helpful? 0

Well, I have been on Savella 50mg in the morning and 50mg in the evening for over a month and my legs and arms still hurt. I am not sure if it's working. I don't know what I should do. If it is not going to work for the pain,,,,then I am wondering if Fibro is my problem.

REPLY

Was this helpful? 0

I can't remember how long it took to really help with the pain, but it was a long time. It took the edge off is all. But mine really helped with fatigue, which to me is almost as incapacitating as the pain. I do take Move Free for my arthritis pain, and occasional Naproxin or Ibuprofin for the overall muscle pain. Altogether, I am pretty functional again. I do have to get my sleep--8 hours or I need a nap! Stress makes the pain worse--but who can eliminate all stress? Best to learn how to not get stressed out from the stress if possible! When I started the Protandim, I eliminated almost all naps. Lots more energy, and sleeping great! Savella has really helped me, but I still have whopping hot flashes, faster heart beat, and a bit of nausea if my stomach gets empty. So there you go! All about me!

REPLY

Was this helpful? 0

Regan--That was the 1st side effect i dealt with too.The nausea was so intense that I ended up taking, YUP another RX called ondansetron for nausea.I take a small dose,2 mg,after about 1/2 hr I did feel btr.But a short time later I totally stopped taking my savella.I got intense,very intense and very uncommon side effects & all the side effects I was dealing with greatly out-weighed the positive affects of the savella.Another very uncomfortable side effect is the hot spells,night hot flashes,sweating(constant). Those affects along with my pre menopausal affects were just too much for me too. BUT,I really think,with all that I have read thru out this forum,that you should give it a trial run for a minimum of 60 days.60 days seems to be the norm for all the postings that I have read. I wish you the best of luck with this new RX. If it's okay with you, I will keep you in my daily prayers?? Have a great night.

REPLY

Was this helpful? 0

I will keep taking it then to see if it will start helping. I have noticed that I am still exhausted when I wake up in the mornings to get ready for work. Tht is new,,,it never was like that before. I thought Savella helped with the fatigue. The hot flashes are horrible,,,and the nausea can get bad at times,,,,but I am hoping to see some good things soon. What is Protandim? Stay in touch.

REPLY

Was this helpful? 0

I never got nauseous on the Savella but the sweating only got worse. After two years of trying to hide the redness (flushing) it caused to my face and the profuse sweating, I had to discontinue. I don't think that part ever goes away and in fact may get worse. The absolute worst side effect for me...

REPLY

Was this helpful? 0

Veronica... My post was in reference to your post. I am sorry I did not make that clear. Thank you.

REPLY

Was this helpful? 0

Thanks to all that have posted on this forum. I've received so much very valuable information and advice from reading all the postings. I will pray for each and every one of us in daily pain!! Enjoy your day

REPLY

Was this helpful? 0

Check out a supplement called Protandim. I was very skeptical, because everyone has their pet "supplement" that works a miracle for them. I usually don't believe any of it. But, a friend of mine with Chronic Fatigue told me about it, and I tried it. After two months on it, my husband, who is a physician, asked me to get him some too! Wouldn't hurt to try it, except for the cost. If you buy on line, about $60 a month, but if you buy through a person who sells it you can still get it online for about $40 a month. I just have it automatically shipped to our house every month!

REPLY

Was this helpful? 0

I would not want to discourage you from trying Savella, you may not experience the side effects in the same way that I did or others that have posted on this site. As I said the only thing it truly helped was the horrible pain I had in my elbows but I was fortunate to find that the Supple drink did the same thing for that pain. Took me two years to discover that though. I am having a pity party for myself right now though, the pain in my neck and shoulders has been awful the last two days and there is nothing I can do about it. The only meds that work I am allergic too or more accurately my body is toxic with, steroids and NSAIDS. My doctor and I attempted to put me back on them and I am developing blood blisters again and started bleeding vaginally again after three years of not having a period. I stopped taking them once that issue resurfaced but I am still very thin skinned and bleed at the slightest pressure on my skin, hopefully they will get out of my system quickly. I am fifty one, have osteo arthritis, Shogrens disease, fibromyalgia and some yet diagnosed problem where my bones will grow spurs and begin to destroy the muscle and tendons surrounding them. I had a massage on Saturday but I am hurting so bad now that I have had to take Percocet the last two nights to ease the pain so I can at least sleep a couple of hours. This is on top of two Percocet and my Ambien CR, I hate taking them but I have run out of options. It still only gave me about four hours sleep last night. As you all know when you don't sleep good it makes the pain that much worse the next day. I am forcing myself to lead my life as actively as I always have because the alternative is to lay in my bed and never get up again. Unexceptable! I know that this site is for Savella but any suggestions would be helpful for my neck and shoulder pain. Will try anything once:>) sorry for the moaning but know this forum of people will understand the frustration I'm feeling....

REPLY

Was this helpful? 0

I've gone down the savella road and did not stay with it.I had sooo many side affects+all the ones you hear about on this forum & I still was so tired-not comfortable to sleep well.The sweats,nite sweats were the worst and they wouldn't stop and took probably about 5 months after I was totally off of them for the swets to go away,totally.I'm sure this won't happen to you,I think it was just me cause it doesn't seem as it anyone else has mentioned the continueing of the sweating...Thanks again and MayGODBless

REPLY

Was this helpful? 0

I wish I had an answer for you and I am so sorry you are in such pain. I really thought that savella would be our answer,,,,but right now I can not say that is true. I am still having elbow and leg pain. Some nausea and severe cold sweats. I have GERD, so the nausea could be form that too,,,not sure. I will stay on it for a couple more months and see. I will pray for us all to have relief from th pain.

REPLY

Was this helpful? 0

Veronica,,,did you ever in that two years get pain relief from the savella? I am concerned that it isn't working for me.I get the cold sweats, but it only lasts for a few minutes and if I can get relief from the pain,,,I think I could live with it. The sweating is not as bad for me as it was for you.

REPLY

Was this helpful? 0

I got relief in three weeks time, one day Itrealized that I could move both of my arms pain free. It was truly a miracle, I had lived with it for fifteen years but the sweating was awful and got worse over time. I was always soaking wet, to the point of embarassment. It was just a fluke that I tried the Supple and it did away with the elbow pain too so I will never take Savella again. It looks to be a very common side effect, but I work as a caterer and the sweating was out of control and it also made my face flush. I went on line last night while I was feeling sorry for myself and looked up natural anti-inflammatories and pain relievers. I foung a variety of natural ingredients and then went to a website I trust for this kind of thing and found they had what I was looking dffor in one capsule. Take two once a day, they should be here this week and I bought two monthes supply so I'm hoping I will see relief for my neck and shoulders. I will post whether I notice a difference or not. thanks for your kind words...

REPLY

Was this helpful? 0

I still have sweating--every day and every night. But the pain relief and the increase of energy has been so dramatic that I would rather suffer from the annoying sweating. I keep fans everywhere, I dress in layers and just peal them off when the hot flash comes. I love winter when it is cold and hate the summer. Drinking lots of water helps, and exercising if you can helps too. For me, Savella has been a God-send.

REPLY

Was this helpful? 0

How long before you got relief from pain? I can put up with the sweating if I can get relief. I work full time and have exercise classes 3-4 times a week.

REPLY

Was this helpful? 0

50 mg in the a.m. and 50 mg. in the p.m. (along with 30 mg cymbalta once a day) and - for the first time in 50 yrs. have...

1 REPLY

I'm a difficult case of fibromyalgia, poor treatment response since 15. I'm on a pharmacy of meds including 150m...

3 REPLIES

I was just prescribed Celebrex for fibromyalgia pain & need to know if I can still take melatonin for sleep ## Melat...

3 REPLIES

I just went from 60 mg to 80mg of cymbalta. I have fibromyalgia, neuropathy and depression and anxiety. Has anyone taken...

2 REPLIES

Has any one had success with the use of Zonisamide for pain with fibro and if so how long did it take ? Been on one week...

2 REPLIES

I have been diagnosed with polymyolitis and put on 15mg of panafcort per day. I am concerned that I may have Fibromyalgi...

Hello, I'm looking for a Dr who understands and is up to date on the most current Medical research and information c...

I have been taking gabapentin for one month for fibromyalgia... 500 mg a day...100 mg in the morning 100 mg in the after...

3 REPLIES

What are the best medications to treat fibromyalgia? I am always hurting somewhere on my body. Especially my back, knees...

10 REPLIES

I take this for fibro and back pain (had 2 back surgeries) also have lot of nerve pain. It only takes the edge off. I ca...

5 REPLIES