L-thyroxine Hashimotos

I have had narcolepsy for 15 years and its well controlled with provigil. October of 2014 after 2 1/2 months of different tests I was diagnosed with hashimotos with a 2.2 cm nodule. I have been taking 25mcg of l-thyroxine. I felt real good about 6 weeks after starting it but after being on it about 3 months symptoms started coming back. I never lost the symptom of being cold. I am so tired of being cold. The lack of energy and my legs feel heavy my voice is froggy and sometimes I feel dull pain in my neck. Just switched doctors a couple days ago. New Dr said if l-thyroxine dose isn't right it can cause being cold or hot. I'm waiting for blood work to come back. He is also checking my t3, my old Dr refused to. She said tsh .738(.350-3.74) and free t4 1.14(.76-1.46) were great numbers and there was no reason for other tests. I just wondered if anyone else ever experienced this from doctors? I know I don't feel right but when they say that stuff to you it makes you feel like maybe I'm just crazy.

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Hello, LIsa325! How are you doing?

Yes, your new doctor is correct, those symptoms may be due to your levels being off and your not being on the right dose.

The FDA lists the typical side effects of Levothyroxine as possibly including nausea, dizziness, weight changes and hair loss.

Some doctors just don't listen, or want to admit that they may not know all their is to know about treating a certain condition. So please, don't feel that you're crazy, you're not the first person to have to deal with this and I'm certain you won't be the last.

Can anyone with this condition chime in?

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