Where Can Jakafi Be Bought? (Page 2) (Top voted first)

Does anybody have an idea how can Jakafi be bought outside the united states? what is the price?

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Hello!

My father is suffering from post Essential Thrombocythemia Mylo Fibrosis. The MF started around 3 years back. Last 1 year blood transfusion was effective. Now it is not responding well. The Hb is around 6.3 & Pt counts are 96000. Doctor has suggested Jakafi. I would like to take suggestions as to how much the cost of Jekafi is in India and how long the treatment is to be taken at this stage. Please provide information as available with you. Thank you

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Is ruxolitinib of jakafi available in what pharmacy

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Mike, I am buying JAKAVI (Ruxolutinib) from Mount Elizabeth Hospital in Singapore. 56 x 20mg tablets cost me approximately SG$9680.00 and when I leave I get 7% tax back

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Can u pls tell me in Singapore from which pharmacy u bought jakavi. I will be grateful.

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Dear Sir, I was buying Ruxolutinib from the pharmacy in Mount Elizabeth Hospital but it must be by prescription and ordered from the specialist there, Dr Patrick Tan. FYI, I have stopped taking it as the effect it was having was minimal and the cost is excessive and I am now having inj's. of 40,000 units of EPREX every 2 weeks, in Indonesia where I live, and I have been able to get my Hemaglobin up to 9.8 from 8.2. I am taking pain killers for the constant headache that I have. My spleen is now very large and uncomfortable but there is nothing else I can do and my future is now in the lap of the Gods.

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I am diagnosed with myelofibrosis and am on transfusion. my CBC, hymogrobin falls upto 5.5. my platelets are between 40 to 60 thousand and hence I could not have jakafi please advice.

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Dear all readers. If you have been following my (sporadic) messages you will see that I stopped taking Ruxolutinib as the cost was too high and the results were not as good as when I first started. Dr Tan from Mount Elizabeth Hospital has now got me on hydroxyurea and the results have been astounding. My spleen has shrunk by my estimates about 35%. I am taking 40,000 units of Eprex every 2 weeks and my haemaglobin is up to 10.9. The only side effect that I have had is some small sores in my mouth which I cleared up with a gargle of peroxide for a couple of days. I will go back the MEH in 2 weeks time for another check but at the moment I am extremely pleased with the results and when you consider that I was advanced stage 4 myelofibrosis when I first went to see Dr Tan and only 3 weeks ago when I went to see him again after an absence of more than 8 weeks, my spleen had grown and was about 6cm below my naval and I was suffering weekly bouts of illness where on a couple of occasions I truly thought that it was the end, to now, where I am better than I have been for several years and it has been 2 weeks with no illness and still feeling great. I know that this may not work for everyone and I am blessed that it is working for me, for which, I am truly thankfull.

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I have been on the drug for 7 months at a dosage of 15 mg twice a day for a total of 30 mg. In June started to "feel" bad but could not be very specific and blood counts looked good.

I did see my WBC dropping (Good? but did it get too low?), and my RBC and Hemoglobin counts going down but, at the time, still normal. Assured all was fine. Four weeks ago woke with horrible headache and within 4 days fever of 103.8 F. But my WBC showed 6.1 and no infection. How can that be?

Was hospitalized for 2 weeks and never a diagnosis of where the fever was coming from. In the meantime, RBC and hemoglobin dropped below normal but PLATELETS are up so having to take aspirin. Decided to come off the Ruxolutinib and now need to consider if I want to go back on. It has helped my fatigue and my muscle/joint pain. I was almost in a wheel chair and it started to turn that around dramatically.

Since your experience was some time ago, can you please provide me an update? Did you get off the drug, stay on, get better, etc.

Thanks so much!
Joyce

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Jakafi is still at experimental stage, though launched quite recently in India, buying it involves long process, but then its very very expensive and almost very difficult to afford. Every time we have to buy this medicine, we face lots of problems, despite paying exuberantly. Extremely sad to experience the worst state of affairs of the Distributors and overall conduct of the MR involved in India. They charge you and then act rude. Almost every time me or my parents have to go through a long hassled process to get the medicine. Almost cried twice to get this. Instead of being compassionate to the patient, they behave like god. Its becoming a life saving' dependency' drug.

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Steve, Can you please provide the contact information for the clinic in China.
Thanks.

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Gurcharan can you please share your experience? My father has been advised jakafi recently.

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Hi. I have not been able to find a Chinese practitioner in the U.S. who feels they know anything about this illness. Can you please send me contact information for this clinic/where I can obtain this medicine?

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Anyone know how to buy this Jakafi in Vietnam? {edited for privacy}. Thank you

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Cn you please give details about the location of this clinic in Beijing?

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Dr. Elliott Winton
Winship at Emory in Atlanta, GA.

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Please supply contact info for the clinic in China. I am still looking. Thank you,

{edited for privacy}

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My dad is drinking jakavi. I buy jakavi in Malaysia.

{edited for privacy}

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Re: Pat (# 5)

Hey Pat, even my father is suffering from myleofibrosis. Did jakavi help you to control growth of your spleen.And are you suffering from polycythemia Vera? If yes how is your current treatment.

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Re: Steve (# 31)

Hi Steve, I’m interested to try the chinese medicine. My brother has the same case as u. His spleen covers almost half of his stomach. He has ascites and edema. We want to try other medicine coz jakavi is too expensive. It's a big help if u can share with me the name, address and contact number of the chinese clinic. {edited for privacy}

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Re: lizzy (# 3)

There are very good doctors in India.

Mr. Shailesh Singi, Hematologis, Hyderabad

Century Hospital - Road No.12, Banjara Hills, Hyderabad, Telangana, 500034

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Can not seem to find it any where ## Hello, Woods70! How are you? Did you check with your pharmacist? Some of these prod...

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bought in Belize as a diet drug, white oval with lowercase de or ap ( epending on how you look at it) on 1 side,a sort o...

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I have been on clinical trial 2 yrs for myelofibrosis and wanted to know if anyone's health insurance is paying for ...

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Yes, it is available in India. We bought it for my brother in Mumbai - {edited for privacy} ## One of my friends require...

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I am taking 30mg a day for Polycythemia and have a side effect which is puzzleing. Suddenly I have no saliva and raw ins...

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Purchased soma and tramadol on vaca in costa rica about 6 months ago. I just found two large white round pills scored on...

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My mom is on jakafi and had a heart attack does she need to take her off jakafi be course a Stent or surgery ## Hello, L...

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I got a diet controlled prescription from my doctor to try and see if it would help me loose weight, this was the first ...

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Dark green pill scored with 137 on the other side. Apparently bought from army supplier?. ## I'm not finding a listi...

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My mom was recently (two weeks ago) put on Jakafi, 10 mg twice daily. Her red blood cells went from 10.5 to 9.9...someth...

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