Xarelto Bleeding - When Is Bleeding Too Much?

I am a 39 yr old female. I had my 2nd open heart in Jan. to fix an AORCA & developed a sizeable DVT due to the closure device used when taking me off the pump. I had another surgery to remove the DVT & insert a stent & was sent home on Warfarin, Lovenox, plavix & aspirin. I had episodes of nosebleeds & blood in my urine which the doc said was probably due to the plavix & would likely stop in Mar. when I stopped the plavix. When the shots & warfarin didn't budge my INR they referred me to the clotting & bleeding specialist who put me on 20 mg of Xarelto daily & told me to take iron 3 times a day. I've been on the Xarelto 3 wks now & have lots of blood in my urine, headaches, weakness, & a lot of GI pain with nausea & vomiting. I have a long medical history of kidney stones & problems with acid & ulcers in my stomach. They've ruled out any actively passing stones as the source of the blood in the urine. The hematologist seems hardly concerned but my family & I are & the episodes are more becoming more frequent not less. The bleeding is full toilets of bright to dark red blood. I'm thinking of going off the Xarelto. How much bleeding is too much? I can't run to the ER all the time & I've got 4 more months to be on this blood thinner....

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Hello, Rare1! How are you? I'm very sorry about the problem you're having and understand how terrifying that would be.

Have you tried taking pictures to show the hematologist how bad it is?

Many people panic, so he may not be realizing how serious your bleeding is, I'd also suggest taking a few family members with you to tell him.

The FDA lists other typical side effects as including nausea, dizziness, headache, muscle aches and easy bruising.

Does anyone else have any ideas?

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