Side Effects And Lack Of Transparency Harvoni (Page 5)

As I read the side effects I find myself getting more and more annoyed at big pharma. If you google Gilead and litigation you will see that this drug was pushed though trials and sort of held back side effects. In addition that's not really safe because the people that participated in the trials were very ill. My hepatitis was fortunately stable, as i posted on another thread 2 wks into this and i am going to the doc tomorrow and saying OFF! Of course they cover their arse and do the labs to see if its not anything else. My face is pasty white, i discussed the mood swings i am like a black box warning but alive. its taking every bit of energy to keep my emotions in tact. I DRINK a Gal easy of water, its not the water, its the freaking drug! I think they are either dismissive or don't care that the drug really was not researched enough to list the side effects they just want to make money. After 5 years if this 2 weeks didn't kill me i will come back. I never had anything pushed on me so much in my life its like it was gold to them. NO WAY was there not money involved. I am not an idiot. To those of you who completed treatment with little to no side effects, i commend you. The rest do your research before you take this monster, its heavy stuff and we have only one body. Be well and God Bless.

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Just to bring some reality to this. The one with the username Jim who told you of his problems has now died. He was a young 57 and active and vibrant before Harvoni. He had no liver damage and was very healthy. He died several days ago. This is reality.

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Jim posted on here? How did he die? Thats horrible! and scary. What were his symptoms?

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Jim posted on page three. I know him from a group that I run of those damaged by Harvoni. He had every possible side effect you could think of and the VA failed him horribly.

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thank you for sharing, I been on at least 20 sites about this med, I stop after 7 weeks, now my hpc gone after testing 4 months later, I and the doc tell u that u need to keep going on taking this meds, well it has messed my life up and , I have no one to blame but myself and the sorry doc, in new Mexico its all about your monies that they can get to the ins company's, told my gi doc that I was passing out 3 time, no energy, lack of sleep ,and had to keep my job in the oil and gas field, working 14 hours a day, now I can even work , much less find a job for a 60 year old man that has,work his whole life, so If this even get posted because a lot of my comments have not been posted, all we can do is pray,i guess, ???

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Could you please tell me which forum you are referring to about the young woman who's father died after the starting harvoni? My father was hospitalized 2 days after beginning the treatment and passed because of organ failure but the causes and what really happened to him are unknown. The team of medical professionals could not find any reason. I am curious to know if there are others who have had this same, terrible outcome. Thank you.

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so sorry could you please tell us were to go to file a complaint? thankyou

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They lied to the doctors. I'm on day 60 of a 90 day regimen. They lied and said no one has ever had side effects bad enough to make them stop. First thing, was it made my Fibro worse. I waited a week and started again. A month ago, i was sleep walking, just once. I am 67 yrs old and never had this problem, terrifying. I may have had a concussion. Anyway....2 weeks ago i started smelling putrid cigarette smoke all the time! Neurological probably. It is awful. And my issues from chronic Hep-C were not serious! Scared and pissed off.

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I posted a message here yesterday but can't find it?

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The FDA reports show all sorts of problems being reported to the FDA but doctors are not talking about it and the FDA is not releasing the information. This medication is not for everyone. Many have died due to "unexplained" organ failure, aggressive liver cancer post tx, and so many other issues.

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I have constant headaches, i personally would not take it if i knew it was going to be like this.

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Ok hpc what should we do?! Keep on keeping on! I overwhelmed doc after doc! I tried at 60 years old and have spent all my money! On and on! Sure i'm hep c free! But now i have fybro, chronic back pain, high blood pressure, and the list goes on! Went from $100,000 dollar job to being broke! I just know God has a plan and i've been on every hpc site, called every hpc c site for help and yet i live day by day! It's a 900 dollar pill! And I stopped my treatment after day 57. I'm a single white male, 60 years old and i am screwed! Just giving my life to God the best way I know! No help other than u guys telling me to see my g.i.! I saw 4 of them, 5 mds! Thanks for sharing.

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Hello all,

My mail box must have been clogged up after a year or so I see this thread. It’s me the OP NewDay. Jan 2018 depression is severe, not sure if it’s situation related or from the med. I can say only it might be coincidence but in my life there is no coincidence everything is a cause and effect. I have never been the same sine I took Harvoni for those few weeks. I swear it was like swallowing a demonic something. Not sure what it is but I am not the same, for the record I still have Hep C the drug company is only richer. For me— this med was the kiss of death. The only changes that I am aware of in a year is thyroid problems I am on meds, more arthritis AND it activated RA I have some autoimmune disease that has me depressed and tired 24/7. So it was a bad experience and experiment I should have gone with my instincts. Dr’s everywhere do NOT push meds on ppl I will never trust another doc again. That’s a hard way to live. It was a life changer for me— a curse like the kiss of death. Sorry to sound so morbid but so odd how things and I changed from that day. Everything was done so friggin shady. Shame on you medical field we are human lives not experiments. Today it’s us tomorrow it will be you. I hope not but that’s a strange thing about life, we are ALL held accountable in one life or the other.

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Re: New Day (# 2)

I am three years post treatment with Harvoni. Permanent side effects for me: Arthritis, low back pain, left knee pain, pain from shortening of my muscles (fibromyalgia), brain fog, chronic fatigue syndrome.

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Re: Verwon (# 1)

I am almost 2 years post tx, My back pain is the worst it has ever been and nothing is helping, I do have Degenerative disk disease with pinched nerves at L5 and S1. But this condition seems to have been amplified after harvoni, I still have gut issues and tinnitus.

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I think my immune system is permanently amped up since taking Harvoni. I notice that when I get sick I get better very quickly. I think what is happening to me is that my immune system is attacking my body so I have fibromyalgia and chronic fatigue and arthritis.

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Re: Carol (# 13)

OMG Carol, do some research online as to the horrible "side effects" of Cipro and Levaquin almost as bad. They are worse than the Harvoni! Thank God you didn't continue these bad drugs. They are toxic beyond belief.

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I did harvoni when it 1st cane out in '10. I was stage 3 but stable with a great prognosis from my Dr, hep c free. No alcohol, worked out until an esophageal verises. Now suddenly stage 4. My personal opinion is the medication does damage to the liver that BIG PHARMA wants you to know.

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Re: New Day (# 2)

Hi. I was diagnosed with peripheral neuropathy after my Harvoni treatments. It's very painful and seems to be getting worse. My hands and feet are swelling.

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Re: Jonathan (# 98)

Damn that makes me angry/sad. I've developed neuropathy suddenly 8 months after finishing treatment. Never had before. My dr. will know about it in 2 days when i see her. She told me when i said Yes to this drug, that the side effects would be mild and no one has ever stopped treatment due to side effects. Problems that pop up months after treatment? No one would ever even suspect that could happen!

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Re: Candy (# 99)

I got neuropathy just at the end of 12 weeks of Harvoni along with decreased lung function, hair loss, constant headache (started day 11 of tx) and ear ringing (also day 11 of tx), chronic fatigue, all which I did NOT have before treatment. I was assured it was safe and yes.....people stop taking Harvoni. These doctors need to get educated!!!

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