Prolia Side Effects (Page 41)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Hoe much water do you have to drink with prolia injection. And where can I find it.

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Judy (# 2345) --Usually a higher WBC indicates an infection, bone marrow problem or a DRUG. Can Prolia still be affecting your immune system? You should be out of that specific problem by now. It does get into the worst of our DNA that we knew nothing about until Prolia causes it to pop out of hiding. Your blood should really be back to normal by now. I would ask my Dr. to do a little more checking around unless this has been an 'always' with Prolia for you. So very sorry about your wrist. You will be fine and dandy in 6 weeks and maybe a little PT if it gets stiff, depending on where the breaks are. Wrists are one of our most likely bones to go bad with any osteoporosis but it does not necessarily mean that you have to take medication for it. There are some very good alternative suggestions for you. I believe they have some validity. We know that Prolia is not the answer and neither are the bis's so why not try something natural for a change? It will hurt you much less than the Prolia did. Will it work? Give it a chance. Heal well and quickly~Pood

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Re: Maritere (# 2356)

Hi, Maritere,I do eat lots of greens and calcium rich food. My recent blood tests show my calcium and vitamin D levels are in the high range. As far as weights, I know that as soon as I can I will start a daily routine of weights. This last year I haven't been able to do any as I've been dealing with an extremely painful rotator cuff tear. After a few cortizone injections and physio it's finally on the mend and now this break! I've also just had a bone graft in my upper front jaw to prepare it for an implant. I am 76 , have been extremely active, biking, hiking , cross- country skiing( whenever we get enough snow around Toronto!) and then...whamoo, Prolia has completely changed my life as it has yours . I get so angry whenever I think about the Dr who prescribed it and told me she'd never had a patient have any side effects and when I started getting them, blaming them on the stress of dealing with my husbands stroke. He's fine, in good physical shape , walks every day ,so I don't know what she's talking about. I see the orthopedic Dr in a few days and I know he's going to push osteo drugs on me. I'm small boned, slight ....a perfect candidate so I'm reading all I can to counter any opposition I may get!ill update in a few days re the appt. ??

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Judy (# 2345) --

Hi Judy, I had increased my bone density just by doing weights and eating a very healthy diet, such as a lot of organic, dark-green, leafy vegetables. Hope you are recovering fast and well from that hand fracture! Take lots of care!

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Re: Annie (# 2354)

Thank you Annie for sharing your experience. It’s too late for me as I did receive a shot in March of 2017 and although it was my only one, i’ve had many of the symptoms described in this meds chat: Disabling autoimmune rheumo-dermatological responses, severe hyperthyroidism, severe weight loss, the loss of a healthy tooth, hair loss, severe and debilitating migratory joint pain, and lately a horrible Graves’ ophtalmopathy that totally deformed the expression of my eyes and my whole face. My 2018 Easter weekend was spoiled by a new one: A locked jaw with excruciating pain. All the best to you Annie. I'll pray that you get well soon...

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Judy (# 2345) --

Judy, I need to give you my opinion on Prolia allegedly. I was 70 years old. I have never had a broken bone nor did I ever have a surgery. Several months later (oh and by the way I've never fallen) I had to have three separate surgeries in 5 weeks with fractured vertebrae. I have been in bed since November the 2nd 2017. Now my colon flared up and I am cut from above my navel to my private area. I am wearing a colostomy bag. My surgeon said the artery in my stomach was so full of pus I was in toxic shock. I am so thankful that I am still alive today. If you will listen carefully to the commercial that advertises for Prolia it will tell you back fracture. Now at the end they've got a commercial out that you can get an infection; if you don't take shot number two of the drug you will have an infection so bad that will send you to the hospital. I feel absolutely horrible. This is a woman writing to you that worked 3 days a week for 10 to 12 hours every Sunday of my life. Now I'm on a walker trying to rebuild my strength walking to the stop sign at the end of my street. Ladies and Gentlemen by the grace of God please do your homework before you ever ever receive this drug. God bless you and I hope this gives you a little insight on potentially what this drug can do. If this has helped you in any way please let me know.

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Re: Giralda (# 2345)

Please let me add my voice to those who advise against this drug. See Save Our Bones for diet and exercise advice.

I can't imagine taking this toxic drug with the conditions you already have.

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Re: Marion (# 2347)

I am from Singapore. My friend's dad died within 3 months after only 1 injection. Suffered horrible side effects and a growth in his intestine. Luckily my dad rejected the shot which was recommended by his endocrinologist.

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Re: Giralda (# 2345)

How can your Dr. even mention this very dangerous monoclonal antibody drug to someone who has two serious conditions! Prolia plays with your immune system affecting almost—if not everything—in your body. The paradox is that even your bones suffer horrible consequences: necrosis of the jaw and spontaneous fractures (of the femur and spine) are not uncommon.... Please use weight training and a healthy diet with lots of organic dark green leafy veggies and forget this poison. I wish I could post «before» and «after» pictures of myself for you to judge. On March 30... a year and two days ago I made the biggest mistake of my life by trusting my GP who must have had strong reasons to insist so much that i get this injection.....,Take care if yourself! All the best

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Re: Marion (# 2347)

YES there are many, many, many in your country. It definitely is not just you.

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Re: Giralda (# 2345)

How about you tell your Dr. "Over My Dead Body" and that should end the discussion on Prolia. You already have some good sized medical problems. They don't need to be made larger, especially with a thyroid problem. A few women can tolerate Prolia but even when they do, it is not good bone, it's old bone on bone. Then, when you stop, your back fractures. The FDA has since put a warning black label on Prolia since it was first introduced into the USA. There are other drugs on the market. Prolia is a drug to be used ONLY when ALL others have FAILED. You are not mentioning using any others. When will our medical community figure this fact out! Be well~

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Re: Marion (# 2347)

Yes there has been but they are not on this site. Search through UK or Australia specifically and you will find them. I did so I know you can too. Here we seem to be mostly from the USA/Canada. Prolia is in every country in the world now. When I was first researching I found a large group of ladies in Australia with the exact same problems we are all or have all faced. Be well~

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Re: Poodle (# 2342)

Every post I see re opposition to Prolia appears to be from patients in the USA and Canada. Is there anyone in Australia who posts here with similar problems, other than me that is?

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Re: Judy (# 2344)

How about Yoga for Osteo ? Check out Dr. Loren Fishman in NYC. He has a book and videos of Yoga positions ( of course once you are healed ). My go to exercise is TTAPP. There are also the dietary approach, i.e. an alkaline diet that won't leave minerals out of the bones. On line there are such sites as Save Our Bones and the Better Bones Blog.

Be well.

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I have hypothyroidism and dialysis 3 times a week. My specialist wants me to prescribe prolia for Osteoporosis. what are the consequences.

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Re: Maritere (# 2337)

Thanks for letting me know there are other Canadians suffering from this horrendous drug. I now have an added problem to add to my list. I tripped last night, fell and broke 2 bones in my wrist. Now I'm not necessarily blaming it on Prolia but I do find it interesting that after being off Prolia for almost 2 years my latest blood work still shows a higher that average WBC. I know that Prolia compromises your immune system so, I ask myself, is this rise due to Prolia or some other reason for which I have no explanation! Of course the break was due to the fall, not the WBC but I'm still dealing with bouts of mouth sores and muscle pain. Now with this fracture I'm afraid the orthopedist is going to blame my lack of bone therapy and I refuse to take anything else that stays in my body long term. My calcium count is good as is my vitamin d count. Maybe it's back to Actonel....I'm in a real quandary. My GP was trying to have me maintain my bones with exercise and diet. Any suggestions out there?

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Re: Maritere (# 2337)

It is true that Prolia brings out the worst in our DNA. Things we never, ever knew were lurking in our bodies because they were never causing us any problems. How it is able to do that, I don't really understand but it surely has something to do with T-cells and T-cell helpers along with the thyroid gland I would assume. Be well~

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EllenI (# 2330) --

That could well be a nerve in your back that is causing those problems. I would suggest a Rheumatologist and a full work up. Prolia causes so many different problems on different people. Some of us get the same things while another may get something totally new. It is true that Prolia is the Devil's drug. Years later you will recover a lot from this drug but so far I don't know of any total and complete remissions from it, i.e., I still have the hair and nails issue. If you are in the USA, a letter to your Senator would help get the Federal drug people looking at it in a less favorable light. They have more power than we, the consumers, do. Be well~

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Re: Hazlat (# 2340)

I am pleased as well. I cannot believe that I allowed myself to be talked into taking this drug. Unfortunately I was scared and that made me vulnerable. Wish I had known about this site beforehand.

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Re: Sal (# 2339)

Thanks so much for all your comments as it made me refuse the drug, so pleased I did.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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