Xarelto Raised Alt And Migraines
UpdatedBeen taking xarelto for 9months after p e in lungs noticed fatigue right away but now having migraines and recent blood test shows raised alt on the liver function test. Has anyone else had these symptoms. My doctor doesn't think they are related to xarelto but I have my doubts.
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Hi Tina. Im Kelly. I had PE also. Tried Xarelto because my disabilities & the fact that I'm a single mum to 2 primary school aged very very active little lads made it difficult to get to my appointments to monitor my blood when I was on warfarin. Also I frequently drop everything to help out my dear old dad on his boat when the weather turns good (another difficult thing for me to do with 2 kids no help and not wonderful health or mobility but as his only relative... you gotta do what you gotta do to help the one's you love right? So going every 2 or 3 days first thing in the morning to get blood work just didn't work in my life, so my dr put me on Xarelto.
However I was not informed that there is no antidote for Xarelto (like vitK is with warfarin) if you have an uncontrolled bleed. I have endometriosis so I suspect going on Xarelto wasn't wise in the first place but no one asked me about my periods or whether I had problems with that side of things because they are used to dealing with people way older than I.
I am 35 now and it's been 10months since my PE. I had emergency open heart surgery on bypass to get rid of the 14cm clot in the main vessel from the heart to the lungs. I was very lucky to make it to the hospital but then it took 7hrs to diagnose because "I wasn't presenting or behaving like a PE patient" -very comforting!
Anyway, I've been having bad headaches too. My periods (I am now not allowed to take the pill which was controlling the severity of my endometriosis) have become almost unmanageable and I've had really bad bloating and tummy pain which I've never had in the past.
On Friday, I took a big hit in dad's boat when a freak wave almost sent me overboard near a reef we were fishing on and i copped a blow to the stomach just under my ribs. About half an hour after that, i started to feel "seasick" -though i'm not really prone to it after 25yrs experience on boats since i was a kid. Eventually i asked dad to bring us back to harbour early because i felt so ill.
I drove straight home after retrieving the boat and cleaning up and got into bed and remained there for 2hrs after which i still felt "sea sick". I started worrying about the fact that i'd taken a blow to the tummy and was on Xarelto when it twigged that "sea sickness" usually passes when your on land fairly quickly and then remembered that I'd been told if I ever got in another serious car accident (yep I've had internal bleeding before all this too! I've had 3x mvas caused by i****s not paying attention on the road or using the phone whilst driving) that I'd need to seek medical attention pretty fast.
Only last month at my PE specialist review, was I told there is no antidote for Xarelto and given my history with accidents (and my telling them about it) I was angry no one had brought this up before. I went on an 8hr drive down to a place called Esperance and one of the reasons I went onto Xarelto was because I had thought it safter to be on something that didn't need monitoring whilst I was going to be so far from help! I went offroad and everything -lucky I never hit a roo hey???
Anyway, I wanted to make contact with someone who was also having problems with Xarelto and I was looking on the internet for information on internal bleeding and Xarelto because of this accident on Friday combined with the fact that my blood pressure has dropped significantly since then and i was worried about that, when I saw your message.
So yeah, I've had some issues with it. What are your thoughts on continuing with this drug? I'm starting to think maybe I was safer with Warfarin...
Kind regards and best wishes
Kelly -now I'm off to the hospital because things are looking a bit dodgy for me here and I have 2 little boys to stick around for so I have to be very cautious. Hopefully I won't get an ear bashing from the hospital about wasting their time (they were going down that route a few times in the past with me -until they found significant problems to fix!) I hate it when dr's say "better to be safe than sorry" and to try to "seek advice when you have early symptoms" etc and then when you do, your told your imagining it or that your just "jumpy" because of past experience... My medical record is long but not by my choice -almost every ED presentation I have made has turned out to require admission but they generally don't look that far and assume you've got some complex psychiatric condition whereby you WANT to be in a hospital... It's horrible being treated like your wasting their precious time, especially when you start to doubt your own symptoms because of their careless words. I have been told "go home there is nothing wrong with you" only to have a observation room nurse discover broken ribs and 3L internal blood loss from lacerated spleen once before in a Perth hospital. However they are so authoritative that you do doubt yourself and start thinking maybe it's all in your mind.
I'm one story that goes to show some people really do just have that much bad luck to wind up legitimately needing the care of ambo's / hospital ED for various "one in a million" type scenarios year after year after year.
When I presented with what i told them was 8/10 pain in my back, a killer headache and flu symptoms, again they said "you've had a lot of admissions haven't you?" and went down the route of assuming I couldn't possibly be unlucky enough to have another serious ailment... That one turned out (after a painful needle in the back) to be Meningitis ending in a month long visit...
I must just have a bad immune response and some pretty rough luck with cars! However you can also look at it the other way... How lucky do you have to be to survive everything I've been thru? (I've been shocked back to life 3x -separate occasions for completely different unrelated diagnoses).
Ok, well do let me know what you decide with this oddball medication. I've got 2mths til my next appt to decide what to do about it but I may have my hand forced before then.
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