Please Help: Need Answers To Get Off Dilaudid (Page 3)

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I have been taking 3 to 4 8mg (24-32mgs) Dilaudid pills at 1 time usually around 3:00pm everyday for about 2 1/2 years now for back and nerve damage and would like to know the best way, medication, and dosage to get off this drug, also how long and how bad I will feel detoxing. The only time I have energy and feel good is the 2 or 3 hours after taking the drugs. Every muscle and bone in my body aches like I have a severe case of arthritis , i'm sleepy-but can't sleep an entire night, get a runny nose, yawn constantly and tired. I just want to feel normal again. Any help will be greatly appreciated. Thank you. 50

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41

hi my name is melissa, can you PLEASE send me an e-mail telling me how you weaned off the dilaudid, like, how many mg's did you decrease how & often & for how long? I AM LIVING IN HELL right now and REALLY need your help pls. respond.... my email is xxxxx@xxx {edited for privacy}.... pls. put in the subject : WEANING OFF so i know it's not spam or junk mail, b/c i wont realize who you are cuz i dont know your e-mail address...and anyone else who knows this PLEASE send me sugguestions... THANK YOU SOOO MUCH.. :)

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42

I am 25 years old and have been on just about every pain med known to man due to having an extreamly rare joint disease called synovial chondromatosis. I have had more surgeries than I can count on my knees since I was 9 and have been on the pain meds since I was 9 as well. I was taking 16-20 of the 8mg dilaudids per day, then my doctor was audited by the DEA and everyones meds got cut by a lot. I was then only given 8 of the 4mg dilaudids per day. I was one sick puppy for a very long time. After I adjusted to that huge change the same thing happened to my new doctor and i was cut again. This time all the way down to 2 of the 2mg dilaudids per day. Needless to say I'm one very sick little lady. Withdrawl is very painful and very miserable. Keep in mind I inject them due to the fact that taking them for so long has given me very bad ulcers from my throat all the way to my rectum. (asshole to appetite figurativly speaking) and I can not hold them down and immediatly begin to vomit blood. I have been doing what I have to do to not be in such bad pain and be able to function within reason, and if that means buying what I need off of the street after my script runs out which don't take very long when you are used to taking as much as I was, then that's what has to happen. I have been on methadone before and the withdrawl coming off of it is the worst feeling ever and ten times harder than any other narcotic opioid. I want to find a way to get off of this stuff before it kills me or I end up on dialysis because those types of meds kill your liver and kidneys. But I don't know how I am gona manage the pain. I have to have yet another surgerie in a couple of weeks. With all of that bing said, there is no cure for the synovial chondromatosis and prolly will not ever be a cure. There is less than 5000 cases in the entire world and only 3 are in women. Yay me lucky number 3. The dose that I am on now is not doing anything for me. What am I gona do with 2 2mg pills a day when I am used to atleast 8 4mg pills a day? Any ideas or am I just stuck taking them forever? The pain is just unreal. Without them I can't even stand up on my own mustless walk or do anything else. HELP ME!!! I need ideas on how to manage this and eventualy get off of the dialudids. I am allergic to tylenol and lortab (vicoden) for those who don't know that

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43

Suboxin is now available at your local MD's office. It is Buphenorphine, which is both an agonist, and it contains Naltrexone, which is an antagonist. It's not like a methadone maintenance clinic, but rathe you are "induced" at a certified MD who does this and gradyally you taper off. NO WITHDRAWL EFFECTS AND NO WAY TO CHEAT.
lOOK IT UP. ssBOXONE

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44

I've been on daulidid 8 mg. 5 xs a day since they screwed up the OxyContin , it does nothing now! I use to take 3 a day & was out of pain . Now with all these stories about daulidid , Ive been on them (5) a day Im scared to try & get off & how do I deal with the pain of my rt. leg at the knee to ankle ( I tore the muscle out of place, it's in front of my lower leg & sticks out w used & had 7 fractures fr. Knee to ankle .Also yrs. b4 had a c4-6 fusion with my hip bone that didnt work & when they put dye in my spine , they messed up my lower back Bad! ! I'm scared to try to get off daulidid ? I use to be on fentanyl patches & percs till they changed all the pain meds ! Boo to the DEA for Real Pain patients !!

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45

I'm curious as what you are doing at present time. It's difficult cause if you are in pain that's no way to live either. I been on methadone for 10 years. My dose is 36 from 100. Hoping to be free of it one day. But I have not felt any pain like in the past after back surgery. If I have pain then I think I'll just stay on it cause I hate pain....

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46

Go to the doctor and get some med's from him, it will help.
colonidin, and get some sleeping pills ambiem, will help. it will suck, but you can do it. and you will be taking a 65 pound dump, that will kill you butt. and your going to want to rip off your skin. get the sleeping pills, it's the most important thing you can do. And a hot bath helps to. i just found out i have hep-c and a Bicuspid Aortic Valve that i need replaced in my heart, today from the doctor. and i have only did iv drugs for two weeks. it's been a bad day for me. I hope tomorrow is better.

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47

try getting off suboxone, it's just as bad as heroin when it comes to W/D.

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48

Sandra I would like to know more about how you tapered yourself off the dilaudid

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49

I also have a rare condition. I have holes in my kidneys and pass 15- 20 kidney stones a month. I have been on pain meds 10 years. started with vicodin then percs then blues that I could never fill cause they were nowhere to be found. So they switched me to the Ds and methadone then switched the methadone because oh you can definately find the Ds and added nucynta because I could get those also. I have had my scripts for 2 weeks because now noone has the Ds and I have yet to even try the nucynta because the scripts have to stay together. I am not only dying from the kidney stone pain but also from the withdraws of not having my meds unless i get from friends. I am dying here, I don't have a clue what to do and why this is happening to me.

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50

You are a drug addict plain and simple. 1200 mg morphine?? Wtf?? Ard u kidding me??

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51

You are a drug addict plain and simple. 200 mg morphine?? Wtf?? Ard u kidding me??

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52

First off, ANY one who is suffering because they are under the supervision who does not understand addiction or how to treat people who have a history of addiction who ALSO have serious and very real pain MUST FIND A NEW DOCTOR RIGHT THIS MINUTE. There many excellent,caring doctors, who trust patients who tell them the truth and, above all, understand Pain Management AND Addicition Management. At the very least, anyone should be able to receive instructions for a reasonable and not completely disabling tapering from any addictive drug from a good doctor, and along with that there are many helpful, non addictive, and downright amazing drugs that help with withdrawals (Clonadine (to name one - and I did not say "clonazapam" -- which is a benzo and more like taking a short acting valium or xanax --- probably NOT the way you want to go unless you are carefully monitored on and off that again through your withdrawal. There are other things...so many options...find a pain clinic and they can work with you if your'e an addict, and work with you if you're not an addict. Then of course there are docs and clinics who work with methadone and Suboxone, too...if you're looking for something to stay with for a while. If you take the time to find these docs, and they are not hard to find right here on the internet, and are HONEST with them - know what kind of help you're really looking for...is it REALLY short term detox or are you looking to be on maintenence for a while? You have to know the truth for yourself before you can tell them...so think about what you really want, pray about it if you have that kind of connection to a Higher Power in your life, and then start talking to a doctor who you can FEEL is pulling for you. It's a wonderful feeling in a world where addicts get a bad rap, even by people who don't want to think of us badly, it's a hard discrimination to get over. Best to you all and if you want help you will find it...there is financial help, all kinds...but you have to get moving, and speaking your truth. peace, right?

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53

Welcome to your living hell ! ! ! Buwahaha ! ! !

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54

I just got off of delaudid and have been clean for 63 days... I had to go to a medical Detox cuz i cldt do it myself...i also go to alot of support groups....my life is looking so much brighter....good luck

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55

Yep. I generally suggest a cold turkey vacation in the bathroom for 3 - 5 days. A little clonadine (not clonopin!) and some Valium will help with some of the first few days of feeling very ill. A bottle of Imodium is handy. Keep some Kleenex or paper towels around. Maybe a small supply of some types of snack foods and a few of cans of soup... you won't be hungry for a few days. Some bottles of water. Take a multivitamin. Curl up in bed with some cable TV, a laptop, and a phone charger or something and be prepared to stay there for at least three days. Be prepared to stay pretty close to your bathroom for at least another 2 or 3 days longer. Simply accept that you're gonna feel like crap for about a week and there will be light at the end of the tunnel. PAWS... can last a little longer... but you'll be fully functional. Sleep will start to re-regulate itself after about a week. Don't count on much it it before a week unless you can find a decent amount of Valium.

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56

Hello, I have been reading along as you were looking for help and I have to say I am very empresed and proud for you to have beaten that battle of addiction.
I hope your still on the right side of the road and have not fallen back on the wrong side.
I would like to know how your sleeping and how long was it before you was able to sleep completely through the night?
Thanks and again congrats on beating this.

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57

Spread your doses out the runny nose and yawns from withdrawl

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58

Sharon,
I am in a very similar situation i take 10-12 dilaudid's a day. I have gone to 3 rehabs last year and the devil just keeps taking me back to that life style. I know what i need to do is first stop but thats my problem. I normally take suboxone but im still sick as a dog when I take it and I need to work and have kids to care too. I know whoevers reading this thinks im a pos mom and your right thats why im trying to get off. Did the subs work for you and how much did you have to do and did you feel sick, like cant get out bed sick? I was thinking of trying methadone 10mg this time. How many would i have to take to be able to function and get through my day and is it a good idea? thanks for letting me babylon I just have so many questions and nobody to talk about this stuff too.

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59

Thanks getting ready to try to come off dilaudids. Have been on them most of my life. I'm 54. Scared to death. Have liver disease taken Pegasus or would be dead. Sick of being sick. Take probably 15 to20 a day. Then run out to soon. And sick and scared again. Looking into doing at home, am worried about seizures,coma, and dying. But totally miserable this way. Wish me luck. And a few prayers wouldn't hurt. Thanks. Cat dancing

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60

2 weeks later than you. 44 yrs old and had Crohn's for 15 years at least (finally diagnosed in Florida when my intestines literally split open. 4 baseball size abscesses which had been draining... They had to take me apart and put me back inside. =)). Nerve damage to my abdomen, immediately put on Humira for Crohn's (Humira has f***ed my life but saved it as well). Been on every painkiller for quickly degenerating joints, spine and muscle fiber and finally settled on hydromorphone. Baaaad idea. Now, years later, I told my gp to give me marijuana or I'd leave. We settled on Sativex right now (which I believe is still in trial phase 3 in the US). Never have done any type of non-prescribed drug, so the first doses have really messed with me: very dizzy, locked to my bed, alone in my own head, but with withdrawal symptoms that are bearable. I'll be damned if I'm going to let this best me after the hydromorphone contin (slow release dialaudid) wrecked me for a month. It'll be out of my system and the rest is mental. But, if people are honestly giving quitting a solid try, and are being given a tapering schedule by their doctor and are still having those horrid body pains, headaches, nausea, diarrhea and those awful freak out pains in you legs that make you want, need, to run in yor bed, I would honestly explore medical marjuana that will just zone you out for the duration of the hard times. Personally, if I knew it worked even this well, at this tiny dose, I would have gladly called myself a pothead years ago. I look forward to getting through this week of hell and getting onto real medical marijuana called Green Crack which takes your body to no pain land and keeps your mind sharp during the day. My guts are working for the first time in years, just after 3 days off, and I'm hoping for some type of panacea. Hoping you all get better soon.

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