Multaq Anyone Else Take It (Page 6)

Okay I will start off by saying this drug scares me because it has not been out for very long. I have Afrial Fib which is not behaving I can be 70 beats one min and regular and the next I will be at 190 and in atrial fib and flutter. this is my last chance at a med I have tried all the others I usually end up in the ER two or three times a week. I have had one ablation so far. If anyone else takes it please let me know what it is like. I am starting it on Tuesday.

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Roberta -- is the BP meds that make your husband so tired? I've been on Multaq for five weeks now and it doesn't make me tired at all and I'm a grandpa in my sixties. I don't have blood pressure issues so maybe that is the difference. Best of luck to your husband.

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Dave,
My husband is in his 70's and has been on BP meds for years....prior to his angioplasty and stroke, he never had fatigue issues. I don't know what is causing this, but I doubt it is his BP meds. He takes Caduet and Micardis. I'm pretty much at my wit's end here. He went from the Energizer Bunny to Slow Mo so fast it made my head spin. He has very little deficit from the stroke, no speech impairment, no weakness or real memory problems. He sees his cardiolgist on Friday and I have lots of questions for him. Thanks for your posting.

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I can't compare ages and circumstances with any meaning; I'm almost 58 and in good health otherwise. I have been on Multaq since mid-November, got my CV on Dec. 31, and have been in NSR ever since. My energy level has been restored, the point being Multaq has had no negative effect on my energy level at all. I doubt Multaq is the culprit. Being in NSR has allowed me to get back to work (construction) with some gusto. Best of luck to your husband.

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Started Multaq 2/2110, have had ablation, depended on pacemaker, 2 attacks of AF since I started. So far side effects just tired feel like I could sleep all the time!!! Don't see Doc till end of March.

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Dave,
Did you feel tired prior to taking Multaq? I read in the side effects that fatigue and weakness are common, but many people on this thread seem to feel just fine on it. I hope you feel better soon.

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Roberta, I tried Multaq for about 6 weeks and finally got off of it 2 weeks ago. I was exhausted the entire time I was on it. I'm 49 and a preschool teacher with lots of energy but within 2 days of starting Multaq, I just couldn't function. I ended up having to take a leave of absence. I also had very bad leg weakness and pain. My doctors did lots of tests to rule out other things but everything is negative. I've been off of it for 2 weeks and I'm just now getting some energy back. I still can't prove it's the Multaq but don't know what else it could be. I would be interested in knowing if others have any side effects also.

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I have been waiting for response 106.
This was the experience that prompted my first entry. I have reduced the dosage to less than half, and I manage to forget to take it on occasion. I have not keeled over. Seeing the doc tomorrow to catch up. Defib unit scan last week reports normal activity. I have been
told that one may adjust to this one, but I am retired, 70, but a very
active classical pianist. I use a technique that would be acceptable to any Feldenkrais specialist, but you don't play classical music while sleep walking. So I very much understand the plight of a working
school teacher 20 plus years my junior. Let's keep all of us watching our progress as guinea pigs on this new drug, give our docs
hell about it if it is called for.

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Roberta, I felt fine before starting Multaq. I'm going to hang in there
for a couple of weeks. Tiredness is better than AF all the time. Who knows maybe side effects will wear off.

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Good Lord, Cyndin, I cannot say that I am happy that you had the same experience with Multaq as my poor comatose husband, but I am glad that he is not the lone ranger. It gives me some comfort to know that perhaps my suspicions are correct. He is 78 years old and I think his doctors think he is just an old guy with no energy. Prior to these meds and Multaq in particular, I could not keep up with him and I am 20 years younger than he is. He is getting very depressed, as well, which has NEVER happened before. He is the life of the party and truly one of the happiest people I have ever known. Now I have to figure out Plan B for him because this Multaq life is not living. Thank you for your post.

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PS.......sorry I misspelled your name!

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O.K. We have something pretty serious to talk about here. I'm copying
the relevant posts from 106 onward
and will present them to my cardiologist at a meeting tomorrow, check in with what he thinks. My team is centered on Stanford and U.C. San Francisco, is rated one of the best in the world. But there are no Gods with M.D.'s, and a
medicine that makes zombies out
of some its takers is one worth a deep inspection.

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Sam, thank you! I am in Naples, FL with a pretty highly rated cardiac team, too....we see ours on Friday and I will do the same.

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I might add that the dosage is rubber
stamped onto the package, may be enough to stun a whale for all I know.

Check with your docs, but mine had no problem when I told him after the fact that I was cutting the dosage at least in half. I am not in zombie land when I do that. Still,
I want off of this stuff if possible.

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I was trying to find out if anyone else had the same symptoms as I, severe fatigue to the point that I can hardly stand up at times and walk to the mailbox and back. I used to be very active also, getting very depressed about this and now having more chest palpitations than when I was on the flecanide.

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Hi - - I've posted here before but I noted another Dave so I'll change my handle to Dave from Denver. I am beffudled and, frankly, worried by those that report feeling tired from Multaq. I've been on it for almost six weeks and feel great. No lack of energy. should I be worried? Does it take time for the tiredness to set in? Thanks.

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Wow, for awhile there I thought I was the only one with problems with this med. I searched all over the internet and couldn't find any first hand info about some of these side effects. One thing I forgot to mention is along with the severe fatigue, I had terrible brain fog. Just couldn't think straight at all. I couldn't remember people's names or I would start to say something and would just get confused. I cut the dose back to 1 a day and that didn't really help much. Now that I'm off of it, I can think clearly again. I do have to say though, my heart was great while on Multaq. My pulse was a little too slow in my opinion but it was beating great just about the whole time. My afib isn't bad enough though to want to be a walking zombie all the time. Good luck to you all. I'm sorry to the ones of you having problems but I do feel a little better that I wasn't the only one.

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Well I have been on multaq for almost 3 months, I have had one oblation and am scheduled for another, I do not have the over tired issue, I have a problem gettting good long solid sleep, some minor rashes on arms. hopefully I do not get your symtoms. On a 400 mg dose 2X daily. still in afib.

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My husband has been on it for 3 weeks, Dave, and I guess he was on it for about a week when the tired thing started to happen. The third week has been pretty dramatic in he need to sleep. I think if it is going to produce these side effects, it will probably manifest pretty quickly, but that is just my experience with it. And Cindyn, I would have to agree that the brain fog is a big part of what he is experiencing, too. I'm relieved to hear that you are starting to feel better after two weeks off it. I'm sure not everyone will experience these side effects, but for those who do, it's pretty miserable.

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Medications affect everyone differently. Not everyone is going to have the same side effects. There is some talk of genetic testing in the future that will help determine what med and dose for each patient based on their DNA. I Have the started having the same brain fogg you are talking about, I feel like I start to say something and then I can't finish or make sense of what I was saying.

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To those who will be seeing their docs. soon, please let us know what they had to say! Also, maybe when someone posts a brief background (other meds, age, duration, etc.) would help us understand and better relate to wha't being said.

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