Xarelto Fluid Retention (Page 3)

I had to take Xarelto due to two sinus venous thrombosis in my head. 8 weeks of heparin injections showed no side effects. But with the first day of taking Xarelto my body reacted by retaining water. Within the first three weeks I gained 24.46 lb hill exercising 5 times a week and eating as I always did. After retaining more and more water I stopped taking it after three months. I started with a weight of 120 lb at a height of 5''8 and now I weigh 157 lb. I have to ad that I started taking it in the middle of March and stopped taking it at the end of June. I was not able to loose any water/weight. I eat less than I always did before even while I exercise. All doctors couldn't find the one thing that changed through Xarelto. Has anybody ever experienced something like this while taking Xarelto??

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Just got back from the hemotologist today. A year after taking Zarelto I have gained 70 lbs..have extreme swelling in both legs and can barely walk. I have had to go to the emergency room because the swelling was so bad and my feet had dark blue splotches on them. Both my PC and Hemotologist are throwing their hands up and saying it's not the Zarelto and that I should try swimming. Although some of my weight gain is from inactivity since March and can't even walk..but what has caused this? My PC put me on Lasix but that has not taken the swelling down. I am going to take myself of Zarelto..I would rather have clots

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I started using Xarelto three months ago and I gained 15 lbs. When I notice I am gaining weight I increased my training activities and reduce my meals to one meal a day. I still gain the weight and no matter what I do I cannot loose it. I am 51 years old and running 10km each day at around 40 minutes. I am 5.9 any weigh 165 lb. After three months on Xarelto I am almost 180 lb.

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I am so glad I read this... I had a dvt from a long haul flight and was put on the blood thinner xarelto too. I actually had people feel my stomach and say congratulations. I train 3 times per day. I also go paddle-boarding before work so can end up doing over 3 hours of exercise a day 5/6 times per week. I tracked all my calories - usually 1700 to 2000 max and still gained weight. I wondered whether there was something going on with my colon and had days where I did a purge and nothing happened. Another couple of days I ate prunes to see if there was something to shift.. nope.

After trying everything I realized it was the blood thinner. I thought I would see if others have had the same issue and stumbled on you all. So thank you.

Today I came off the blood thinners so will carry on tracking weight and do some cleanses and report back.

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Just curious... did your weight fall off after stopping Xarelto? I was just given the green light to stop taking Xarelto & am praying the majority of the weight gained while on it falls off easily...

Thanks!

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I finally feel vindicated was put on Xarelto 6 months ago due to a large DVT in my left thigh acquired after spine surgery ..and even though I have complained about this to my vascular doc, my spine surgeon and my primary care...they all seem to think I am crazy. The bloating is worse in the evening by which time I have actually gained 3 to 4 inches in my belly since morning and it feels like my skin is ripping open. My primary care sent me for a CT because she was concerned about the rapid weight gain but negative as I figured it would be. Now coming off the Xarelto and hoping I can figure out how to get this back under control because at almost 60 years old it is not funny to look like I am about to give birth. Have been taking probiotics the entire time, going to physical therapy for my back and that hasn't helped....Any suggestions?

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Same exact thing happened to me!! My body shape changed drastically! Still holding excess water mostly in abdomen but also in my legs, back & buttocks. Also skin appears dimpled which I NEVER had in my life. Stopped xerrlto on aug 10th. Been working out every day as well as 1hr walking per day & 20 min in sauna every day. Very little change...this is bizarre. I am going to schedule a complete blood work up w/an endocrinologist. This is unacceptable. Nothing in the side effects alludes to these strange symptoms. Have to get to the bottom of this.

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I have been refered to a nutritionist...don't think my eating habits are the problem but we shall see...another symptom I have that I forgot to mention was I feel hungry ALL THE TIME...I can eat a meal and feel stuffed and in an hour I am famished. This is just so frustrating...I take probiotics, I have tried a cleanse to try and reset thngs, cut down on carbs, I go to physical therapy 2-3 times a week and am as active as recuperating from my February back surgery will let me be. There needs to be something...if you find it let me know and I will do the same...Good luck

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Hi. I also experienced fluid weight gain from xarelto. Went off the drug in May. Was in excellent shape before. Exercised 5 times a week. Ate healthy. Began taking Green Vibrance two months ago. Also half tsp. turmeric in V8 juice. Delicious! You can buy it in spice isle of grocery store. Four days ago I began taking 500 mg of Bromelain twice daily on an empty stomach. Once when you wake up and again in the late afternoon. If you take before bed it can interfere with sleep. Also began taking four days ago 2 TBSP of apple cider vinegar twice daily. JUST LOST 3 LBS at once. I think my body is finally releasing the fluid! Also my joints and feet are LESS SORE! Yay! Try it everybody! Hope it helps us all!! :)

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PLEASE READ!! I have finally found a way to get rid of WATER weight caused by XERELTO. I have been dealing w/it since August when I stopped taking xerelto. Organic TUMERIC!! Just mix 1/4 teaspoon in a smoothie or tea every day w/one twist of fresh black pepper (it's needed to increase absorption) I was about to start taking a water pill until I did research on natural edema cures. It has been two weeks & I have seen a major difference! B4 I started you couldn't even see my medial ankle bone & now it's prominent again. I wanted to make sure I shared this w/all of u! I'm going to continue taking it until the whole jar is finished & I am VERY optimistic. I don't care that the drs don't acknowledge this major side effect!! We all know it's true!! TUMERIC also strengthens your immune system & eliminates inflammation which is why I think it helps so much w/the edema. Good luck to all!!!! :))))

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I will try the Tumeric starting tomorrow. Unfortunately, it has been nearly 2 months since stopping Xarelto & my abdomen is still misshapen and bloated looking. My weight has remained the same as has my appetite (which is a lot lower than it had been before Xarelto). The weight gain & then it not coming off when I stopped the prescription is so discouraging...

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Trying the tumeric as soon as I get home...i stopped xarelto the beginning of October and did shed about 5 of the 20+ pounds but that is attributed to a spinal injection I got on Halloween... After that I peed myself silly for about 5 days... So I know it is all fluid.

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Caveman I'm replying to you specifically b/c I noticed you too came to the same conclusion I did about the protein. I was on XERELTO for 3 mo for afib & I immediately started w/the same symptoms as everyone. The weird & oddly displaced water weight. It has been exactly 3 months today that I have been off of it & the water is still with me although 3 weeks ago I started taking 1/4 tsp of TUMERIC in my shake every day. I also have been going into a sauna every day for 30 min. These two things have started to alleviate some of the water b/c I can finally see my medial ankle bone again. I jog, eat right & fast as well. I am actually thinking about visiting a lawyer soon if this continues. I want to also state that b4 XERELTO I had a flat muscular stomach & muscular definition. Had I known that this might be permenant I would have NEVER in my right mind have taken this drug! Something must be done!!! This weird symptom is not acknowledged by any dr!!!

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Supermommy...i would be with you if the lawyer wants to handler a legal case... Just as bad as the water weight is the pain of it stretching everything across the top of my hips... Feels like it is just ripping the skin and muscles in there and any pants on the area is very aggravating...i pray the tumeric works.

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Supermommy you are right on point! I have filed an “Adverse Event” with the FDA and the manufacturing company Janssen Pharmaceuticals (Johnson & Johnson subsidiary). I’ve received no reply from either to date. I also contacted a legal firm in DC that was conducting legal cases with regard to Xarelto, but most of their clients had fatal or near-fatal bleeding episodes, so they declined to represent my case. If more of us tell our story we may get either the FDA or a legal firm to take our case.
I work in the medical field but this is not my area of expertise – we need a study done to evaluate what is happening to us with this drug!

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Have any of you noticed anything pointing to problems with blood sugar since or during xarelto? I don't normally have problems at all but seem to be getting shaky or dizzy/faint since I have been on it also. Then eating something helps stabilize me.

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When I was on Xeralto, I would go to bed but couldn't go to sleep because I was starving and had to get up and eat. This never happened to me before I started on it, and stopped when I finally convinced my doctor to take me off it. I was on Coumadin before the doctor put me on Xeralto. Never had that nighttime hunger on Coumadin.

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Lynda... How long were you on it before you quit taking it?

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Ok so still on TUMERIC every day in addition to the walking, working out & sauna. It seems the only real difference I have seen is in my ankles. My thighs, and stomach are still presenting with a dimpled appearance and have not had any difference in my weight. I was so optimistic there for a few days...it has been over 3 months since I have been off this poison XERELTO. I have never dealt with any symptoms like these before so in my heart I know Xarelto has to be the only cause. I am filing an "adverse event" with the FDA and will also consider consulting with a lawyer. The possibility of these PERMANENT strange side effects we are all dealing with were NEVER mentioned to us by our doctors or information given to us by the manufacturer or drug store. I for one would have never taken this drug had I been told if these possibilities. I have always been healthy and extremely fit. These possible irreversible side effects must be acknowledged so that others will not have to go through what we have been suffering with after taking this horrible drug.

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Hi. Still taking Bromalain, turmeric and a good probiotic. Some of the pain is gone in my feet, but they still hurt, and my stomach still looks and feels like i'm eight months pregnant. I also can't lose the 20 lbs I gained. I work out 5 days a week, and eat healthy. It's very scary and discouraging. I would join any litigation. I keep hoping it will eventually get better...

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Hello everyone. I went to my dr who I trust & expressed my concerns about the water retention & massive weight gain (30 lbs in 3 months!) from Xarelto. He sent me for blood work... lots of it. Awaiting results. He also scheduled me for a Doppler sonogram for my leg supposedly it will show the Amt of water in my body & if it is isolated. I am going next week. I also had an epiphany today & was wondering if anyone has tried giving blood. Since red blood cells regenerate when you give blood maybe we need to flush some out to make our body replace with some new ones. I know they recommend it for people with thick blood. Just an idea. Think I will try it. I'll try anything at this point. Please if anyone happens to try something that works to get back to normal please share! We're all in this together.

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