Xtampza Er Users Effectiveness (Page 8)
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I need ppl who have tried the new Xtampza er med to tell me if it works the same as oxycontin? I need to switch so I wanted to know the strength of the new med in comparison.

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44

At least you seem to have a positive attitude about trying to make it work. A lot of people on here are so negative. I've been on the Xtampza er for almost three months. My switch is just from rapid release Oxycodone 7.5 four times a day. My problem was that most days I only took three a day. With the Xtampza er I have gotten in an actual schedule. I'm getting the equivalent with Xtampza er that I got with the rapid release. I've never gotten my pain level down far enough for me to have any kind of acceptable life. Last time I saw my primary she said if I don't tell him it's not working the way I wish it would, there's no way for him to know. Honestly, I'm scared to death to ask that maybe he could up the dose with all of this bad stuff going on with narcs. I have an appt. Friday and I've decided to ask him. All he can do is say no. Anyway, back to you. You've been on it for a week which is longer than a lot of people. Do you know that you're supposed to take it with food (a clarification I'm going to ask Friday, how much, fatty or not, etc). Take Rx in a schedule-I take mine at 10 am and pm. Also, do you know that Xtampza er doesn't have acetaminophen in it. When I first started this drug I always took the acetaminophen with it (four times a day to compensate). When I saw my primary, she said I didn't have to take it. I could just use that for my break-thru. At three months, I'm still trying to make this new drug work. If I was you, at a week in, I would do the same. You seem to have a good attitude about the whole change. Maybe a few changes on how you actually take it or maybe up the dose would do it. Sorry so long but I so want things to work out for everyone and maybe we just need a little help on how this drug works. Work with your doctor. They want the best for you. Hope you'll check back here and let us know how you're doing good luck.

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43

i was just switched from oxymorphones to xtampza ER 27mg and for me i dont feel the work at all. had them for a week and hasent touched my pain. when i go back to my doctor i will be telling him they dont work and try another medication

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42

It's truly unfortunate that the future is bound to become much worse with legislation from Congress already in place under the guise of "doing something" by those that haven't any clue of the unseen and debilitating nature of what is always the go to excuse that it's all in one's head of those that are obviously lazy and dependent on entitlement programs. Our POTUS, AG, Speaker of the House, in their cushy jobs will never in this life grasp the concept of suffering; though are more than qualified to restrict access and fit everyone into a neat little box to stash away in a long forgotten corner under heaps of those earned benefits of Medicare, Social Security and the American Dream. This may be indirectly off topic, but in reality it is the basis of our increasing suffering in this day and age where knowledge succumbs to power. Good luck and best wishes to all. If you're like me, I am very reluctant to complain, but the rules are changing and rigged, so I too must change to survive, unfortunately.

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41

Seems overall consensus is that this new drug is not effective, plus causes side effects - I.E., mostly headaches. For me it s also too weak to do much for my pain, the headache however I've yet to experience (thank god). Pain has been ruling my life for 17 years now, so without good relief I stay bed bound and my body is being destroyed even faster due to stress on my organs and bodily functions. My most recent problem being heart problems which are too serious to have an ineffective pain med. My dr also says to take it with fatty food, which is not good for a bad heart, however after trying that there doesn't seem to be any difference so I'm not gonna do that for better relief since I actually don't feel it helps enough to risk a bad diet. I just want relief so I can stay outta bed part of the day and have a break from this constant torture. When will the evil gov take pity upon us and stop playing dr with our real lives. I am so tired of the struggle to stay alive. I need relief, I need the powers to change these murderous regulations and give me relief again like I once had. They are literally killing, murdering us.

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40

I'm glad to know that it's working for you. I'm in my third month on this Rx and I'm thinking that it's working. Some of the instructions say to take with food, some say to take with high fat and high calorie meal. I can't find details on what they mean by their instructions. Do you know exactly how much fat and/or calories they mean? I'm thinking that these amounts dictate how much of the drug is released at a time. Would appreciate any help. Again, glad for your success.

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39

I agree. I was on 90mg of ms contin 2x day and bc of the new dea regulations my doc had to lower it to 60mg 2x day. After being on the ms for over 7yrs it wasn't holding me over so my pm doc put me on the Xtempza. I'm lucky i had some of my ms left bc it took about a week for them to mail it to me and once i started taking it i got maybe 5 hours out of it and i got really bad headaches from it, not to mention the pharmacy didn't even know about them yet. Thankfully my doc put me back on my ms. I wouldn't take them again, they suck.

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38

I am on them as well. Definitely not as effective as other extended releases I've been on. I've tried both 27 and 36 mg capsules and noticed it took longer to feel any relief not to mention it didn't even last that long.

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37

Deborah I almost feel the same way but I went from Opana to this. Two 27 mg twice a day. So far not getting much relief and I have had headaches. I don't think due to getting of Opana because I have been off that two weeks. I agree it is,a shame that we are the ones to suffer. Also my insurance company is using as excuse not to pay but for half the amount.

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36

I am on the 27mg and they have worked great, it took about 3 days to get into my system. After that no problems felt great and and could function without feeling high or tired. I've even noticed when I run out of my Dilaudid for break through pain I'm not feeling the WD symptoms like the other meds I was on! So it's allowed me to cut back on them unless I really need them.

Best of luck.

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35

Are you on the 27 myself I recently started these the first month it was awful I started at lowest dose it put me on the couch for a month

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34

Taking two pills at a time would be doubling your dose for twelve hours. If the dose you have been prescribed is not working, you should talk to your doctor about a possible increase. Xtampza er does not have Tylenol in it. I just recently started taking Xtampza er and take Tylenol every 4 hours. I think it's working but only time will tell.

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33

I was a mail carrier for 17 years, never had did any drugs at all. I injured my back and developed osteoarthritis. I have had both knees replaced, a thumb joint replacement and shoulder surgeries. I had to leave my job on disability. Suffered 24/7 and depression was so horrible. I finally found a Dr. that prescribed the right combination of meds that I was able to function somewhat out of bed. I was on an ER oxycontin with a combination of other meds for break thru pain. Then because of all these addicts out here overdosing, they start changing everyone's medication. I have legitimate chronic pain and have never in 6 years failed not one drug panel, took my meds just like prescribed and now my life has been turned upside down. My Dr changed me to this Xtampza ER 36 mg and reduced my breakthrough meds to practicality nothing. This med is a joke, I almost feel as if it is a placebo. I suffer daily with headaches that I never had before. I tried talking to the Dr but he says the laws are changing and he has to reduce everyone.

How can these agencies that clearly know nothing about me judge what is right for me because of all these people who are abusing drugs? Where are the rights of the people with genuine chronic pain? I am back in bed flat on my back in terrible depression, I have no quality of life what so ever. Yet I have no rights to say walk in my shoes just one day and then tell me I am not entitled to be prescribed an effective pain reliever. I am sorry also that this has turned into a rant, but the frustration is so overwhelming. I know my family is so tired of listening to me complain continuously about my pain and the medication is not working and causing side effects on top of your already unbearable pain. I just wish all of these complaints could fall into the hands of a person who sincerely cared enough for those of us in this dark place and would find a means to separate those who deserve true treatment and those just looking for a high. I hope in the midst of all this, the answer you seek about this drug Xtampza ER will come thru. It's a joke, no pain relief and the side effects. Yet we practicality have no other choice, do we?

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32

I also have United Healthcare. My provider changed me from Opana to Extamza and they will not cover but 62 per month. Insurance companies are using this new law as a way to not pay claims or cover certain drugs.

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31

It's not just the government. Insurance companies love this new law because it gives them reason to deny covering only small quantity or not at all

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30

Ranting is allowed, we all know of the reduction of the quality of life and for many people, venting to those that really know and can sympathize with all that true my matters now, everyday, hour and second. At some point along this journey there will be some relief, more if those that think they know better leave it to the few that have been educated and preferably have experienced suffering of the magnitude where all passions in life are superseded because of the loss of the quality of life.

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29

I have seen many deaths related to OD being a cop for 17 years. I'd say 95% of those were people who did not take the medication as prescribed or purchased it in a illegal manner! Theses are the people that make it hard on those of us that need the pain relief for legitimate reasons. In very rare cases people do OD when taking meds as prescribed, usually the elderly who have many other medical issues.

If you take it as prescribed most likely you're not going to OD from it! After a head on traffic collision that required fusion in my c spine and 3 levels in my lumbar spine, I have been on IR and ER meds, some good some bad. My pain doc first put me on Nuycinta, what a horrible medication - it sent me into a 3 day psychosis which I have no recollection of. I was then switched to 30mg of MS Contin 2x a day but it did nothing for my pain. I was then switched to Exalgo 18mg once a day with no relief at all. I have never been on OxyContin or Oxycodone at any time. I just started Etampza ER 27mg 2x a day and I'm hoping that this med will give me the relief I'm looking for after 3 years of chronic pain and poor quality of life. I also have been on Dilaudid 8mg 4 x a day and to be honest I find better relief from that than all of the ER meds. If I could just take it 6-8 times a day I'd have better results than all the ER meds combined. I had to retire from LE due to my injuries so the depression of that and depression with pain has had me close at times to eating my gun. Luckily I look at my children and would never do that to them. The fact that the DEA and government are making policy that force us to take what they think is best for us is a concern we all should have. A stupid few who want to feel high and have no legitimate reason for taking these types of meds is who the DEA should be going after, not those of us who need them just to have somewhat of a normal life with as little pain as possible.

Ok sorry if this was a rant but I feel for all of us that have to live our lives that vary in a level of some quality. I will give this Xtampza a chance to work. I know that not all my pain will be gone, but just enough to be able to enjoy life outside instead of in bed cause it hurts too much to do anything else. I will update and inform people that are interested on how this new med works for me.

I wish you all luck with your pain issues!

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28

Surprised that you can have this delivered. Thought all opioids had to be picked up at pharmacy. One thing about this drug is that there is no Tylenol in it. Not like regular Oxycodone. I'm really confused about instructions for taking with food. They're not clear at all. Does anyone know about taking Xtampza with food? Instructions say with same amount of food each time. Exactly how much food do they mean? I don't have any trouble with swallowing pills so those instructions do me no good. Thanks.

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27

I just had my 5th major back surgery. My insurance won't cover oxycontin so the doctor wrote a script out for 36 mg of the XTAMPZA ER 2x a day, but I'm not getting relief. I woke up in terrible pain this morning. I see a surgeon tomorrow to get staples out. I need to tell the surgeon that the medication isn't working. I'm so upset. I just want some relief. The only thing I find that helps me is oxycodone, either putting me on 30 mg's for a month then going down to 20 mg's and see what happens. I'm tired of pain. I'm physically and mentally exhausted from all this.

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26

Agreed writing our reps & senators should help, which actually I have done with no effect or answer to my troubles. Seems this war is beyond the concerns of our reps-it is in more powerful hands that have control over everything & body.
I know the CDC guidelines had asked for responses to their proposed guidelines then after thousands responded unfavorably it was said that too few responses objected to the guidelines and more favored them-which we all know is not true. Propaganda to the public is what I call it, keeping the public in the dark about truth in this war. By spewing lies and scewing numbers they make it seem all pain relief medication is evil and resposible for crime and death.
There must be a way to stop this take over. Idk, hate feeling helpless from pain robbing me of life.

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25

One thing we all must do for ourselves and those yet to come. We all must write, a letter is personal and there is a much better chance to both be read and replied too, to each of our Congressman and Senator's. And don't be shy to make it personal just as one would with their doctor. It is the only way to know you've been heard and if there isn't any reply, write one that much louder until you do recieve a reply. These people don't and wouldn't know the truth on an individual level and we know that unless they are in the same boat, nobody gets it, doctors are not much better at truly understanding. Writing one a week or month or whenever the pain strikes a nerve, write a letter telling them there is a real and moral issue. Placebos song cut it under any name.

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