Zepatier Diary & Discussion (Page 2)
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Updated

About to start Zepatier and would like to hear from others who are taking it or have taken it.

-How's it going?
-Did it work?
-Would you do it all over again?
-How are you feeling?

24 Replies (2 Pages)

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4

Day 5, starting to have headaches that come and go.
Not terrible ones, but you know they're there.

Tonight's the first night I'm having trouble with insomnia. Fell asleep ok, but woke up and can't seem to go back to sleep. Try to read, then turned out the light, but mind & body feel overly energized. Slept 2 hours, up three now.

Other side of face broke out also in a bump.

Still, want to be rid of this liver disease, so will push on.

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3

Day 4, only difference I've noticed is a couple of small itchy bumps developed on my face, and that's unusual for me. I put some Benadryl on and it stopped the itching. I've read in some articles that most all DAA will cause some dermatological incidences, and aren't serious unless they cover a large percent of your body.

Other than that, energy level is actually pretty good. No nausea, no diarreaha, no headache. Drinking lots of water. Sleeping good. Don't feel bad. Hope this helps others with their search on this med. I'll update again soon.

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2

Day 2 of Zepatier. No real side effects. I'm taking it in morning. Slept very well overnight. A wee bit nauseous immediately after taking it, but only for a few minutes. During day, I felt fine. Was able to drive, do normal errands. Actually feel energetic, like on caffeine. Had runs the first day 2x, nothing today. (Sorry if TMI, but I want others to know how it goes).

Will update again in a few days.

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OK so it's Saturday, February 24, 2017, and I'm taking the first pill of zepatier. I've read all about the older drugs and harvoni, and the possible side effects and long-term effects, so I know what I'm getting myself into.

I'm F0, my liver enzymes are in the 30s...viral counts in the millions with 1a...I don't know how long I've had this virus for sure, and that worries me... I'm in my late 50's, and only recently found out I had it.

But then again, I've been feeling tired a long time and I'm wondering if that's because my body & liver are constantly dealing with keeping this pathogen at bay.

I'm curious to know what it will feel like to have less of it circulating in my blood. And hence I'm starting the treatment with this absolutely brand new drug called Zepatier. Since I cannot find any posts that follow the progression of taking the stuff online (some people say they are starting it or they finished it, but they don't give any details), my goal is to let other people know my experience so they may decide if it's something they want to try.

Honestly, I feel like a human guinea pig. My doctor says "we just don't know ", saying that it's just too new of a drug, when I asked about long-term risks or long term SVR success. When I called Merck they just read me exactly what you can find online and all the pamphlets.

But as long as I've held off taking that first pill, out of fear of the unknown, Something inside of me also wishes I didn't have this virus in my bloodstream anymore... and so I've decided that I'm going to take a chance in at least stopping it from replicating inside me & see what that feels like. And so the journey begins. I'm optimistic and yet I'm realistic.

Anyone who's been through this or is going through this Zepatier treatment, please feel free to write on here...it would be nice to have some support partners.Thanks.

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