Side Effects Following Prolia Injection (Page 3)
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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my endocrinologist, I received my first injection of Prolia two days ago. Had diarrhea approximately 12 hrs later in the middle of the night. Awoke the next day with headache over entire head and face. That evening (12:30 am) I vomited approximately 10 times in succession. Awoke 5 hrs later with terrible pain and tightness from the top of my head down my neck, shoulders, and upper back. I am frightened to see where the pain will travel next, especially after reading the posts on this forum. Is there a drug out there to counteract the Prolia. I will definitely not be getting another shot in 6 mos. My doctor told me that the main side effect of this drug is worsening of skin conditions, such as eczema. Does anyone have any suggestions?

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45

I am on on 10 week of prolea injection and am in so muchpain I wished I had never agreed to have it mussel pain joint pain I just want it out of my system I'm not sleeping with the pain, I was a really active person till this injection and now have to push myself to make an effort

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44

Still have dental problems and my jaw hurts all the time. Poodle said I should be going to a pain Doc. I did. He basically said that they were going to lower my pain meds and then " suck it up!" I'm screwed.

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43

Hope you are feeling a bit better- sounds like you had a big initial reaction to the Prolia. I am 5 1/2 months post Prolia injection. Like you, I will not repeat the protocol. At 4 1/2 months I finally began feeling a little better. For me, I had so many new issues and side effects, I constantly visited and read others comments on this site. Muscle and bone pain, loose teeth, muscle weakness, fatigue, ear ringing, headache, insomnia, rash, sores, face itching, vaginal itching, diareah, loose stool, constipation, uti, bronchitis, back pain, nausea, gerd, rapid weight gain ... And just plain worn out and sick all the time. I look forward and take hope in the fact that all these side effects migrate and take turns showing up in a rotation all their own. This means to me they are temporary and will continue to lessen. I found a new endocrinologist who was not pro Prolia and also went to the mayo clinic to manage my Heath care. There is no antidote for the shot. The support from others on this site has been invaluable to me. They are my best medicine!

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42

I am so very sorry for your Mom and for her daughter, You...thank you for sharing her story... It was very impactful. Thank you for sharing your journey...

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41

If it were me....
Call your doctor and be seen. If it's an allergic reaction you need to be monitored. Get help for side effects. Remember it's not you, it's the Prolia and you are not imagining side effects.

I was told there was no way to counter balance the Prolia and that I'd have to wait it out. I have decided to not get another shot.

I am no longer embarrassed to go to the doctor and get my side effects dealt with.

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40

please....don't use it anymore.....my mom died because of that injection...

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39

My Prolia injection from a few months ago continues to affect my whole body, inside and out. Muscle and bone pain, low energy, chronic cough, itching all over from head to toe, vaginal itching, loose teeth, weak bladder and leaking, diarrhea that changes to constipation... weak hands and eye muscles... I need to boost my immune system. What site did you visit and what are you taking to boost it, so I can ask my doctor...

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38

Of this was a med for a man with all the terrible side effects it would have been pulled from the market. Tell dr. And fill in form for the FDA

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37

Hi~someone posted on another Prolia thread here they use something with oatmeal to take a bath and there is a special lotion made by a well known company that has iCalming before it's name. You may want to look at the threads here on medschat on Prolia side effects as that is where she just posted this information very recently. She said it really helped with the Prolia skin problems. We have about 6 Prolia threads going on here and most people seem to land on the one entitled Prolia side effects. It all depends on how you word your question I guess as to where you land. It would be lovely if we could all be together; however, some people want to know Prolia side effects duration, hair falling out with Prolia and many more. Be well~Pood

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36

prolia killed my mom...after the sixth injection...

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35

I had better outcomes with Accupuncture than anything.

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34

Just bearing with it until it slowly dissipates is all I know. Magnesium large dose helped muscle spasms and muscle pain

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33

Definatey has made my skin condition worse. My scalp is pealing!

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32

So sorry to hear that and thank you for sharing. I only hope more people find this site and read what others are also saying.

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31

Hi Karen and welcome on behalf of all of us - the unfortunate victims of the poison called Prolia. You have had 2 inj's. of Prolia which makes your world really bad. Prolia makes arthritis feel like a great day - that's how horrid it is. I got a cataract from it too and had to fly to a big city to have it removed. How long does this Hell you are in last? Well, a lot of it depends on you as we are all different. I had pain meds and sleeping meds so that helped a lot. Also gave me Celiac Disease which left when it left. For me, I felt well in the 5th month just as Amgen, the manufacturer, said I would. I had my cataract surgery one day before my 'magic' day when Prolia is supposed to go poof. Well, unfortunately, the Prolia does go "poof' but the side effects from just one inj. can easily last 11 months. I was lucky. How did you feel before you had your second inj.? That will pretty much let us know what to expect will be coming. About all of my side effects are gone and we are tapering down on the sleeping meds.(almost 1 year). I lost 65 pounds while on Prolia and got down to only 100 and the body can get somewhat 'stuck' and not want to put on weight so I have to do my best to get all the calories in that I can. Now, back to you. Prolia LOVES Calcium so please take 1200mg morning and 1200mg evening or however you want to space them out. If it does not get the calcium it wants, that's when it starts in on our muscles as they contain calcium as the human body really is unable to store it. Keep with your Dr. and have your calcium level checked monthly. Make sure your calcium has the correct amount of Vitamin D in it too. Please tell every side effect you get to the FDA if you live in the US. Also, report them to Amgen as they are required by law to report what is reported to them to the FDA. I don't know for sure if you can have your cataracts removed until you are free of Prolia as it also takes down a large part of our immune system. It's such a simple procedure now they may do it but you would be on a lot of antibiotics for an extended period of time as you sure don't want to get an infection in there. It also depends on how bad they are. If you can see pretty well, put it off for as long as possible. If you have other questions, please ask. We, the survivors, are here for people like you and to also warn people to stay away from Prolia. It's chemo - bad drug. Tell your hubby to stuff it and stay in bed, rest and take good care of yourself. I know if you have RA too, it is best to move about some as the body needs to 'loosen' up. Be well~

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30

don't use prolia .... my mom died 2 months ago after the 6th injection.... u don't have a idea...how much she suffered in less than 5 days...

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29

Oh god ladies! Wish I had found this blog six months ago! I have been suffering with 3 different types of arthritis now for around ten years and in such horrible pain! All of your stories have opened my eyes! My arthritis told me prolia had more pros than cons for side effects. That is so far from the truth! I just had my second injection of prolia and was diagnosed with cataracts in both eyes yesterday! My pain has become so intolerable I cannot hardly stand it anymore. Please, which medication is the best with less side effects??? I cannot live this way much longer. I go to pain management but the prolia has poised my body so bad don't know if there is anything out there to reverse all the damage of the injections. I'm thankful for stumbling on this blog and please keep posting and sharing your experiences! My husband tells me just walk it out or runs around the block. I need be in a circle with people who understand. Thank you all and God bless!

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28

I think I may have been wrong about Actonel. it may be one of the good guys like Calcitonin is. Check it out. @Kitty~not websites, just different threads on this site. It all depends on how one words the question regarding Prolia side effects. Seek here on medschat and you will find them. Hugs~

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27

pliz... my mother died after the 6th Prolia.... Don't let they muse your body for these statistics

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26

Thank you. I'm spent with pain. My lupus doc said I didn't have to worry about him taking me off. Since 6 months ago I was cut in half of my dose, half again and then now nearly nothing! Now that its been almost a month since my 1st shot of Prolia my hips and groin hurt really bad! When I saw him he gave me a few shots of steroid in the hips and said that he was not without sympathy, hr would give me a few 10 MG's. to help me thru. Insurance Co. rejected it and now he is sending me to a pain dr. Which would be fine but last time I went. it was a disaster! He said my doc didn't know what he was doing and berated him for 10 mins. My doc apologized and said he would never do that again to me but since this denial he made me an appt. W/ another one! Looked him up on health grades and he didn't get good reviews. I'm so tired of hurting more and more, Losing weight, no appetite, and ready to throw in the towel! I can't deal with this anymore! If these drugs were cheap,obody would be having problems getting what we need and the dose we need. Tired of it all!!!!

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