Side Effects Following Prolia Injection (Page 3)

I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my endocrinologist, I received my first injection of Prolia two days ago. Had diarrhea approximately 12 hrs later in the middle of the night. Awoke the next day with headache over entire head and face. That evening (12:30 am) I vomited approximately 10 times in succession. Awoke 5 hrs later with terrible pain and tightness from the top of my head down my neck, shoulders, and upper back. I am frightened to see where the pain will travel next, especially after reading the posts on this forum. Is there a drug out there to counteract the Prolia. I will definitely not be getting another shot in 6 mos. My doctor told me that the main side effect of this drug is worsening of skin conditions, such as eczema. Does anyone have any suggestions?

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REPORT

If it were me....
Call your doctor and be seen. If it's an allergic reaction you need to be monitored. Get help for side effects. Remember it's not you, it's the Prolia and you are not imagining side effects.

I was told there was no way to counter balance the Prolia and that I'd have to wait it out. I have decided to not get another shot.

I am no longer embarrassed to go to the doctor and get my side effects dealt with.

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I am so very sorry for your Mom and for her daughter, You...thank you for sharing her story... It was very impactful. Thank you for sharing your journey...

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Hope you are feeling a bit better- sounds like you had a big initial reaction to the Prolia. I am 5 1/2 months post Prolia injection. Like you, I will not repeat the protocol. At 4 1/2 months I finally began feeling a little better. For me, I had so many new issues and side effects, I constantly visited and read others comments on this site. Muscle and bone pain, loose teeth, muscle weakness, fatigue, ear ringing, headache, insomnia, rash, sores, face itching, vaginal itching, diareah, loose stool, constipation, uti, bronchitis, back pain, nausea, gerd, rapid weight gain ... And just plain worn out and sick all the time. I look forward and take hope in the fact that all these side effects migrate and take turns showing up in a rotation all their own. This means to me they are temporary and will continue to lessen. I found a new endocrinologist who was not pro Prolia and also went to the mayo clinic to manage my Heath care. There is no antidote for the shot. The support from others on this site has been invaluable to me. They are my best medicine!

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Still have dental problems and my jaw hurts all the time. Poodle said I should be going to a pain Doc. I did. He basically said that they were going to lower my pain meds and then " suck it up!" I'm screwed.

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I am on on 10 week of prolea injection and am in so muchpain I wished I had never agreed to have it mussel pain joint pain I just want it out of my system I'm not sleeping with the pain, I was a really active person till this injection and now have to push myself to make an effort

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Hi Everyone~Just found out we have another death from Prolia. Just like C. Louise's father. He had dental work done, got an infection that turned cancerous and went to his brain. Walking back out his femur broke too before he passed away.

Can anyone else take over the job of searching for attorneys?? Diana is not the least bit well and is having surgery soon. I'm having my total knee replacement in about a month. We need someone with good net skills and that is not fearful of talking to attorneys. Do I have any volunteers? It's an up hill battle since Prolia is so new that it's not on their radar yet. Hopefully, we can change that! :-) Be well all~

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Now it is happening in Australia ! My wife had Her 2 nd ( And LAST) injection of PROLIA 7th June 2016 = Bach, hip, neck. pain. Tingling down the legs, EXTREME LETHARGY. She used to be a go gettem 78 year old. I cant believe what PROLIA has caused in her. The A.F.D.A should remove it from it's list
.D

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Just had the first prolia injection.I just got over a cold....now breaking out with a itchy rash all over my body......feeling tired....I don't sleep through the night. ...I won't take the second shot....

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I have been experiencing, dealing with and treating similar symptoms to yours for 8 months now. As far as I know there is no drug or protocol to counteract the Prolia. I have a supportive primary care doc who has been good with treating symptoms as the arise and also referring me to specialists. At 3 months I was still my worst and went to Mayo Clinic for help. It has been a long journey- after month 6 post Prolia shot I felt a little better each month. When I look back 9 months I am better... than I was. My immune system is upside down, I have severe pain and cramping, my digestive track is a mess, all my muscles are weak, I can't sleep... but am looking forward to slow and steady improvement as the Prolia leaves my system. I have been told 1 to 2 years...I can wait, I have no choice. This Prolia journey is not the one I would had ever chosen had I understood the risks and side effects. My doctors did not understand the drug Prolia either. I am truly sad that you are just beginning this journey yourself- all those posting on this site have been on their own Prolia journey. We have learned much from each other. Thank you again to everyone who shares here... Our journeys continue...

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Lois~go to your Dr. and have your immunoglobulins checked. Prolia does a great job of messing them up and our total immune system. I think in that test you will find some info that will enable to Dr.(s) to help you more. Unfortunately for us, when Prolia is put in, it's in and there is no way to get it out. You may be able to get some help from an Immunologist too. We need an array of Drs. to get us thru Prolia. I had thought about plasma injections but my iga was totally off so it would have killed me. If your immunoglobulins are perfect, then you can have plasma to help boost your T-cells and T-cell helpers which are being killed by Prolia. That alone should make you feel much better.

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Well I am 47 --- same boat have had the LANAP invasive gum procedure that my folks paid for since I can't . I have had bone loss already in my jaws and not willing to go through all of that again. Severe degenerative bone loss and changes throughout my spine.& with radiculopathy in some places with disc narrowing and bulges - Cervical, Thoracic, and Lumbar. I have GERD, and I have ENOUGH WEIGHT on me already severe osteopenia. Osteoarthritis in my hands, inflammatory Polyarthralgia , fibromyalgia, Chronic pain, there is a lot more ....etc.... However, I have heard horror stories of necrosis of the jaw from this type of drug ---know someone who shared their story & are on surgery #10 had half their bottom jaw removed. I have enough problems ---so upping my Calcium intake supplements and seeing what my next DEXA scan says in a year.

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I just kept bugging my Primary - and they would treat symptoms, sometimes naming something completely unrelated. He still won't admit I had a severe reaction to Prolia. They did put me on a 3 month watch and blood test schedule and send me to a pain specialist as I deveoped a severe case of bursitis of the hip, as well as nerve pain in my neck. My blood calcium stayed high and even went up on Prolia. Later found out I had a tumor on my parathyroid, which was causing a huge output of PTH (parathyroid hormone) and my body was in crises. Had surgery, tumor out, and I feel very good. Its been at least a two year journey from one Prolia shot - I still have skin issues. I tried everything, accupuncture helped pain. Finally had a procedure where they burn nerves with radiographic technology. Its bearable. In my case the osteoporosis was contributed to greatly by this, however I did suffer active Crohns Disease for a couple of decades, and the steroids did my bones no good, I'm sure. They said with Chrons in remission, and the tumors gone, I should have a good deal of bone density restored. A very long and expensive journey, not to mention my quality of life was not so good. Now I'm on six monthh watch with Primary. I was referred to an endocrinologist. Ha, I called him Dr. Devil. He was so weird. Both doctors were set on my taking Reclast because it helps osteoporoses and helps with cancer. That perked my ears up, and I said no, and started researching, and found that because of other symptoms and continued rising calcium levels I had the parathyroid tumor. For others it won't be that easy of a fix, though I feel as if I have been through hell.

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Reggie in reading diferent threads on the prolia posts the oral osteoporosis meds have long term use side effects and more investigation needed. Please consider nondrug therapy

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I have been on Prolia since las year. The last bone scan showed something positive. Prolia was not the first choice, there is only one other drug and its another one that's an IV and I can't think of the name, but Medicare wouldn't pay for it. Anyway, I did try Actonel and another one similar to it didn't work. Diarrhea, severe jaw pain and aches, which I didn't need more of because of the gluten intolerance and other gut issues plus fibromyalgia and chronic fatigue. Most of the Actonel and other drugs are all in the same family so they don't work.
I don't know what will happen to my bones if I can't strengthen them. I'm praying there's a better way because this drug has so many side effects and it aggravates most of my other medical conditions.

Thanks for sharing your experiences and knowledge. Glad I found this thread.

I have an appointment next month with my rheumatologist and I want to get off the Prolia.

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I am considering getting a prolia shot and would like to know other alternatives

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Hi Guest,
Just be sure you take vitamin D3 and vitamin K when you take the calcium. Without those two the calcium won't work and stay in your body.

Wishing you all the best,
Nikki

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Nikki~There is an alternative but it's difficult to get a Doc to Rx it because it's old and there is no money in it for them at all. It's Calcitonin a/k/a Miacalcitonin. It's made from salmon but has no fishy taste or smell. One spray in your nose is all is needed. Take good care of your nose and you will have zero problems. There is a very slight chance of basal cell carcinoma in the nose but the chances of that happening are so very small it's not really worth mentioning. My mother took it from ages 60-96 and I started on it after the horrid Prolia. It works. Had a bad fall on a hardwood floor on my hip and got up and kept on walking!! Probably the best place to get it would be from orthopedic Docs as they make their money with surgeries. Be well~

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Poodle,
I can't thank you enough for sharing this information with me! I go and see my rheumy next month. This gives me time to gather info to share with her.

Huge hugs!
Nikki

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Lois-
There is no "antedot" for the prolia shot. I find that what has helped me most is dealing with the side effects seriously and with the help of specialists. The side effects are real and your complaints need to be taken seriously. I had my first shot January 3,2015. My story continues as does everyone posting here. Symptom support found here may help you- it has me.,. And sharing your journey helps others... take care... jan

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Hi Poodle,
I looked at the side effects and I was dismayed there were so many. Do you or anyone else know of anything natural/holistic that we can use? I'm already sensitive to prescription meds anyway. I'm going to keep searching. I tried vitamin K which helped a little. I just can't see for all the damage Prolia does that we can justify its continued use.
Hugs to all!
Nikki

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