Side Effects And Lack Of Transparency Harvoni (Page 2)
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As I read the side effects I find myself getting more and more annoyed at big pharma. If you google Gilead and litigation you will see that this drug was pushed though trials and sort of held back side effects. In addition that's not really safe because the people that participated in the trials were very ill. My hepatitis was fortunately stable, as i posted on another thread 2 wks into this and i am going to the doc tomorrow and saying OFF! Of course they cover their arse and do the labs to see if its not anything else. My face is pasty white, i discussed the mood swings i am like a black box warning but alive. its taking every bit of energy to keep my emotions in tact. I DRINK a Gal easy of water, its not the water, its the freaking drug! I think they are either dismissive or don't care that the drug really was not researched enough to list the side effects they just want to make money. After 5 years if this 2 weeks didn't kill me i will come back. I never had anything pushed on me so much in my life its like it was gold to them. NO WAY was there not money involved. I am not an idiot. To those of you who completed treatment with little to no side effects, i commend you. The rest do your research before you take this monster, its heavy stuff and we have only one body. Be well and God Bless.

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REPORT

The FDA reports show all sorts of problems being reported to the FDA but doctors are not talking about it and the FDA is not releasing the information. This medication is not for everyone. Many have died due to "unexplained" organ failure, aggressive liver cancer post tx, and so many other issues.

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I posted a message here yesterday but can't find it?

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They lied to the doctors. I'm on day 60 of a 90 day regimen. They lied and said no one has ever had side effects bad enough to make them stop. First thing, was it made my Fibro worse. I waited a week and started again. A month ago, i was sleep walking, just once. I am 67 yrs old and never had this problem, terrifying. I may have had a concussion. Anyway....2 weeks ago i started smelling putrid cigarette smoke all the time! Neurological probably. It is awful. And my issues from chronic Hep-C were not serious! Scared and pissed off.

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so sorry could you please tell us were to go to file a complaint? thankyou

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Could you please tell me which forum you are referring to about the young woman who's father died after the starting harvoni? My father was hospitalized 2 days after beginning the treatment and passed because of organ failure but the causes and what really happened to him are unknown. The team of medical professionals could not find any reason. I am curious to know if there are others who have had this same, terrible outcome. Thank you.

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thank you for sharing, I been on at least 20 sites about this med, I stop after 7 weeks, now my hpc gone after testing 4 months later, I and the doc tell u that u need to keep going on taking this meds, well it has messed my life up and , I have no one to blame but myself and the sorry doc, in new Mexico its all about your monies that they can get to the ins company's, told my gi doc that I was passing out 3 time, no energy, lack of sleep ,and had to keep my job in the oil and gas field, working 14 hours a day, now I can even work , much less find a job for a 60 year old man that has,work his whole life, so If this even get posted because a lot of my comments have not been posted, all we can do is pray,i guess, ???

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Jim posted on page three. I know him from a group that I run of those damaged by Harvoni. He had every possible side effect you could think of and the VA failed him horribly.

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Jim posted on here? How did he die? Thats horrible! and scary. What were his symptoms?

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Just to bring some reality to this. The one with the username Jim who told you of his problems has now died. He was a young 57 and active and vibrant before Harvoni. He had no liver damage and was very healthy. He died several days ago. This is reality.

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I am post one year, my body pain is aweful. I am taking two 100 mg demerol a day and it is not enough. I can't stand this much physical pain in my hands, wrists, feet, hips, back and legs. I am in a closed group and we just lost a member who died of complications from the drug, we don't know what he actually died of to be exact, but it is so very depressing.

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Brenda, Are you the one that posted ealier about taking a magnesium supplement? I started taking one after I read that and I really do think it has helped. I still dont feel 100% like i did before, but i believe the PVC's are pretty much gone now. I also chose to just try to ignore the symptoms, but when my heart was skipping every few beats it was really hard to do. Im still taking metoprolol but have lowered the dose to 6.25mg e/o day, over the last few months. I probably could stop it altogether now. I have some other rather minor symptoms that I didnt have before like muscle aches, and my chest sometimes still feels tight, but for the most part I feel ok. Im 60 so I imagine a lot of new symptoms appear just because Im getting older. Im relieved I dont feel like I did several months ago. It was pretty bad. I feel bad for those still experiencing a lot of symptoms.

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Yes I have been off of Harvon for 6 months and wish I would of never taken it! Sorry ass gi doc would not listen to my problems! So i hope that you stop take this med i went from a oil and gas worker to not working at all! I has messed my life up. Docs will not admit they wrong so My life ruined! May God help us because no one else will

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New Day and other harvoni survivors,

This was the worst medicine, I thought I was dying after 8 weeks. My Dr. left it up to me to complete the 12 week dose, saying it may not be cured unless I finish. I my skin really looks bad. I had beautiful skin, for my age am 65 now, keyword had, I have lost hair, and my hair is dry and changed texture somehow. Nothing fixes it. I had severe migraines, extreme fatigue, my blood work (I am also a kidney patient PKD) shows that I'm still clearing creatine, but my blood work went to hell after 8 weeks on that orange pill. I was beyond miserable. I am still dizzy when I look up and down, sometimes it's scary. I would NOT do it again. I still feel worse not better. My liver is still inflamed and I hurt. Everything I read said how great this drug is. I'm happy for you if that is true, and you were not paid by the drug co. to endorse it. They say my load is 0. I feel worse and would rather have hepc. My load was way under a million. My skin is worse, not better. I have tons of white spots all over arms, shoulders, upper chest before my neck. Yuk. For me I would NEVER do it again, feel like it ruined my life. I would of stopped at 8 weeks but my daughter begged me to remain on it, so I went the 12 weeks. Off since Nov 2016, still feel terrible. Waiting for results from a CT scan now. I also have extreme swelling, knees, kidneys abdomen. Blood pressure high. Sensitive people BEWARE. Hindsight is 20/20. Hope you have better luck. My migraines finally subsided after a few months off, but my ears are ringing My body much worse. My blood work after being off harvoni for awhile, went back to normal. Viral load 0 for now.. May God bless and protect you.

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I just wanted to tell you that for most of the people I've spoken with the side effects were not THAT bad. It felt to me like I was "under the weather" most of the time. It was the most horrific time in my life (other matters) and being on such a strong medication was harder because of the trauma. But I did get through the 6 months; cleared the virus in 5 weeks. It wasn't fun, but bearable. Now the interferon/ribavirin (which I tried 3 times and each time my medical people took me off. The sides to that combo almost killed me.

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I took Harvoni for 12 weeks (Feb. to May 2016), developed heart palpitations (I'm 55). Doc did complete blood work up, EKG, home heart monitor, ultra sound of my heart. All came back "normal" although one doc did confirm some extra beats were detected with the Holter monitor. I just stopped focusing and worrying about the palpitations and they have gotten better. I'm VERY active and I really don't even notice them anymore except at bedtime when I'm relaxed...but, again, I no longer focus on them; it seemed like the more I concentrated on them the worse they felt. I literally taught myself to ignore them and continue on with whatever I was doing. So, with that said, I'm doing really well all in all. Hope everyone else here is finding more peace with any lasting side affects you have. Wishing you all well.

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Debbie, how long ago did your brother stop taking Harvoni and when did the symptoms start.
And anyone, Im trying to find out if these symptoms will ever go away or if Im stuck with them for life.
Has anyones symptoms that they got from Harvoni gone away and how long did it take and what did you do?
The only symptom i have really are the PVC's. Although generally I feel more tired and have a lot of aches and pains, a lot around my neck area. but i cant really for sure say if that came from the Harvoni. i was in a car accident April 2016. i think some of my pain is from that. its too slight to treat, but annoying just the same.
My last dose of Harvoni was Aug 4, 2016.

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This is a very dangerous drug, my Brother has been very sick every since he took this drug, he had bad side effects and they still kept pushing it. He has been in and out of hospital every since. He just had major surgery yesterday to remove the sack around his heart. I can go on about what this drug has done to his health.

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on magnesium I am taking Magtein,,magnesium L Threonate
2000 mg 3 times a day,, it helps with leg cramps

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I am in so much physical pain with my hips, back, feet, legs and wrists. I can barely stand the pain and resort to pain meds by the end of the day every day. I am sick of feeling this bad.

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I agree with you in every way. I'm struggling to get through this. I have contacted my Hep C Dr. and my primary care Dr. and said this is not right, They are testing me for everything possible. I know what it is, but I don't know how to correct my immune system or any other part of this. People don't understand the magnitude of these after treatment illness. I am in complete symphony with you I do understand you pain.

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