Cellcept For Multiple Sclerosis (Page 4) (Top voted first)

cellcept was prescribed for me by neurologist for multiple sclerosis. Have had MS for 20 years and had symptom progression 2 years ago. Within 4 weeks I had almost complete turnaround with my MS disabilities. I could see better, was able to walk without my cane. I could swallow without choking. I speach and handwritting improved 100%. My doctor is with the Vanderbilt MS clinic. I have not been able to talk with anyone else with MS who has had such improvement. I have had no side effects. I must have CBC blood test every 6-8 weeks. Would like to hear if this is considered a break-through with other MS patients. I don't think FDA has approved cellcept for use in MS treatment.

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I was diagnosed with MS Nov, 2007 so this is pretty new to me.

For those of you who have had MS for years, what is your suggestion to me to keep myself healthy and out of a wheelchair?

I am currently taking REBIF 44 mcg. I am interested in taking a pill vs injections but it appears Cellcept starts off with a person getting worse before it makes you better and in some cases it appears, it doesn't make you better at all. I have had a conversation with another person who has also had this experience in Michigan; going from taking tysibri to cellcept and now says I wish I had not changed to CellCept and just stayed on Tysabri

I feel there needs to be more research done on Cellcept and MS before I will consider it's use. It appears to definitely be experimental and you have to allow all your other med's to expire out of your system BEFORE you can starting taking it. This allow the MS to become active again before it's being suppressed with a new medication. I'm not cool with that at all!

I have made the mistake of missing injections and trying to make them up. When I don't take my Rebif injection on the sheduled day I know that I missed that injection by day 3 because my left side is impacted with being able to walk becoming a challenge, my left eye vision gets blurred and grainy, my foot feels numb and my arm is weak. Then I have to play catch up. I could not imagine going a week or month without nothing before starting CellCept.

Has anyone else taken Cellcept?

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