Prolia Side Effects (Page 49) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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REPORT

I'm very sorry for u your loss. I
Hope you find some peace a find drug will be Off the market at some point.

Keep complaining and encouraging people to report events. I do the same with convenia- I warn people about it with flyers. That is all we can do at this point really. And it may be more helpful to warn people to refuse the drug, maybe by word of mouth we can spread the word of his dangerous it is.

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C Louise: Wondering if you contacted your local congress person or senator? Did they respond? How are you now trying to spread the word about your experience?

Even thought FDA says only report once, still report! Your condition can change and side effects linger. They need to be updated. Sign up to receive update emails from FDA.

Wishing you all the best for a speedy recovery.

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I had it on my Facebook page saying don't take it and one friend asked what was it and all the others never paid any attention to it. Maybe I'm the only one with osteoporosis in my group of friends. Just a lot of you're in my thoughts and prayers and that's as far as it goes. Instead of Congress, maybe we should start complaining to the medical associations in this country, especially the Rheumatologists. More thoughts?

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Diana~keep after the FDA. That's where I had the best luck and they are paying attention and putting all the labels on Prolia which had not previously been there. In fact, the lady I talked to told me and I quote: "If we get more like yours we will take it off the market". I have no idea what my magic words were that got their attention that way. I have posted on other threads here or maybe even here that we have an option that is kind of like lawyers and settlements and as I have written many times I know a guy in NC with the last name of Lamb. It's almost identical to reporting to the FDA via the net with a tiny form to fill out and they will consider it and let you know. I believe it is mandatory that the Docs give us Amgen's Dear Patient letter; however, when I showed it to mine she had never seen it before. She swore up and down on a million Bibles that she had never had a problem with Prolia until little old me who is very lucky to be alive. I called or emailed the FDA with every new side effect I got. What we need are Immunologists but where are they? They are the ones that can figure out how to get rid of all these horrible side effects. We are also supposed to have a calcium test before a Prolia injection and also approval from our dentist. I received neither. What about the rest of you? Go to Amgen's website and print the Dear Patient Letter and take it to your new Dr. and also all the side effects that Amgen has now admitted to and are on their website. MDs are all on computers in their offices. Tell them to go and look but it seems as if they have to be hand fed. Pood

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After 1 year on prolia, my osteoporosis improved to osteopenia. Next year more improvement to no problem.

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Sheri, like you I am proactive. But in this - - too many unknowns. The more I think about it with the new drugs that stop bone turn over - scary. And the old ones were scary enough. Right on, everything you said Sheri. We each have to make our choices - most of us are brought up to respect doctors, but I don't think they do as much research as we do! Of course they have not been through what so many of us have been through either. I think each doctor that prescribes Prolia should take a couple of rounds of it. Thank you. Right on.

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I'm so glad I'm not the only one who feels so furious at the doctor, hurt, ornery, you name it, for what the doctor did to my dad and my family (we are torn in two) by prescribing Prolia to him. He had my dad on Prednisone for approx 10 years.You know what that did to his bones and no one had a sound answer as to why he was on it all those years. Every time my mom took my dad in for an appt the doctor came up with something new along with a new medication (he was on 21 pills a day when he died) and one of those last times the diagnosis was osteoporosis. I totally disagreed. My mom would not listen. She wouldn't read the info I printed out about Prolia, neither would my only brother (his wife is the office manager where my mom and dad doctored so they wouldn't look into this or question the doctor, whatever he said was the gospel!) It was just me by myself, fighting and saying dad shouldn't have it. Latex allergy, surgery on small intestine (can cause you to not be able to absorb nutrients), severe kidney failure AND unable to take calcium (mom told me he couldn't swallow them AFTER the shot when i told her he HAD to have calcium and Vitamin D) The doctor wasn't even smart enough to put him on those. But these are all reasons that people should possibly NOT take Prolia. Anyway my mom put him on 2 Tums a day when I kept telling her he needed calcium and she thought that was the amount of calcium he needed in those 2 Tums. I told her NO. She wouldn't even ask the doctor about it. Of course Prolia depleted the calcium from his bones until he ached so bad plus all the other side effects he had (Please read my old posts on here from Oct 2014 up until now). I AM SICK. And yes, I agree. Every doctor needs a dose of Prolia to try it out since they think it is harmless! It shouldn't hurt em right??? My poor dad was affected starting the following day after the shot. Hospitalized, nursing home, and so much more. And like many of you have said, my dad's doctor denied that Prolia had anything to do with the instant and lingering side effects that dad got. I'm in question also,now, that my dad may have died of Endocarditis caused by Prolia. He had all the symptoms just before he died but the doctors had not checked him for that. My mom told me after dad died to not even mention Prolia anymore. She didn't want to hear about it. You people hang in there if you can. I am thrilled to see so many posting on here and telling your story. You are helping others of us more than you know. I'll be glad on the day I see this deadly drug pulled off the market. I wish some of us who are on here could get together and do some informational seminars to get the word out. Just beside myself.

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Diana~there are different types of depression and from reading what you wrote I would say this has been too much for you so you need a little psychiatric help. They are usually wonderful people that do their very best to make us feel good. You want one that does not do talk therapy or maybe you do want to talk all of this out with a professional. Maybe the first one won't be the right one. They are Doctors too so each is different. Find the right 'fit' for you. I really, really love mine as he cares about ME and not the money. They have some meds that I have noticed have zero ill effects and we can smile again. You can smile as you paint, (I do water color) travel and enjoy life. Hypo in calcium is deadly. I don't think having a little too much is a life or death matter. I had the DVT's and PE's too. Whew! That was expensive. 6 grand for a shot. They were another 'present' from my Doc that had me on 10-20 mg Pred/day for a year and then just stopped it. My blood went crazy. It's on my chart so always have to have blood thinners immediately after joint replacements. 6'2" - cool. That's exactly like of one of my greatest friends. Smile. You are going to do wonderfully and the Calcitonin will help build those bones of yours - real bone, not fragile bone like Prolia builds. Hugs~Pood

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Hi all~Just got back from my Dr's office. I asked for Calcitonin. She said they don't make that any more and I said yes they do so she gets on her iPhone that did not even light up so I know she was not on it and proceeded to tell me that she could not give me a prescription for it because I'm too old. I said too old? My mother took it until age 96. I left with zero but I'll hit up my GP as I don't think he really cares and would not bother to look anything up. I just checked the AMA and the FDA and there are no age limits on Calcitonin. She just personally doesn't like it. Pood

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Oh my. They are so condescending. I'm just hiding and doing art now. Making happy things. Thats good for the bones

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Poodle are you still seeing the same doc who gave you prolia? Why don't you find someone else?

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Anne: Everybody reading this blog: Good that you are reporting to Amgen and Doctors. Please call and write FDA as many times as necessary.

Wishing all a fast recover.
One injection, Slow recovery, Two yrs and eight months!

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Diana, I haven't taken prolia- my docs tried to get me to take it right after osteoporosis diagnosis.. well I was really diagnosed 4 years ago but my doc didn't tell me the results then. I have hyperparathyroidism already so no relation to prolia. I think other people here said they have also had a rise in calcium or a drop and hyperparthyroidism. So it's not a surprise and most likely IS from prolia which affects your body in multiple ways, this drug is dangerous. Maybe you were heading towards it and prolia tipped the scale or maybe it just caused it alone. I can't understand how anyone would consider it for me with all my existing health issues or for anyone.

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My shoulder that got injected I cannot blame on Prolia. It has arthritis in it and little pieces of bone floating around in there. My elbow doesn't work too well either. It is my mastectomy arm and I take good care of it. Our acupuncturist isn't very good at all. The previous one we had was excellent but he could not make any money here. I'll do the dry needling which in a way is a lot like acupuncture, just not based on chi, but on scientific trigger points. Good luck on a Rheumatologist. They are the worlds worst for using biologic drugs. Don't believe a word they say unless it is to only know which type of arthritis one my have. Any Dr. can do that blood test. It's just sent to the lab for the SED rate. Sorry to put it in caps. My Mac likes to autocorrect so it wanted to make it see rate. Then if you have RA, they'll want to Rx a biologic 100 times worse than Prolia for it and if it's Psoriatic, they have another worse biologic for that, Hopefully, if you have arthritis, it is just OA that destroys the cartilage in between the joints. That's why I'm always getting replacements. That's managed with just a pill that cause no great harm. Let us know~Pood

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How bout this. I hv had low immunoglobulins and hv been sick w respiratory infections on and off (1 week off then sick again)I also have anemia. The dr today said I bet your right I bet it's the prolia affecting your immune system. They were going to give me gamma globulin.

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I saw the Rheumatologist On Thursday. He ran a whole lot more tests than just a SED. He did a DNA and a test for inflammation and several others. I told him about the Prolia. He actually said that he has seen this before with the Prolia. I should have the test results back midweek. In the meantime he put me back on the steroid. It has already helped a lot. Yes I know how bad it is for my bones. I supplement with calcium, D3 and K2 also zinc and magnesium. I exercise when I'm able to mostly weight-bearing and walking.
We are Leaving the End of May for an extended vacation which will be very strenuous. I'm getting too old to have to miss the good stuff because of my health. Because of Prolia.
I'll keep you posted when I get the results all my tests. Having a bone density test on April 27th. Kind of worried about that one
I have always appreciated your moral support and your advice. Thanks Pood

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Pood
..praying fir good news on bone density test.

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Carolyn, Prolia has stolen a lot of life from you. I sincerely hope you can enjoy the trip and have some fun for a change. You deserve a life! It generally takes years for RA to really hurt that badly. It basically makes the body stiff if one stays in the same position too long. My poor brother has both RA & OA. I have just OA. Pred is a wonder drug and at the same time a very wicked drug. Prolia does cause auto-immune diseases. It did in me and a couple of other people here and one in Australia. I guess I was lucky. When the Prolia went 'poof' so did the Celiac Disease. I say it's GONE and my stupid Dr. says it's in remission. How can something caused by Prolia be only in remission????? Go have fun the best you can and come back and tell us all about it. Be well~Pood

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Tomorrow going to Thyroid Dr for check up and ask her to check calcium and magnesium levels anything else? My husband and I took a trip and have not gone on plane since doing all bone density meds, so for more than 2 yrs. First time ever my ears pained me so much I was crying on plane, then for whole day my head was in a tunnel , I am blaming the meds for that too. I hate this that we all tried to do the right thing and it has destroyed our life. TY for all of you to keep me from jumping off a cliff ??

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No Pood, I guess I wasn't clear in my post I am going today to thyroid Dr and asking her to check my calcium and Magnesium levels, I asked is there anything else I should check. Then I was just saying how my ears were in such pain on landing in plane and they wouldn't clear for days, something I have never experienced before all Bone Density drugs. Thank you so much for your caring about me as I do you. Love , Sheri

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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