Ruxolitinib Working For Post-essential Thrombocythemia Myelofibrosis

I'm 3 yrs into Post-Essential Thrombocythemia Myelofibrosis, and I'm wondering if anyone out there has taken Ruxolitinib w/what I've got and had any success?

REPLY

REPORT

There are support groups you could check with:
Quick Topic...Myelofibrosis
Facebook...Myelofibrosis
Also several people on tweeter I've found.
I have Myelofibrosis, but have not been on Ruxo

REPLY

Was this helpful? 0

Has anyone tried adopting a low fat high carb raw vegan (primarily fruitarian) lifestyle in addition to juicing leafy greens to see if it has any positive impact on Myelofibrosis?

I thought I'd mention this because I've heard of individuals experiencing all different types of miracles over the coarse of a few months to a few years, in relation to getting rid of all types of cancers and other ailments that are otherwise said to be incurable (Myelofibrosis is a type of chronic leukemia — a blood cancer).

it may be beneficial to live this lifestyle if you have a condition of this nature. There are many blogs and webpages on the topic of curing cancer with raw foods and an alkaline diet. I would suggest doing some research on it if you wish.

I hope this helps and wish you good health!

REPLY

Was this helpful? 0

Do you know of any diet sheets available to help me get started?

REPLY

Was this helpful? 0

Is anybody out there taking the new trial drug Ruxolitinib for Mylofibrosis? ## Yes ## Hello Dave, hope all is going wel...

8 REPLIES

You could experience a reduction in those symptoms within the first week or it might take some time. ## Hi Mark, Judging...

3 REPLIES

JIM HAS NOW BEEN ON RUXOLITINIB FOR 8 WEEKS AND FEELING AND LOOKING MUCH BETTER THAN BEFORE HE STARTED THE MEDICATION. P...

3 REPLIES

I have stage 3 advanced Myelofibrosis and have been taking Ruxolitinib (Jakafi) for almost 9 weeks. I have had almost 50...

4 REPLIES

actions,indications, contraindication,nursing responsibilities,adverse effects,dosage ## This is said to improve liver f...

7 REPLIES

for drug study-educational use ## Essential Forte is a phrase used to refer to various vitamin and mineral supplements t...

6 REPLIES

WHAT IS THE THE DOSE AND ADMINISTRATION OF Essentiale Forte P? ## The dosage and administration is usually 2 capsules ta...

2 REPLIES

Can i take Essentiale Forte P forever as a maintenance dose to protect my liver ? ## I can only suggest that you consult...

1 REPLY

I have been given forminal500 instead of glucophage, i do have diarrhoea ,and my mouth and tongue are dry and sore,i do ...

1 REPLY

I was prescribed of Phospholipids Essentiale Forte P 300 mg 50 capsules. the label on the bottle stated mfd from Cologne...

1 REPLY