Prolia Side Effects (Page 88)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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My brain is scrambled for sure with everything going on with me.

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Maybe I answered thus once but hypercalcemia can scramble the brain. After stopping Prolia I have been diagnosed with hypercalcemia. Instead of checking thyroid for tumors they want me to take a other AmGen special, Reclast because they say it prevents cancer. Just had ultrasound on kidneys, awaiting results. I think hypercalcemia may be another side effect. I never had problems pre Prolia.

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Here are some links Pood.. I'm not sure what to do, I really don't want to take any of these drugs. I notice one article says that calcitonin salmon is safe for people with blood clots. The rheumy showed me a more recent page at the FDA website that CS is not recommended at all anymore, but as usual due to the terrible search and organization of their site I'm unable to find that one now. ugh. I just don't know what to do, it seems none of my docs will rx this for me anyway. I have something else going on with vit D, pth and calcium obviously so I can't take anything now. I guess at some point I may go to the specialist the rheumy referred me to. I still have to call him and see what he thinks of my second high urine calcium levels. He said we would talk after that but like many doctors I have not heard another word from him. lol. The higher risk of cancer seemed to be for basal cell skin cancer not for nasal cancer.

fda.gov/Drugs/DrugSafety/PostmarketDrugSafetyInformationforPatientsandProviders/ucm388641.htm

fda.gov/Safety/MedWatch/SafetyInformation/ucm190771.htm

reuters.com/article/us-fda-calcitonin-idUSBRE92418H20130305

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Do you know where that class action lawsuit is located or do you have a link ?
I am just so sorry to hear about your father. So unnecessary , they treat these people like guinea pigs. To many people having problems.

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Good we need to either start a class action lawsuit. The side effects are taking people down. Its so nuts.

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Skittie~Post 1409. I have never ever in my life met a person that got cancer in their nose from Calcitonin. It does say to go have your nose checked once a year. I live in a high arid dessert so I have always used a product in my nose and on my lips to keep them moist and if one does this every night on the side that did not get the Calcitonin in it, it would be totally impossible to get cancer from it. Product itself says do not use in nose but my Grandma did, my Mom did and I always have. It's a really good lubricant more for maybe a cold and it's not Vics or however they spell that. There is always a very easy way to never have nose problems. I had cancer before and it was a real 'w'itch but I'm not the least bit worried about Calcitonin. I know it's history too well. How many people has Prolia killed and they still love that and it does leave the body open to cancer as we always have cancer cells in us but it is the job of our immune system to seek and destroy. We have one member that did get cancer from Prolia and in a very bad place. She definitely wants in on the legal suit when I find someone else to talk to and I will ask for more time so we can get everyone together. Hugs~

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Pood I meant my doc won't rx calcitonin. Said it will give me cancer. For sure. There's an FDA warning about it. Said has RX prolia with no side effects. My other doc was taking prolia for 2 years with no effects. She said since her bone density is now osteopenia she's going to stop it due to the terrible side effects etc. not sure what you mean about the poms?

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Skittie~does that mean she will not Rx it to anyone at all? If that is the case, you have found a very smart Dr. They prefer to blame it on anything else other than Prolia and I know the witch that about did me in is still giving it to people and so is my GP. Why in the world are Drs. unable to stand up for the oath they took -- DO NO HARM. Good for you!!! Were you able to put 2 plus 2 together when I wrote you about the Poms? Be well my friend~Pood

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I went to New Dr., same office but I refuse to go to one who gave me Prolia. The new said you are due for Bone Density but I see here you won't take any drugs, so no need to go for it. I said that is correct, so I like this one

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Pood, one of my docs said due to me telling her about the terrible side effects she is going to stop prolia. So far she has been lucky to have none.

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Thanks Pood, my doc won't rx it... said I will definitely get cancer if I take it... defended all the other drugs. And I still don't know what is going on with my pth being high.. this doc believes it's caused from low vitamin d but I have had two high urine calcium levels now so I'm excreting a lot of calcium. It could be a primary parathyroid issue- so I can't take forteo. I'm not sure if I want to at this point anyway. All these drugs scare me quite frankly. If not for my dvt I would go back on hrt. But I was on that for year before everything happened and I still got Osteporosis with 4-5 years of early menopause. That is pretty fast for what normally happens.

I would love a poodle I'm sure but still not sure about it.. or a pom.. All our kitties and doggies have been rescues though... I'm still grieving my little boy so much.. I think his spirit is still here as our other kit looked to one of his beds as if he was here today. I just keep talking to him. I'm going for a walk.. hopefully that will help things if nothing else does. I hope you're feeling better.

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Kitty~I read it and did a little research and it is still a rotten biologic drug. I will go to the nursing home before I take anything biologic again in my life. They can promise all they want to and I don't believe a word of it. The Docs can use it on themselves and we can sit back and watch the evidence - yes, every MD in the world has to take this before I would even give it a thought. I've had enough from Amgen to last me for the rest of my life. Right now, the subject is not even being discussed with me from my regular docs. What do the rest of you think? Thank you for finding it. Now that I know it may be available soon I can stay far, far away from it. Pood

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Diana: Glad you were able to read the article and comments. Also glad you posted your story. Interesting discussion! Take care.

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Found it!!!!
Thank you so much. I did post something about the new things cropping up (or becoming so bad, they are having to look at the issues - i.e, hypercalcemia and also possible kidney issues. Article is very general and not even coming close to all the side effects of this drug. It needs about five more years study at least with people being aware of what can happen to them if they participate and receive Prolia!

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Now my doctor says he has about 100 patients on Prolia. So that makes me the one in 100 that has had multiple debilitating and painful side effects according to him, and I don't think he yet believes me, even though he watched me hobble into his office on a cane after being bought into building in wheelchair. Despite the fact I still have sores all over my body Despite the fact, the bursitis has not completely gone away, to mention a few. I don't buy it. I read the New York article - it doesn't mention the myriad of side effects, many debilitating and some leading to fatalities potentially........Dr. told me it is used to treat cancer - - - well, even then I would have to choose between quality of my last years against the quantity.

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Diana: Regarding NY times article, See entry # 1398 It should provide a link to the article. Read the comments. Hope you feel well soon.

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Where can I find it? BTW has anyone had kidney issues after taking Prolia? I'm finding it is evident in some - also a case study of a youngster being treated for cancer by Prolia's other named drug, (denusumab - or do I have it mixed up with a cousin, Reclast? but the report definitely stated Prolia -) and ending up with kidney issues. I should find out more about my own situation when today's tests are reported back to me. Of course I am praying this is not so.....but a constant burning and feeling "off" for three months......is not right. 15 months since first and only injection of Prolia now. I have informed my doctor and the endocrinologist he sent me too that the recommendation of Reclast is no more acceptable to me than another injection of Prolia! "Check with me in two or three more years of studies on these drugs," I said.

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To all who read the NY times article. Did you also read the comments? Did you leave a comment? Eye opening!

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Roni, I still have not stopped searching for one and if I find one it will be posted here. I had one lined up but only had a week to get everyone on board and either they gave up or didn't get the message. I don't know but I had to call him back and say so sorry! It costs us 0. They take a large percentage of the award and we get tiny bits divided between all of us but it would be worth it even if I received 0. Merck has a billion in a fund to just pay people off after they get sued.

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Skittie- Toy Poodles are less then 10 inches tall at the shoulder. Mine is called a Tiny Toy Poodle and she is very, very small about 5 pounds. There are also some very mellow Pomeranians that are that size too. A friend of mine knows the breeder. Beyond excellent temperaments. This particular breeder with the Poms is in WY. I've been thinking of getting one as a play mate for my tiny Poodle. She seemed to like the little Pom and wanted to play with her. The like in temperature could be a huge problem tho as my Pood likes it hot and Poms love cold and have a great time playing in the snow. Wonder why I'm the only one getting Calcitonin??? Stay well~Pood

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