Medications For Lupus

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I AM HAVING A LUPUS FLARE. I AM SO FATIGUED I CAN'T DO ANYTHING, THE NAUSEA IS SO BAD, I CAN'T EAT. I'M DOWN TO 90 LBS (FOR MY HEIGHT, I SHOULD WEIGH 120 LBS). MY DR. PUT ME ON PLAQUENIL, EVEN THOUGH I WAS ADAMANT THAT I WANTED TO TAKE ATABRINE BECAUSE IT WORKED SO WELL FOR ME THE LAST TIME I HAD A FLARE. HE AT FIRST SAID THAT HE HAD NEVER EVEN HEARD OF IT BEFORE. I WAS STUNNED. I WAS EVEN MORE STUNNED WHEN MY DOCTOR, (YES, IN CASE YOU ARE WONDERING, HE IS A RHEUMATOLOGIST) NEVER EVEN TRIED TO GET IT FOR ME. HE SAID ITS NOT AVAILABLE. I KNOW THAT THAT IS NOT TRUE, I JUST DON'T KNOW HOW TO GET IT. ANYWAY, THE PLAQUENIL IS NOT WORKING, AND I AM GETTING WORSE. I CALLED LAST WEEK AND TALKED TO HIS NURSE, AND TOLD HER ABOUT WHAT WAS GOING ON. SHE CALLED ME BACK AND SAID THAT DR. NAVARRO WANTED ME TO CONTINUE TO TAKE THE PLAQUINEL. I QOT UPSET, AND ASKED HER TO ASK HIM HOW MUCH LONGER UNTIL HE TRIES SOMETHING ELSE. SHE CALLED ME BACK, AND TOLD ME THAT HE SAID HE WANTED ME TO CONTINUE WITH THIS PLAN FOR SIX MORE MONTHS. I JUST COULDN'T BELIEVE IT. THIS GUY DOES NOT SEEM TO REALIZE HOW PAINFUL AND SICK LUPUS MAKES YOU. THAT WAS THE LAST STRAW FOR ME. DOES ANYONE HAVE ANY SUGGESTIONS FOR ME FOR DIFFERENT MEDS (NOT STERIODS) THAT ARE OUT THERE THAT I CAN TAKE WITH ME TO A NEW LUPUS DOCTOR. ALSO, DOES ANYONE HAVE ANY SUGGESTIONS AS TO HOW TO GET ATABRINE THESE DAYS? THANKS.

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1

I have Lupus and tried using Plaquenil ,however, that medication did not work for me I use Imuran and have been on it for three years now and I do very well.

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2

Hi! I have lupus too for 15 years now and I have been on Steroids (Prednisone) ever since.....Initially I was on NSAIDS (can't remember the name) but it didn't work.......Now I'm on a maintenance dose of 7mg/day or 1-2 5mg tabs every other day at breakfast time coz I've read in Dr. Lahita's book that our body produces the same amount of steroids and you have to take the medication early so it will not interfere with the body's normal production of steroids........It's worked so well for me. Able to function normally without any pains.....almost no flares for several years now. I just go for annual bone mass scans and other necessary monitoring tests and take calcium and potassium supplements. I understand your concern about steroids....but having enough knowledge about it will help you manage it's dosage....others use it for flare ups only.....
But best of all, pls consult another Rheumatologist....if you are not satisfied with you current doctor's treatment. It's the safest.

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3

Other than steroids, you may ask about Quinine. Since you are in so much pain, though, maybe you should ask for a 10 mg Kenalog shot to try to ease your discomfort. I had a bad flare once and when I got the shot, I felt an instant ease (well, after about 20 minutes). You may also want to inquire about Xanax or something similar to try to calm your system down. Hope you find relief soon.

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4

I have recently been diagnosed with lupus it is currently affecting my skin only according to the tests I was given. I also am having trouble getting on the medication plaquenil and my doctor insists I keep trying. I am past the nausea and diahrria and am now dealing with the inability to do anything. Very tired all the time. no apetite etc.. mine seems to be healing on the body but the face and hands are still quite bad. I am so tired of staying in the house...I miss being out in the sun and around people.

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5

This is Slammer. I submitted a long list of medications and my ailments. I took my time and researched all my meds. and printed a copy of each. Thank you very much for your time and efforts.
The app. was very useful to me. Slammer

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