Prolia Side Effects (Page 59)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Skitty~go for the salmon calcitonin. It's slow but sure. My mother used it and never broke another bone in her life. I noticed my bone scan numbers were better with it. It's not a race like Prolia to get to the top in the least amount of time. It's more like steady wins the race. I am going back on it. The other you mentioned I believe has numerous bad side effects like ONJ, broken femur and some kind of a serious stomach problem. I know for sure you will check both of these out and come to a very well informed decision. Stay well~Pood

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Nancy - I thought I was about symptom free now at almost a year. My back is so horribly bad I cannot roll over to get out of bed in the morning now. Honestly, it takes me one hour to get out of bed. The pain is incredible. Cannot lift my own legs either. I have to grab the top of the pj leg and pull slowly so I can get them moving one at a time out of the bed. I have never known pain like this for zero reason. It has to have something to do with that miserable Prolia -- 70 feeling 110. This has just started in the last few weeks. It's definitely not my arthritis acting up as the weather has been good without changes and I've been taking my arthritis med. Just when I think I have something pretty well figured out -- woofie, here's another.

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Thanks Poodle, Actually Forteo hasn't caused onj, I think you may be thinking of fosamax, one of the biophosphonates? It has been used to treat onj and to heal fractures in people who used biophosphonates or prolia etc. and are having fractures that won't heal. see the link below:

Forteo May Help Treat Jaw Osteonecrosis

Forteo is not an anti-resorptive, it's an anabolic which stimulates the osteoblasts more than it stimulates osteoclasts so it helps to build bone, it mostly affects the bone building I believe. It has been associated with higher rates of osteosarcoma, which according to Lani Simpson's book, usually happens in adolescence so it's safer for adults who are facing osteoporosis and un- healing fractures. It isn't usually used in people who have had cancer but some doctors according the LS book are using it in people who passed the 5 year mark cancer free who have advanced osteoporosis and who have no other alternatives.

Forteo is synthetic pth hormone. It can cause elevated calcium levels in some people. It's only used for 2 years usually. My friend used it and she had a good result, she also used calcitonin. I can't use forteo right now anyway due to other health issues. I'm also wondering if my evaluation is even accurate now because I'm a petite woman and I read that the bone density scan is more inaccurate, with an already 30% error rate, in small women who generally have lower bone density to start with. My hip is still osteopenia and my lumbar spine is osteoporosis but it has only gotten worse by -.2 and -.3 in 4 years, not a huge increase in the score. I just wonder who I can go to in my area to see if it's a faulty result.

At this point I don't want to take any drugs, I will try exercise and diet etc. and prunes. The prunes are starting to get to me with gas and stomach upset though, lol. I think they lowered my ldl cholesterol.

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thanks poodle, I have posted a reply but it needs to be reviewed because I included a link for forteo I think- forteo doesn't cause onj, it is used to treat that and fractures.. it's an anabolic that builds bone. It has been associated with higher incidence of osteosarcoma a rare bone cancer but that seems rare. I have to read more about it. It is safer for people who have fractures that won't heal from biophosphonates/anti-resorptives. You stay well too... I hope you're feeling better each day. :-)

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Pood, Oh No! Thought you were doing better, I was just thinking to myself is this ever going to end? I have like needles down my arms and sooo stiff, I think about your words of encouragement and gives me hope, now you are sick again, so sorry

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I as told calcium citrate is better to take and do t take all the dosage together body can only absorb so much at a time

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My Dr. office just called to set up to have another Prolia shot, I said NO WAY, 2 years out my life between once a week pills, once a month pills then Prolia. She sid so you are not going to take anything, I said that is right! She said well what is bothering you, I said I called office and was told the symptoms I was having was not from shot and go my GP. Nurse said what did your GP say, I said he said he would never have given me this shot in the first place, she had no answer.

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Sheri!!! I am so proud of you for speaking up. I am a true believer in doing just that in today's world. I am especially proud of you for telling the doctor's office because so many people are either afraid to speak up to them or have some other reason for not doing so. Your post has made my day. People like you are the exact reason I have posted my dad's experience on here. I know I can't help him (he died a year ago) but if I can just get people like you to read my posts so they won't take Prolia and possibly go thru what he did, then I will feel just a bit of happiness in my heart. I know you suffered from Prolia, my dad did too and he was totally misdiagnosed of having osteoporosis as an 81 year old man. I don't think I'll ever get over my sad feelings about what was done to my dad but one day I hope enough people report their side effects from Prolia that it will be taken off the market. It is a killer drug for many. Again, you have made my day. Hugs.

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Thank you Skittie~that was a new one for me and another choice. Our choices are very limited. Thank you very much.

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I am so sorry about your Dad but thank you so much for your kind words to me, I just to get this poison out of my system and maybe have normal life without pain.

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Sheri~You are a very fast learner young lady. You just made mama bear's day!! Hugs and stay well~Pood

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Are you ok, Pood,?I am worried about you

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Sheri~YUP. Dr. said it was just my new hip acting up. It has grown some bone around it but still has a long way to go -- a year he said so 6 more months to go. I seem to be 'normal' in that department so the Prolia must not be bothering me. He gave me a Rx but I'll have to check if I can have it or not. Hugs~Pood

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Rene~that is a good choice if one wants to pay the extra money. One can nibble on it and not have to take the large doses. What you just wrote sounds just like my Primary and it is totally untrue with Prolia in the body. That's for ordinary people that want a supplement, not those of us on Prolia or trying to build a lot of bone. If it were true, why would my calcium tests come in just a tiny bit high? Prolia demands a lot of calcium and it's not at all picky from where it gets it. I would prefer it not get it from my muscles. Stay well~Pood

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Sorry, your new hip is acting up but at least you know that will be Ok . Feel good, and again thanks for all your support. Sheri

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Just had my eyes checked there was a substantial change from one year to the next, maybe another side effect of Prolia. Since I had shot 2 times since last time I got my eyes checked.

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Sheri~according to Amgen the only eye problem with Prolia is cataracts of which I got. It was removed one day before the 'magic day' and the eye surgeon says I am getting a secondary on it already. I don't know why they call it a secondary as it is just scar tissue. I don't notice it yet but he could see it. If it is worrying you, call your optometrist and ask if s/he checked in there really well and can I be developing a cataract you did not notice. My optometrist missed the secondary. My eye surgeon saw it. That should take care of any and all fears you are having. With a cataract growing your vision would change that quickly. Hang in there girl~Pood

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They did check for anything inside no cataracts. It was just odd, since my eyes hadn't changed in years. Thanks, Pood

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healingtree~I read about the HGH. It reads to be a dream come true. Hopefully, it will do what they believe it will do and then will be available for the remainder of us that need it. I suppose this is just the first of what will become a large clinical study before they present their findings to the FDA and the rest of us can then have it. This is amazing news for all people with osteoporosis. Thank you so much for posting it. Pood

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What is HGH? I hope it's a good treatment without all these deathly side effects ??

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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