Dilaudid Pain Pump (Page 2)

I would like to talk to anyone who has a pain pump with Dilaudid. My mother has a pain pump and I am worried she will be on it for the rest of her life. She has had the pump for many years and I feel it has affected her greatly. She had to have all her teeth pulled because they were rotting and she also has a problem with her tongue burning and red all the time. I am worried she will never get off the pain pump because she is addicted... she also falls asleep all the time even while you are talking to her. Thanks for any advice. Teresa.

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It Serms as if the medication you're getting through your pump is more than your body can handle and that's why your constantly sick.

The Zofran bad patch behind the ear should help. If you're still sick you were giving the punk prematurely. Before getting it you should have been in a certain amount if narcotics and then shrub you fit the pump abc the meds administered directly into your body should not have been a problem.

Were you takin the narcotics orally as prescribed prior to getting the pump?

Sadly it seems like you might not have been (your doctor could have seen that if he checked your drug levels) so your pump was out in prematurely (it's a nice chunk of change for the doctors for this procedure).

Hood you germ better soon.

Maybe they should tend the pump out and just have you on oral oral pain meds.

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diluad doest affect your stomach or liver from what I have been told from a few doctors, because of the fact that its not going threw your mouth it bypasses those areas and goes straight into ur blood stream. so I don't think u have to worry about that.

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I have HAD 9 BACK surg within last 15 yrs among other surgical procedures.Main problem is bak my doctor has decided to try dilaudid pain pump needless to say I am nervous wreck. Ibe been taking 2 40 opana a day aand 4 30 oxycodone but it is pure hell trying to keep track of them my family members(sons)their friend)anybody who sees them will steal them from me if they cAN. Im one of the patients who is really in pain but Im at point I have to change something cause I really cant deal w/pain Today is my 1st day of pain pump trial so far I feel no change. The pump is a curling Medical 4000 CMS. any advice greatly appreciated.

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If this will give you any comfort I am going on 23 years now with the pain pump. I have had 4 of them due to the battery dieing. Now I have a very large reservoir and can go six months without a refill I forget its even there. My organs are as healthy as the day they put the first pump in. The only problem that I am experiencing now is I am building up a tolerance to the drugs in my pump and my pain is breaking through. I have 4 different kinds of medications at once in my pump going to my spinal column. I hope this helps you.

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Medical Marijuana does not assist Nerve pain. It may make you forget about it yes however there has been study after study that the THC in Marijuana will not help break through such as that in CRPS. The reason people get Meningitis from infusion pump implants? There are what is called upper essilion and lower essilion Pain Management Doctors. The pain pump has been around long enough now to where it has made it into the hands of the lowest of essilion Doctors. Workers comp insurance companies are using these Doctors to save money. The results are horrifying. A patient goes into see these DR's at the recommendation of these BIG insurance companies to get relief and end up 100 times worse in the out come then they were to begin with. DO YOUR HOMEWORK. Don't accept a Dr just because an insurance company made the recommendation to do so. INSURANCE companies these days ARE CORRUPT! Even the ones that give you a warm fuzzy feeling all over! THEY DON'T CARE ABOUT YOU!

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I have had my pump since Nov 4 with dillaudid. I'm only up to .2154 per 24 hours. I also have a remote that will deliver .21 every 4 hours as needed. No side affects except for problems urinating a little. I have been told that since the meds don't go into the blood stream .

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Teresa I had the same pump for nine months same symptoms and other problems . I finally. Had it removed I was going crazy and even tried to cut the pump out by myself. I would have bled to death but I called the surgeon . And now I am very happy with pills .now I control the medicine. Not the pump

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I have a medtronics pump put in recently and so far so good it's filled with dilaudid I was real worried about this I liked of not got procedure done. I injured my l4-l5 S1 about 8 years ago and live in chronic pain taking oral meds you name it i probably was on it I did not like taking all meds cause affected me physically with function and mind then it was like they just kept getting weaker till something had to change I was basically living in my bed. My Doc tried earlier to do pump but I kept putting it off worried about it till I got to talk to others that had it done. I could give my Doc a big ol hug this has been a big change for the good. By all means the pain is still their but at least it is at a tollarable state that I can live with I haven't felt like this since I had my infusion done at age 34. If it hadn't been for my wife and kids and my faith in God I wouldn't of made it this far. Some people have no clue what chronic pain is. Right now I'm just on pump every one in a while I have to get a extra bolus my Doc programmed so could do 4 in 24 hr period if needed at least don't have to go to er no more. My Doc tells me so much safer than oral meds its such a small volume it dont even show in UA's so that ought to tell ya it's not going through the body like oral meds do. It don't affect my mind I function perfectly fine I hope this continues to stay this way. And most important I had problems with my stomach on oral meds I'm not having any issues with the pump. It's nice not to be constipated all the time I had a real bad issue with that. Just thought I'd pass on my expirence with this inplant. Reason Doc went with dilaudid he told me was it took less medication and the cathader tube running from pump to spinal chord is at a very less chance to crystallize up that morphine was at more of risk. I'm no doctor but I think I asked mine so many questions his ears were burning I told him I was just concerned and he respected my wishes he didn't try to force the pump on me it took me nearly 2yrs to make my decision but I was at a point where had to do something and thought of my wife and kids and went through with it. So far I'd do it over to get the relief I've experienced. Just let me say this even though you fill better dont go out and overdue it ive seen this happen then you be back for another back surgery it takes good disciplen to know your limits because I know what I couldn't do before nothing changed but pain levels so be careful. Hope this benifets someone thinking about having pump. God Bless

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I have been on a pain pump for 18 years. I'm currently on my third, but my first one actually came from the doctor who designed the pain pump. It's probably the worst thing I've ever done. I wasn't ever able to stop the oral meds completely. I wish someone would have warned me about the long term side effects of dilaudid. My memory is just gone. It went on vacation years ago and never returned. My teeth are going bad, but who has any money left after seeing my doctors? I'm 37 and I live with my parents because I can't work. I think the pain meds are causing me more pain. I'm also very frustrated with my pain doctor. For some reason he can't understand why I want to get off the pump. I just found out that pain doctors trained in the last five years don't use them unless it's and end of life situation. I know it will take time because my dose is 7mg a day. It was at 10 before I came to my senses. I'm really scared because I need TMJ and jaw surgery in a month. I'm very happy it works for some people, but the long term side effects of the dilaudid can be worse than your original situation.

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You need to go to dr with her and talk to dr. She is on to high of a dose. Even if she still has pain as all pain is not treatable. If she is falling asleep after having the pump for that long she is on too much

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It's just the manufacturer is the one who put the writing on the pill.

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Hello, I have been in a study which the doctor has replaced the morphine in my pump with the Hydromorphine Hydrochloride. I too am sick every day, depression is setting in, still have chronic pain. Seriously thinking about titration off of this drug, and getting the pump removed. Where my pump Cath is inserted in my spine shows a bulging disc, and curvature in my spine. I'm not very happy, asked the nurse if anyone else in study was experiencing nausea, she told me no. I'm the only one having problems!

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Hello, I also have a Dilaudid pump. I know from experience, that the medicine that I receive through my pump, doesn't effect me with any side effects that are sedating in any way. But, I'm sure that not everyone has had the same experience for me. I can only advise you to go with her to her next pump appt. to speak with the PA-C or doctor who is caring for your Mom and her pump rate. Possibly the rate is too high? Any chance you know what rate she is at? I am at a very low rate, which is 1.56 mg for a 24 hour period, slow continuous release. I do have to say that in my opinion, that if a pump helps a person like myself who wasn't able to get adequate pain relief through the oral meds, that I would hope that she would keep it. And it is quite normal for your Mom's body to have become dependent upon the medication. I have lost a few pumps and trust me, you wouldn't want to see the shape that your Mom would be without her pump. Maybe she is at too high of a rate? My PA-C only increases me 10% at each refill apt and as I wrote earlier, I have no side effects of sedation whatsoever. The people around me say that they haven't noticed a difference in me either. I hope that this will help you.

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Your mum may experience arm and dry mouth so she could find some medicine that will help over-the-counter for patients with dry mouth due to taking specific medications but her teeth snapping come ruined just because you're taking the medication if her teeth are being priced in florist in them in the mouth rents you may have some issues because of the dryness but you should not lose out of your teeth just do you to with their medication

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I'm on my third pain pump. I'm currently on 5 milligrams of dilaudid a day but have decreased it from 10 milligrams a day. It was my choice to turn down the pump because I felt it had very negative side effects. I recently had reconstructive jaw and joint surgery and my tolerance was so high I had to be placed on methadone and dilaudid around the clock.
My surgery was performed in a different city from where I live so I had to use a pain management doctor from the hospital. They put me on so much pain medication in addition to my pump the doctor was shocked that I was still breathing without assistance. The terrible thing was my tolerance was so high they couldn't completely take care of my pain. Luckily I have face off all of my p.o medications. But my body is so out of whack from long-term narcotic use that any minor pain I have my body registers it as intense pain. I have also delt with many years of depression due to my central nervous system being suppress from the narcotics, at least in my opinion. I've had major problems with my teeth because I can't tell when there is pain in them. I suffer from bladder problems because of the medication. I've also learned new pain doctors don't use pain pumps unless it is an end of life situation. My deepest desire is to get off my pump completely, but unlike most of the posts I've seen it was my decision. I just can't live like this anymore. There have been so many advances when it comes to treating pain sense my pump was implanted 18 yrs ago. I now concentrate on meditation, yoga, exercise, acupuncture, strength training, and stretching. I will probably always have chronic pain problems but I'm more afraid of what I missing out on than being off the pain medications. I think everyone should make their own decisions when it comes to being on narcotics long term, but I feel there are other ways to deal with pain that doesn't include medication.

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My husband has had the pain pump since December 2011 and had to replace the first one because of complications one year later. He too has chronic pancreatitis and could not find any pain relief until the pain pump. December 2012 he had another implanted in a better area of his abdomen and has went from morpheme to a combination of dilaudid and the numbing medication that starts with B. I don't have his printout in front of me to tell u what the name of the medicine is. He has had some great no cream no Ola miles and it is other area and now seems to have relief, but he does show signs of falling asleep standing up falling asleep with coffee in his hand he constantly has problems falling asleep. He is afraid to inform his doctor because he does not want to be a decrease in his oral medication it is also helping with this pain. It's been a challenge to find a regimen of meds to help him. I encourage you to have a good pain management doctor as well as a GI dr that acknowledges the facts behind pancreatitis! A lot of nurses that don't have any experience with pancreatitis does NOT understand the dynamics of how bad it can be when the pain is NOT controlled. My husband spent 17 days in the hospital after his pain management decreased his oral meds even though his disease has worsened and his pain wasn't managed. I begged them not to do that and sure as I'm sitting here, they ignored us. He ended up in so much pain that he was begging for help the day I called 911! It was horrific! Please feel free to contact me {edited for privacy} if you need any advice. We've been to Cleveland Clinc, OSU Mecial, IUHealth and I can refer you to one of the best GI doctors in this area. Good luck And God Bless. Do the pain pump but make sure you do research as well. Look into a QOL (quality-of-life) representative to assist you as well. I've recently read online about how patients need a representative to observe the patients quality of life and to help them.

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You should do a living will and a regular will as soon as you can. You could be in a car accident on the way to work in the morning. God never garanteed anyone tomorrow. It will save your loved ones from all the fighting and stress of having to make decisions for you.

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The choice is addiction or pain. I too have a pain pump and use Dilaudid in it. It's lower dose than than OxyContin and Oxycodone I was on and the pain is better controlled. If your Mom is old she normally would sleep a lot.
Pain or enough medication to control the pain? What would your choice be?

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The coverage of pain via dilaudid in the pump is similar to IV but lasts much longer because the pump delivers the medication on a continuous basis and uses much less medication to cover the pain than IV. MY PUMP WAS initially filled with morphine but i opted for dilaudid instead because the side effects of morphine were too intense for me. I want to know how long the pumps last? I have a Codman 3000 since 2006. Do these pumps ever need to be replaced? Its been my God send to live as close a normal life as possible. It seems like it's not working right. Pump or catheter issue? I have permanent nerve damage in my c-spine nerve roots and make my arm and shoulder feel like it's being sawed off like the soldiers in the civil war days had to endure before anesthetic was invented.

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I have had a pain pump for about 8 years. There is 3 kinds of meds In it morphine, dilaudid and fentyryl but still in terrible pain. Wanted the pump taken out and the Dr said I am addicted now and couldn't survive the with drawls so what do I do? Now he has a new drug that is suppose to take all the pain away but I would be the 3rd pe son he has giving it to. So what do I do. Ant replies

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