Side Effects Following Prolia Injection (Page 2)
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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my endocrinologist, I received my first injection of Prolia two days ago. Had diarrhea approximately 12 hrs later in the middle of the night. Awoke the next day with headache over entire head and face. That evening (12:30 am) I vomited approximately 10 times in succession. Awoke 5 hrs later with terrible pain and tightness from the top of my head down my neck, shoulders, and upper back. I am frightened to see where the pain will travel next, especially after reading the posts on this forum. Is there a drug out there to counteract the Prolia. I will definitely not be getting another shot in 6 mos. My doctor told me that the main side effect of this drug is worsening of skin conditions, such as eczema. Does anyone have any suggestions?

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65

Nikki~have you, yourself, looked up the side effects of this drug. it can cause bone cancer and hypercalcemia (too much calcium). Please check on it. Yes, I know they don't like Calcitonin because it's old and no one makes any money by prescribing it. Remember: The best patient is an informed patient so we don't want to go from horrid to bad. Be well~Pood

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64

Hi Poodle,
I asked about the Calcitonin. She was pretty meh about it. She wanted to try me on a new drug called Tymlos, you have to give yourself a shot in the stomach with it every day. The needles are so thin and little you can barely see it. BUT, it is tremendously expensive even if insurance pays for some of the medicine you're looking at over $1000 a month.
She isn't a full-fledged rheumatologist and she tried to tell me there aren't any side effects or they were minimal to Prolia. She does good on many aspects of my health care. This happens to be one I think needs rethinking. I have an appointment with my rheumatologist the next time I go in.

I want to see what he says. For the small amount of gain, I don't think the Prolia is worth it. I'm wondering what will happen if I don't take anything. If the chronic fatigue wasn't so bad I could make it to the fitness center, and do the weight machines consistently.

Anyway, the Calcitonin isn't out of the picture yet. I'll see what he says.

Hugs to you!
Nikki

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63

I've just begun prolia and glad to read your post. so far a little swelling on occasion of my lip..and itching.

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62

I have been on Prolia for for years with no side effects. In fact I am delighted that it is the first osteo med to actually effect my bone density.
Have had osteoporosis since 2000, taking every med there is out there with no effect until the Prolia. Granted I have severe pain constantly from my broken arms and fused knees, so perhaps if the shot causes pain it is not noticable to me, but never had vomiting or anything else from my shot.
Meds react differently on different people so
Maybe you were just unlucky and I am fortunate but I would never give up my
Prolia shots!

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61

Nikki~The only thing I know is that 500mg of Magnesium will keep the muscle pains down. Find a brand your body can tolerate. Get to a Rheumatologist and have your immunenoglobulins run. That will show what's going wrong with your body. If you get the skin problems, the only thing that helps that is Prednisone and be careful of it. Come off of it very, very slowly or your blood will go crazy and you will have worse problems than Prolia. Be careful where you go because your immune system is not working well now. Try to get someone else to buy groceries or have a store deliver them. Hopefully, with a Rheumatologist your worst symptoms will disappear. Some work with Immunologists. Take beyond excellent care of your teeth even if you feel horrid. For certain pains there is acupuncture and dry needling. They are close to the same thing except insurance pays for dry needling because it's from a Physical Therapist. Hopefully your Prolia journey will be a short one and an easy one to manage. If your heart seems off, get to a Dr. immediately and if you feel an unusual pain in your hip=ER. Be well~

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60

Hi Poodle,
I looked at the side effects and I was dismayed there were so many. Do you or anyone else know of anything natural/holistic that we can use? I'm already sensitive to prescription meds anyway. I'm going to keep searching. I tried vitamin K which helped a little. I just can't see for all the damage Prolia does that we can justify its continued use.
Hugs to all!
Nikki

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59

Lois-
There is no "antedot" for the prolia shot. I find that what has helped me most is dealing with the side effects seriously and with the help of specialists. The side effects are real and your complaints need to be taken seriously. I had my first shot January 3,2015. My story continues as does everyone posting here. Symptom support found here may help you- it has me.,. And sharing your journey helps others... take care... jan

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58

Poodle,
I can't thank you enough for sharing this information with me! I go and see my rheumy next month. This gives me time to gather info to share with her.

Huge hugs!
Nikki

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57

Nikki~There is an alternative but it's difficult to get a Doc to Rx it because it's old and there is no money in it for them at all. It's Calcitonin a/k/a Miacalcitonin. It's made from salmon but has no fishy taste or smell. One spray in your nose is all is needed. Take good care of your nose and you will have zero problems. There is a very slight chance of basal cell carcinoma in the nose but the chances of that happening are so very small it's not really worth mentioning. My mother took it from ages 60-96 and I started on it after the horrid Prolia. It works. Had a bad fall on a hardwood floor on my hip and got up and kept on walking!! Probably the best place to get it would be from orthopedic Docs as they make their money with surgeries. Be well~

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56

Hi Guest,
Just be sure you take vitamin D3 and vitamin K when you take the calcium. Without those two the calcium won't work and stay in your body.

Wishing you all the best,
Nikki

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55

I am considering getting a prolia shot and would like to know other alternatives

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54

I have been on Prolia since las year. The last bone scan showed something positive. Prolia was not the first choice, there is only one other drug and its another one that's an IV and I can't think of the name, but Medicare wouldn't pay for it. Anyway, I did try Actonel and another one similar to it didn't work. Diarrhea, severe jaw pain and aches, which I didn't need more of because of the gluten intolerance and other gut issues plus fibromyalgia and chronic fatigue. Most of the Actonel and other drugs are all in the same family so they don't work.
I don't know what will happen to my bones if I can't strengthen them. I'm praying there's a better way because this drug has so many side effects and it aggravates most of my other medical conditions.

Thanks for sharing your experiences and knowledge. Glad I found this thread.

I have an appointment next month with my rheumatologist and I want to get off the Prolia.

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53

Reggie in reading diferent threads on the prolia posts the oral osteoporosis meds have long term use side effects and more investigation needed. Please consider nondrug therapy

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52

I just kept bugging my Primary - and they would treat symptoms, sometimes naming something completely unrelated. He still won't admit I had a severe reaction to Prolia. They did put me on a 3 month watch and blood test schedule and send me to a pain specialist as I deveoped a severe case of bursitis of the hip, as well as nerve pain in my neck. My blood calcium stayed high and even went up on Prolia. Later found out I had a tumor on my parathyroid, which was causing a huge output of PTH (parathyroid hormone) and my body was in crises. Had surgery, tumor out, and I feel very good. Its been at least a two year journey from one Prolia shot - I still have skin issues. I tried everything, accupuncture helped pain. Finally had a procedure where they burn nerves with radiographic technology. Its bearable. In my case the osteoporosis was contributed to greatly by this, however I did suffer active Crohns Disease for a couple of decades, and the steroids did my bones no good, I'm sure. They said with Chrons in remission, and the tumors gone, I should have a good deal of bone density restored. A very long and expensive journey, not to mention my quality of life was not so good. Now I'm on six monthh watch with Primary. I was referred to an endocrinologist. Ha, I called him Dr. Devil. He was so weird. Both doctors were set on my taking Reclast because it helps osteoporoses and helps with cancer. That perked my ears up, and I said no, and started researching, and found that because of other symptoms and continued rising calcium levels I had the parathyroid tumor. For others it won't be that easy of a fix, though I feel as if I have been through hell.

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51

Well I am 47 --- same boat have had the LANAP invasive gum procedure that my folks paid for since I can't . I have had bone loss already in my jaws and not willing to go through all of that again. Severe degenerative bone loss and changes throughout my spine.& with radiculopathy in some places with disc narrowing and bulges - Cervical, Thoracic, and Lumbar. I have GERD, and I have ENOUGH WEIGHT on me already severe osteopenia. Osteoarthritis in my hands, inflammatory Polyarthralgia , fibromyalgia, Chronic pain, there is a lot more ....etc.... However, I have heard horror stories of necrosis of the jaw from this type of drug ---know someone who shared their story & are on surgery #10 had half their bottom jaw removed. I have enough problems ---so upping my Calcium intake supplements and seeing what my next DEXA scan says in a year.

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50

Lois~go to your Dr. and have your immunoglobulins checked. Prolia does a great job of messing them up and our total immune system. I think in that test you will find some info that will enable to Dr.(s) to help you more. Unfortunately for us, when Prolia is put in, it's in and there is no way to get it out. You may be able to get some help from an Immunologist too. We need an array of Drs. to get us thru Prolia. I had thought about plasma injections but my iga was totally off so it would have killed me. If your immunoglobulins are perfect, then you can have plasma to help boost your T-cells and T-cell helpers which are being killed by Prolia. That alone should make you feel much better.

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49

I have been experiencing, dealing with and treating similar symptoms to yours for 8 months now. As far as I know there is no drug or protocol to counteract the Prolia. I have a supportive primary care doc who has been good with treating symptoms as the arise and also referring me to specialists. At 3 months I was still my worst and went to Mayo Clinic for help. It has been a long journey- after month 6 post Prolia shot I felt a little better each month. When I look back 9 months I am better... than I was. My immune system is upside down, I have severe pain and cramping, my digestive track is a mess, all my muscles are weak, I can't sleep... but am looking forward to slow and steady improvement as the Prolia leaves my system. I have been told 1 to 2 years...I can wait, I have no choice. This Prolia journey is not the one I would had ever chosen had I understood the risks and side effects. My doctors did not understand the drug Prolia either. I am truly sad that you are just beginning this journey yourself- all those posting on this site have been on their own Prolia journey. We have learned much from each other. Thank you again to everyone who shares here... Our journeys continue...

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48

Just had the first prolia injection.I just got over a cold....now breaking out with a itchy rash all over my body......feeling tired....I don't sleep through the night. ...I won't take the second shot....

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47

Now it is happening in Australia ! My wife had Her 2 nd ( And LAST) injection of PROLIA 7th June 2016 = Bach, hip, neck. pain. Tingling down the legs, EXTREME LETHARGY. She used to be a go gettem 78 year old. I cant believe what PROLIA has caused in her. The A.F.D.A should remove it from it's list
.D

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46

Hi Everyone~Just found out we have another death from Prolia. Just like C. Louise's father. He had dental work done, got an infection that turned cancerous and went to his brain. Walking back out his femur broke too before he passed away.

Can anyone else take over the job of searching for attorneys?? Diana is not the least bit well and is having surgery soon. I'm having my total knee replacement in about a month. We need someone with good net skills and that is not fearful of talking to attorneys. Do I have any volunteers? It's an up hill battle since Prolia is so new that it's not on their radar yet. Hopefully, we can change that! :-) Be well all~

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