Side Effects And Lack Of Transparency Harvoni (Page 6)

As I read the side effects I find myself getting more and more annoyed at big pharma. If you google Gilead and litigation you will see that this drug was pushed though trials and sort of held back side effects. In addition that's not really safe because the people that participated in the trials were very ill.

My hepatitis was fortunately stable, as i posted on another thread 2 wks into this and i am going to the doc tomorrow and saying OFF! Of course they cover their arse and do the labs to see if its not anything else. My face is pasty white, i discussed the mood swings i am like a black box warning but alive. its taking every bit of energy to keep my emotions in tact. I DRINK a Gal easy of water, its not the water, its the freaking drug! I think they are either dismissive or don't care that the drug really was not researched enough to list the side effects they just want to make money. After 5 years if this 2 weeks didn't kill me i will come back. I never had anything pushed on me so much in my life its like it was gold to them. NO WAY was there not money involved. I am not an idiot.

To those of you who completed treatment with little to no side effects, i commend you. The rest do your research before you take this monster, its heavy stuff and we have only one body. Be well and God Bless.

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I am 2 years post tx, I am still suffering, headaches, bones and muscles hurt, feet are numb, low back pain is horrible, fatigue, brain fog, and who would not be depressed after living and feeling good, to this. I went in working and now I can't do much of anything, my life is full of physical pain. I can't afford alternative medicine and no Dr will admit taking Harvoni did this to us, or it changed our immune system so much it is now attacking other parts of our bodies. Makes me sick to see the big pharm Gilead making millions on this one med and taking away the lives we once had

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Re: New Day (# 2)

I think so too. It was approved in October of 2013, I think. I started January 1st of 2015. My stats were getting bad (3 and a half out of four) so I was (foolishly) anxious to get it started. These years later, I am so sorry I didn't wait longer. I have almost every after effect that we talk about here.

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I finished treatment about 2 yrs ago. I wish I never touched it. I do not believe these people. I'm 67, now my life what's left of it is stuffed. So many problems. No help from anyone. Let me know if you need people to sign anything to get some kind of apology from these people? I've dealt with shady types before but these liver people are the worst.

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Re: New Day (# 2)

Hi ,I'm in Australia I did Epclusa similar to Harvoni,2 yrs ago ,my life is ruined thanks to Gilliard, breathing issues nerve damage aching legs joints , infections that take ages to heal neuropathy type problems,I'm 67 now pre treatment I was feeling great compared to now ,I'd rather have hcv then fee like I do now,liver nurses drs take no responsibility don't believe anything against there wonder drug that's killing people.

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Re: New Day (# 2)

Hi Everyone. Good info. I took Harvoni June 2016. it did hit me hard. Big Fatigue, brain fog. headaches. But I have noticed I'm still not the same :( still have fatigue, weak nervous system. brain fog. At first I thot it was situational or just 'Me' ?? But when I link how I felt taking it and after 4+ years I feel symptoms like before. I will say, 2 years after taking Harvoni I felt pretty good, but then symptoms of weakness began. We all know our bodies, we know when somethings wrong!
And I have been feelin for past year sharp (like knife slicing) pain in my liver. I had Liver scanned they said they didn't know why but they did find a blood mass (Hemangioma maybe). First gut feeling was Harvoni. And that I had 'slightly' elevated viral numbers. Why I asked. they didnt know. Just that I have to have it checked every fee months. Coincidence? Im kinna doubting it now. :( I hope all who have to deal with this diagnosis and treatment will do okay. Its a hard drug with know long term studies, simular like the new vaccines, we just don't know We have to wait, im sorry to say. Harvoni stopped the reproduction of the virus but at a price. I am but worried, sigh.. but have to wait and see. Keep good care One & All, ??? Pearl

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Re: New Day (# 2)

Hi Everyone. Good info. I took Harvoni June 2016. it did hit me hard. Big Fatigue, brain fog. headaches. But I have noticed I'm still not the same :( still have fatigue, weak nervous system. brain fog. At first I thot it was situational or just 'Me' ?? But when I link how I felt taking it and after 4+ years I feel symptoms like before. I will say, 2 years after taking Harvoni I felt pretty good, but then symptoms of weakness began. We all know our bodies, we know when somethings wrong!
And I have been feelin for past year sharp (like knife slicing) pain in my liver that comes and goes thurout the days. I had Liver scanned they said they didn't know why but they did find a blood mass (Hemangioma maybe). First gut feeling was Harvoni. And that I had 'slightly' elevated viral numbers. Why I asked. they didnt know. Just that I have to have it checked every fee months. Coincidence? Im kinna doubting it now. :( I hope all who have to deal with this diagnosis and treatment will do okay. Its a hard drug with know long term studies, simular like the new vaccines or any drug/vaccines, we just don't know, We just have to wait, im sorry to say. Harvoni stopped the reproduction of the virus but at a price. I am but worried, sigh.. but have to wait and see. Keep good care One & All, ??? Pearl

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Totally agree I'm in Australia did epclusa same as Harvoni,it's been 3 yrs since treatment getting a new problem every couple weeks,I know of people who have passed on , the liver people who pushed it on me have been no support at all ,worse then pushers.

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Re: jane (# 8)

Great Post. I agree with everything you mention ,I finished 3 yrs ago epclusa same as Harvoni ,I now have many health issues. Thanks

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Re: Verwon (# 1)

Hi Verwon, yesterday I was reading a message from somebody called Gypsy Rose. I think it was about living with COPD and having shower problems, etc. Unfortunately, I couldn't reply to her because I couldn't remember my login details since I wasn't at home. Unfortunately, now I can't find her message, but she was looking for information about showering with COPD problems. If you have any clues, could you get back to me? Thanks.

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